last i knew, mem was cleaning for inspections after rescheduling to buy time to get power on
their p100 broke, they still haven’t replaced items that sewage from flooding caused, need food, bills
help however you can. 🔗 in reply
CA: $elhielo
V: memwho
P: xomemereytwod
[QRT]
It’s Mem’s birthday! 🎉
Unfortunately, their power has been off for 10 days.
They need $800 to get it turned back on.
200 people sending $4 tonight would cover it.
Can you help out and
#ShineALight4Mem
?
CA: $elhielo
V: memwho
P: xomemereytwod
Links in reply ⬇️
asked one of my healthcare providers for a letter of support for my long term disability case and they said “no, nobody’s going to do that for you” so i said alrighty, can you just put it in writing that you won’t write a letter? then they decided they’d write a letter
@DEC0L0NIZE
truly. i’ll never understand it. my heart goes out to everyone whose lives depend on them, especially those less privileged than i am. thank you! i’m glad too. certainly didn’t see it coming
my cardiologist is out with covid and canceled 45 minutes before my appt began. the person who called said “unfortunately he won’t be in” and i said “covid cases are super high right now, is he sick?” i usually wouldn’t ask lol. sure enoughhh
today a complete stranger said to me “got a little boo-boo did you?” in response to me limping/walking with a cane. i said “no i’m disabled” and i hope she feels like a dink for not minding her fucking business bc why would you say anything like that to a stranger
the job i got my first covid infection at cast me out for wearing a mask. the owner of the company had a meeting with me and asked if i was a whistleblower and going to “tell on them,” and not so subtly threatened me. they all came to work with covid & thought it was funny.
my cousin is in the hospital again. admitted. 6th time since christmas. she is 32, has 3 kids to look out for, just lost her business, is losing her home. she has severe long covid, she’s had several different blood infections that won’t clear up. not sure what’s going on—
idk bout y’all but my nervous system wasn’t built to handle worrying about being reinfected with covid constantly, to deal with being gaslit constantly by society and those with power over my healthcare about the virus that disabled and killed so many, etc. and im privileged
autistic folks cannot un-know things. sometimes i wish i could. some might think that makes us “rigid” but i think it means we adapt when presented with new information. knowledge is power (and torture)
saw a tiktok where this woman was like “i thought i had long c0vid for 2 years but it wasn’t! it was FND!” and i just dont have the spoons to find the polite way to say that that would fall under the long c0vid umbrella. she is under this impression bc a doctor told her that 1/
had to wait 6 months for this appt since my cardiologist left the practice. next available appt with any of the cardiologists is in july. HA. mAsKs aRe oPtionAL!
you all are really the only reason i have any faith in humans anymore. before SARS-CoV-2 disabled me, i was pushed out of local leftist & even communist organizations for my disability justice stance. for wanting spaces to be accessible. for wanting folks to continue masking
my cousin is hospitalized still, definitely has long c0vid. has candida and staph in blood. bruising everywhere (drs are perplexed @ that for whatever reason) passing out often. other than T & B cell panels, anyone have any ideas what should i suggest she ask for?
lucked out that i didn’t get sick with my cloth mask at a wedding (indoors) in 2021. committed to being the plus one of the best man and didn’t want to bail. was the only one masked & hadn’t been disabled by SARSCoV2 yet. pretty sure i will never go to a wedding again
No, your patient does not have an anxiety disorder because they are wearing a N95 to avoid being reinfected with
#COVID
after it completely altered their life and killed loved ones. Charting records in this way is punitive, abusive, and stigmatizing; and THAT is pathological.
my brother has had psychosis the past couple months and i just mentioned “yeah mine came back and i couldn’t figure out why and then realized it was bc i started xyzal” and he goes “oh shit i take xyzal i wonder if that’s doing it” & sure enough. only since covid for both of us
@vee_etc
but if you didn’t know the medical terms for your symptoms, they’d probably say they don’t understand what you mean and blow you off instead of asking clarifying questions
they taunted me intentionally writing masks don’t work all over everything, saying covid isn’t real, sending covid infected coworkers up to me saying “watch go stand next to her she’ll freak out”
if it were long c0vid, she’d have fallen ill right after her acute infection- & not 2 months later. i always hear that people recovered from acute infection then symptoms started a few months later. & that’s my experience too. obv people get sick & never recover too but. 2/2
you are literally doing harm to your patients by recklessly getting covid over and over when you don’t have to. you’re seeing some of the most vulnerable patients and can’t wear a fucking mask. i’m now going to be going 14 mos without cardiology appt with active heart issues lol
cw: medical trauma
.
.
the “words” i had with the x-ray tech were asking for someone else to come in the room with us or for someone else to do my scan because he made me extremely uncomfortable- will spare you all the details- didn’t get my much needed xray & got discharged
had a partner who wanted to take care of me but didn’t wear a mask at his job so i had to call things off. not worth it. what good is having someone to care for me/love me if they’re the same person who could literally kill me?
he’s gonna be too sick to be my doctor by july. so are all the other doctors. my mom goes to the same practice and she was seen 2 months ago and her cardiologist literally actively had covid. just casually told her. he was wearing and n95, my mom was masked. she’s high risk, too
from the practice who wrote this! 🫶 i felt i needed to tell the person calling a bit of my story. i told her i’ve had long covid for 2 years and she goes “how long?!”
my cardiologist wrote this about me (his wife & daughter disabled by covid) i have a rheum, i hadn’t been fired from “various offices.” was fired from my GP bc i dared mention that an xray tech was extremely inappropriate with me and asked for someone else in the room with us.
@healingfromlc
same ❤️ im so sorry. my cardiologist said he’s very worried about my mental health bc of my mask and air purifier all while he is having to leave the practice because his wife and daughter are having health issues they never had before
honestly relieved. was super nervous to go to in-person appt while cases are so high. especially there. where my requests for masks are laughed at, used against me, and simply not acknowledged/respected. where everyone’s obsessed with getting sick over and over
—currently, my mom will update me. i can’t text with her anymore bc her phone was shut off for nonpayment and i don’t have facebook. she had a blood transfusion and do a bunch more tests. she keeps breaking her back bc she is passing out constantly & her bones are so brittle
@AnushaLDN
don’t want to discourage you at all, but i asked if my GI could do me a favor and have everyone wear n95s during my procedure since i wouldn’t be able to mask and this was what was written in my appt note (a bunch of lies) (also sorry no spoons for alt text rn)
text from my mom. he had a stroke after his first infection. 2 cousins my age admitted to the hospital weekly. one possibly needs kidney transplant now (32 years old no prior health issues) i don’t know. i don’t understand how anyone is trying to normalize this.
my mom has been buying asics forever bc she has super high arches and works 100 jobs on her feet & they recently changed how they were made or something and she was stuck in a new pair at her 8 hour shift that destroyed her feet. they can’t do this to hypermobile people
i look at old photos (this one’s june 2020) and all i can think is man, i was not wearing that kn95 right. press the nose wire on your mask/respirator down around your face with 2 hands to seal it! don’t be like 2020 heather
posting for anyone who needs it! never too late to stop using ableist language. it takes some effort and practice but it’s worth it. got this from
@DEC0L0NIZE
who has posted it multiple times- thank you!
someone on instagram said to me “you’re disabled from covid? i’ve only heard of people becoming disabled from the vaccine” ok how don’t you think a virus that has killed millions cannot also disable people
every few tweets on the timeline are positive covid tests. so many people are sick right now. it was predictable but shit sucks so bad. it didn’t have to be this way
please help. (mems acct is priv)
need more supporters and eyes on mems needs/requests for survival/safety
many unmet urgent needs/health hazards. rent due, electric overdue, & more!
CA: $elhielo
V: memwho
PP: xomemereytwod
[qrt]
my cardiologist wrote this about me (his wife & daughter disabled by covid) i have a rheum, i hadn’t been fired from “various offices.” was fired from my GP bc i dared mention that an xray tech was extremely inappropriate with me and asked for someone else in the room with us.
@MomPedBlog
@TheChefsGardens
I don’t feel comfortable enough to ask health care workers to mask because I’m afraid they’ll write that I’m obsessive or anxious in my chart. You are in a position of power over me. Why don’t you understand that? If you do understand that why don’t you care?
a phlebotomist treated me so horribly today. i just sat there stunned and cried. she literally said “can you shut the hell up” bc she asked me for my drs fax # then picked up the phone which i didn’t know, so i started saying the # while she was on the phone. i would usually—
this was my PCP lol and i had to go off of several meds suddenly because they refused to continue providing care even though they’re supposed to for 90 days (used to be 30 here i believe) and also canceled 2 referrals made rhat id been waiting for and canceled and MRI
and ended up with covid a couple weeks later. i really hate having to look at any of this. i haven’t processed most of it, don’t know if i ever will. too much
no idea how i’ll survive next month if we have a government shut down and thus no SNAP. i keep trying to tell myself money isn’t real bc i don’t know how else to cope lmao. you know that thing where you’re so stressed you start laughing maniacally? that’s where i’m at
beyond when it was required. it shattered me. wasn’t surprised @ my DSA chapter but PSL? (party for socialism & liberation) like fuck y’all. and i really internalized that shit for a while and thought i was the fucking problem for giving a fuck about disabled folks? jesus christ
cw: medical trauma
this is one of the reasons my disability insurance company listed for a reason for now denying my long term disability appeal (still fighting, no income since april bc of all their bs)
i have a lot to say but don’t have the ability to properly express myself
people will really watch long covid take everything from you, will watch as it’s killing you, but don’t want to talk about it because it makes *them* too sad. yeah, no, i’ll just stick to this community.
@AnushaLDN
absolutely. that was all i had asked for, i said i would provide respirators and bring several different ones to choose from, that i only needed whoever is in the room during the procedure to wear an n95 because that’d be the only time i physically can’t
big outing the other day. almost pretended i was human.
@flo_mask
keeping me safe w/ surgical over top. only had to recover for 48 hours (and somehow my windshield cracked and i was like yeah this is another reason i don’t leave my house)
@pot8um
he is a cardiologist and had to leave the practice bc his wife and daughter suddenly had debilitating health issues. oh and it said i could request for him to wear a mask so i did & he didn’t mask & sat on the chair inches from mine to talk LOL.
lately i’ve been hopping into random tiktok lives and telling people to look into long covid, to wear a respirator to save their lives & others, etc. not annoying or unreasonable about it & i keep getting blocked by moderators
pet sitting. waiting for the air to be cleaner (just me here but owners were here this AM) happy caturday! you can’t hear it but marshmallow is purring loudly. he also keeps licking my head & it feels awful 😹 maybe he’s trying to fix my migraine
my moms student has MRSA on his leg. had it swabbed bc his leg was severely infected. doctor sent him home with antibiotics and a bandage on it thursday. he was in school today with the same unchanged bandage. step mom is a doctor
i mentioned spike protein, cytokine profile. dunno if they’ll do these. she does not mention her several c0vid infections to them as she does not think that is what is driving her sudden, very steep decline.
@vee_etc
you have fear of standing! only way to treat it is exposure therapy. have you tried standing so you can stand while you stand? just have to stand ✨
dude. my new doctor already wrote me a letter for disability and did everything that my lawyer was asking unlike my other providers who gave support. i’m cryinggg i hope i have income soon so badly and that it’s not too late and that i don’t have to go to court for LTD at least
others do this for me too. benadryl for certain, had to quit that a long time ago. would try (dye free) in emergency perhaps. and claritin turned on me, react to zyrtec, etc. just started xyzal to appease allergist. the drug is otherwise fine, think it’s helped a bit
i’m sorry, need to CF again for this months expenses (incl. printer ink & respirators)
goal is $300 for now as i’m hoping a miracle happens w my disability claim(s).
when i first started seeing my GP, she ran basic tests and tried saying my chronic illness/disability was psychosomatic (classic) and my therapist had suggested that i don’t sign a release for my GP to obtain records from her. so i didn’t.
and i still have this doctor. i hate her. i have to do all these mental gymnastics where i suggest something and then make her feel like it was her idea (ego) and all the tests i’ve gotten her to run have come back wonky. love my psychosomatic blocked arteries & bone loss, etc
—for not melting down. for knowing myself. and for being able to extract the good out of her. and for going and getting the blood work done to begin with lol.
@DisbldUrbanFarm
yeah exactly. i hardly think my words would make much of a difference and she’s got her mind made up bc a doctor said so. & it’s like even if she had FND & c0vid played no role, she is still now higher risk for poor outcomes from c0vid infections
@hannaweeny
same here! i was diagnosed with an eating disorder because one of the places i had panic attacks every time, without fail, was the grocery store