flora peyvandi @flora_peyvandi Twitter profile

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flora peyvandi

@flora_peyvandi

3 months

How to distinguish anti PF4 ab disorders #Isth2024

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flora peyvandi

@flora_peyvandi

2 years

We will all miss Claire. Her enthusiasm and her positive energy! Thanks Claire for what you have done for the ISTH. Sadly, Claire McLintock, M.D., passed away on December 23, 2022.

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flora peyvandi

@flora_peyvandi

3 years

Merry Christmas to all from Milan! With all the best wishes for the easier and happier days

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flora peyvandi

@flora_peyvandi

2 months

Today is 40 years I left Iran and arrived to Milan-Italy. However this country as well as the UK and US gave me a lot and I grow up and did tremendous amount of things but I still miss my country, my culture my friends and one day I would like to have you all in a peaceful Iran

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flora peyvandi

@flora_peyvandi

2 years

Today I had a chance to talk with lots of enthusiasts young people. I think we should bring lots of young people to our society. We need to be more #international , more #young people and more #women from all over the #world . Important goal to achieve.

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flora peyvandi

@flora_peyvandi

2 years

I really like this picture of Claire. We were at ISTH in London 2022.

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flora peyvandi

@flora_peyvandi

3 years

Eculizumab for refractory thrombosis in #antiphospholipid syndrome | Blood Advances | American Society of Hematology

Eculizumab for refractory thrombosis in antiphospholipid syndrome

Key Points. Recurrent thrombosis can present in antiphospholipid syndrome despite anticoagulation, antiplatelet, and immunosuppressive therapies.Complement

ashpublications.org

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flora peyvandi

@flora_peyvandi

2 years

Beautiful Colours this morning in #Milan

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flora peyvandi

@flora_peyvandi

1 year

Look to this beautiful present. Come to the #ISTH registration booth to pick one of them. See you all soon

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flora peyvandi

@flora_peyvandi

4 months

How I treat the co-occurrence of venous and arterial thromboembolism: anticoagulation, antiplatelet therapy, or both?

How I treat the co-occurrence of venous and arterial thromboembolism: anticoagulation, antiplatelet...

Through a structured analysis of 4 illustrative cases, May and Moll describe their approach to treatment of patients with co-occurrence of arterial and ven

ashpublications.org

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flora peyvandi

@flora_peyvandi

2 years

#WomenInScienceDay Today is our day and I would like to congratulate all scientist women in the World who worked hard to bring their opinion and thoughts particularly those in the countries with several political restrictions and limitations.

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flora peyvandi

@flora_peyvandi

1 year

It is my pleasure to report you ,as the president of ISTH, that we had 3 intense days of discussion and work with the council members and SSC rappresentative on how to evolve the #ISTH in future making sure it’s progress diversity involving more and more early young scientists

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flora peyvandi

@flora_peyvandi

1 year

Here is #angelobianchibonomi hemophilia and thrombosis group in Montreal #ISTH2023 . We are celebrating our results after a week of Congress. Thanks to the organisers @SusanKhan and @Mark Roger and LOC , our headquarter officers and all people at #ISTH for the amazing event

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flora peyvandi

@flora_peyvandi

2 years

ISTH networking 2022! Such an amazing event. Thanks to the London team for getting us together again!

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flora peyvandi

@flora_peyvandi

3 months

Am celebrating the success of our Congress #ISTH2024 with this beautiful cocktail at Thai lounge on my return to Milan. 🥂

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flora peyvandi

@flora_peyvandi

2 years

To all Women who fight for their social and cultural rights

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flora peyvandi

@flora_peyvandi

3 years

Our new Hospital Policlinico in Milan 2024 with the therapeutical garden

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flora peyvandi

@flora_peyvandi

9 months

Please join me to like to thank Dr @DavidLillicrap @JHMorrissey and @MaryCushmanMD to take care of our Society journals #Jth and #RPT .H. You all did an amazing job! Thanks thanks and have a great holidays.

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flora peyvandi

@flora_peyvandi

10 months

On my way to #ASH2023 in San Diego, over the #Alps

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flora peyvandi

@flora_peyvandi

3 months

Angelo Bianchi Bonomi Hemophilia and Theombosis centre #ISTH2024 Bangkok

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flora peyvandi

@flora_peyvandi

3 months

We wish you a very fruitful and wonderful ISTH meeting #isth2024

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flora peyvandi

@flora_peyvandi

2 years

A big thank again to the #ISTH team and the local organising committee for the great meeting. We see each other next year in #Montr éal hopefully with lots of new constructive scientific data. Have a safe trip back home! Was lovely to see you all!

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flora peyvandi

@flora_peyvandi

2 years

I have some exciting news for you. Finally we know the date and location of our next #BIC meeting. Make sure you could be with us enjoying a good science, art with the lovely Italian food in Palermo #Italy

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flora peyvandi

@flora_peyvandi

3 years

So nice to see all friends again at Irish Haemophilia Society meeting . Beautiful place! Thanks Brian for inviting me

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flora peyvandi

@flora_peyvandi

9 months

#ASH2023 . We all need to remember this sentence

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flora peyvandi

@flora_peyvandi

2 years

Start of spring! In Milan

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flora peyvandi

@flora_peyvandi

1 year

We celebrate the success #ISTH2023

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flora peyvandi

@flora_peyvandi

3 years

Persistent endotheliopathy in the pathogenesis of long COVID syndrome - Fogarty - 2021 - Journal of Thrombosis and Haemostasis - Wiley Online Library

Persistent endotheliopathy in the pathogenesis of long COVID syndrome

Background Persistent symptoms including breathlessness, fatigue, and decreased exercise tolerance have been reported in patients after acute SARS-CoV-2 infection. The biological mechanisms underly...

onlinelibrary.wiley.com

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flora peyvandi

@flora_peyvandi

11 months

Am very happy to share this work of my team with you. Population-based prevalence and mutational landscape of #von Willebrand disease using large-scale genetic databases

Population-based prevalence and mutational landscape of von Willebrand disease using large-scale...

npj Genomic Medicine - Population-based prevalence and mutational landscape of von Willebrand disease using large-scale genetic databases

www.nature.com

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flora peyvandi

@flora_peyvandi

2 years

The other important mission our society in future will be to invest on the basic science , a good quality clinical science and involve more and more on our young scientists

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flora peyvandi

@flora_peyvandi

1 year

Am already in Montreal, starting with the #ISTH activities. The first meeting will be the ISTH council meeting evaluating all our ongoing activities and planning several new action plans on #early carrier, improve #research funding and make sure our #education will reach all

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flora peyvandi

@flora_peyvandi

1 year

Let’s start with the early carrier session #ISTH2023 . Room 514

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flora peyvandi

@flora_peyvandi

2 years

Von Willebrand factor and cancer: Another piece of the puzzle #Denis - Journal of Thrombosis and Haemostasis

Von Willebrand factor and cancer: Another piece of the puzzle

Click on the article title to read more.

onlinelibrary.wiley.com

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flora peyvandi

@flora_peyvandi

2 years

I watched lots of presentations. We are ready for more interdisciplinary collaborations. We need to involve more neurologists, cardiologists, hepatologists , bioinformaticians and use the most advanced technologies working on the role of micro vessels in Medicine.

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flora peyvandi

@flora_peyvandi

2 years

Congratulations to our Editors of JTH and rpth

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flora peyvandi

@flora_peyvandi

2 years

On return from University of Verona! The Sun is touching the earth

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flora peyvandi

@flora_peyvandi

2 years

I was already convinced but talking and hearing to people with rare bleeding disorders today at #EHC made me to realise “ We need to do much more on VWD, platelet disorder and all other rare disorders with not optimised diagnosis and treatment “

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flora peyvandi

@flora_peyvandi

3 years

Starting with BIC. Such a big emotion seeing each other again

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flora peyvandi

@flora_peyvandi

2 years

I wish everyone an easier 2023 with less wars discrimination more freedom joy success and growth. Happy 2023!

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flora peyvandi

@flora_peyvandi

1 year

Agra #India . The colour and joy of this country is not describable

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flora peyvandi

@flora_peyvandi

2 years

Women of Iran: Heroes of the Year 2022 | Time

The Women of Iran Are TIME's 2022 Heroes of the Year

The movement young women in Iran are leading is educated, liberal, secular, raised on higher expectations, and desperate for normality

time.com

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flora peyvandi

@flora_peyvandi

2 years

Am preparing my presentation on informed consent in gene therapy. Is such a difficult and important point and could differ in different cultures. However one point is crucial both the physician and the patient should know clearly and deeply pros and cons of such treatment

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flora peyvandi

@flora_peyvandi

2 years

Results of #Haven 7 study on #emicizumab in infants reported by dr Steve Pipe at #ASH

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flora peyvandi

@flora_peyvandi

1 year

Tomorrow is #April 17th! Let’s celebrate the #Haemophilia day for the great progress achieved by the arrival of longer acting, non replacement and gene therapies. Let’s also focus in the following years on number of un treated patients. We have a meeting in Rome with #Fedemo

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flora peyvandi

@flora_peyvandi

3 months

Classic HIT and VITT are different #Isth2024

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flora peyvandi

@flora_peyvandi

3 years

#Milan with blu sky. Beautiful Duomo!

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flora peyvandi

@flora_peyvandi

7 months

To all women of the world! To your freedom and independence

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flora peyvandi

@flora_peyvandi

3 years

How I treat dysfibrinogenemia | Blood | American Society of Hematology

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flora peyvandi

@flora_peyvandi

2 years

Prof Makris opens officially the #EAHAD 2023 in Manchester remembering everyone what a disaster happened to the Turkish population with the earthquake. Please go to the website of Turkish Society and help those who need our help

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flora peyvandi

@flora_peyvandi

1 year

Am preparing my SOA presentation at #ISTH on #non replacement therapies in bleeding disorders other than haemophilia. Is amazing how many novel therapeutics is becoming available for treatment of hemophilia and still is so poor treatment of RBDs. I hope we move forward

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flora peyvandi

@flora_peyvandi

1 year

Prof Ragni reports Recombinant #VWF is not superior to tranexamic acid in reducing heavy menstrual bleeding in patients with mild or moderate von Willebrand disease a phase 3, open-label, randomised, crossover trial

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flora peyvandi

@flora_peyvandi

3 months

And here the beautiful and functional team of the #ISTH who worked hard to make our meeting unique! Thanks so much to all of you. It was an honour to work with you. Grazie

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flora peyvandi

@flora_peyvandi

8 months

Thanks Cedric for reminding the audience of #EAHAD2024 existence of other 85% of patients around the world who have no access to therapy

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flora peyvandi

@flora_peyvandi

2 years

Basic #science research opportunities in #thrombosis and hemostasis. I am so proud of this work of the ISTH basic science research group! Thanks so much. This will be a great opportunity

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flora peyvandi

@flora_peyvandi

2 years

I arrived to Colombo #Sri Lanka at 4AM and have my presentation at 10AM. The meeting is organised by the the #WFH Humanitarian program thanks to Assad Haffar and his team. So excited to see all friends from Africa and Middle East . Thanks Assad for inviting me!

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flora peyvandi

@flora_peyvandi

2 months

If you want to have some information on VWD please read this review article! Happy to share it with you ⁦ @OmidSeidi ⁩ ⁦ @DavidLillicrap ⁩

von Willebrand disease

Nature Reviews Disease Primers - von Willebrand disease (VWD) is the most common inherited bleeding disorder. VWD is characterized by defects in von Willebrand factor, the largest plasma...

www.nature.com

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flora peyvandi

@flora_peyvandi

2 years

#Emicizumab donation program of #WFH shows that dose of 6 mg/kg monthly works very well in both pediatric and adult patients- data reported by several African and Asian physicians. I hope these data will be published soon

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flora peyvandi

@flora_peyvandi

11 months

Takeda’s #ADZYNMA (ADAMTS13, recombinant-krhn) now is approved by U.S. FDA as the First and Only a #Recombinant ADAMTS13 Enzyme Replacement Therapy for the Treatment of #Congenital Thrombotic Thrombocytopenic Purpura (cTTP)

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flora peyvandi

@flora_peyvandi

2 years

Today I had a talk on novel #therapies in hemophilia for the personalised medicine organised by the #European Commission. Was a great discussion on safety of novel drugs. How to monitor the safety and how to harmonise the data collection which is a big challenge

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flora peyvandi

@flora_peyvandi

3 months

Thai fruits at early carrier meeting #isth2024

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flora peyvandi

@flora_peyvandi

1 year

Lovely lunch with @Prof Alok Srivastava in #mahabalipuram talking about the progress of gene therapy in Haemophilia in India. Look forward to see their data. Come to #BIC meeting in September in Italy to see these results

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flora peyvandi

@flora_peyvandi

1 year

Beyond the guidelines: how we approach #challenging scenarios in the diagnosis and management of von Willebrand disease

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flora peyvandi

@flora_peyvandi

3 months

I learned a lot on new set of thrombocytopenia and thrombosis anti PF4 ab disorders. A fantastic Plenary at #Isth2024 and thanks to Ted

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flora peyvandi

@flora_peyvandi

10 months

#Antiplatelet strategies: past, present, and future

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flora peyvandi

@flora_peyvandi

1 year

Great plenary presentation on the role of #fibrinogen in neuro degenerative disorders at #ISTH 2023 by Katerina Akassoglou from @UCSF delivering the Giles Memorial Plenary Lecture # #isth2023 @DavidLillicrap

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flora peyvandi

@flora_peyvandi

2 years

An extensive #hemostasis workup, including global hemostasis assays, does not improve #prediction of liver biopsy-related bleeding. Pain 2 hours after liver biopsy should alert the clinician to the possibility of procedure-related bleeding.

Predicting bleeding after liver biopsy using comprehensive clinical and laboratory investigations:...

Background Liver biopsy carries a small risk of bleeding complications. No validated clinical or laboratory tool helps predict liver biopsy–related bleeding. Objectives To determine whether global...

onlinelibrary.wiley.com

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flora peyvandi

@flora_peyvandi

1 year

What’s the #minimal FVIII to prevent bleeding? Which target to point for gene therapy was presented by @pasquale Agosti from # Angelo Bianchi Bonomi Hemophilia and thrombosis centre in Milan #isth2023

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flora peyvandi

@flora_peyvandi

1 year

Coagulopathy of #liver disease—a pathophysiologic rebalance of hemostasis and thrombosis

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flora peyvandi

@flora_peyvandi

1 year

Please come to Room 710a #ISTH2023 . It was not easy to prepare this talk. Non replacement therapy in RBDs. Hope you like it! Bringing data on orphan diseases is always a challenge but hope this help to have the attention of drug companies to rare bleeding disorders

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flora peyvandi

@flora_peyvandi

1 year

Acute obstetric coagulopathy during postpartum hemorrhage is caused by hyperfibrinolysis and dysfibrinogenemia

Acute obstetric coagulopathy during postpartum hemorrhage is caused by hyperfibrinolysis and...

Postpartum hemorrhage (PPH) may be exacerbated by hemostatic impairment. Information about PPH-associated coagulopathy is limited, often resulting in treatment strategies based on data derived from...

www.jthjournal.org

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flora peyvandi

@flora_peyvandi

2 years

Laboratory assays of #VWF activity and use of desmopressin trials in the diagnosis of VWD: a systematic review and meta-analysis | Blood Advances | American Society of Hematology

Laboratory assays of VWF activity and use of desmopressin trials in the diagnosis of VWD: a...

Key Points. The findings of these reviews support VWF multimer analysis or VWF:CB/VWF:Ag to diagnose type 2 VWD.The reviews confirm that desmopressin trial

ashpublications.org

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flora peyvandi

@flora_peyvandi

2 years

Happy World Hemophilia Day!

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flora peyvandi

@flora_peyvandi

1 year

#Taj Mahal. It was built by Mughal Emperor #Shah Jahan in memory of his wife Mumtaz Mahal with construction starting in 1632 AD. If you come to India you have to see it. I was amazed about the mix of Mughal and Persian architecture used in this palace.

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flora peyvandi

@flora_peyvandi

9 months

I wish you all to live strong and you provide strength to others. Happy New Year!

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flora peyvandi

@flora_peyvandi

2 years

Am looking for the best place for our next #BIC2023 meeting. Soon you will get save the date. We are trying to find the best place for the best science. We accept proposals for what you would like to listen and discuss on FVIII, VWF, gene therapy and non replacement therapies

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flora peyvandi

@flora_peyvandi

5 months

Is so sad to announce the loss of Mr #Ambrogio Bianchi Bonomi today who was the Founder of our centre in #Milan in such a celebrative day #April 17th #Hemophilia Day. Thanks Ambro for all you have done and your believe to our scientists working for persons with bleeding disorders

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flora peyvandi

@flora_peyvandi

3 years

#VITT Prof Mannucci explained clearly the mechanism of VITT and recent data on its pathogenesis. He concluded also the literature shows clearly the differences of mRNA and Adenovirus Covid vaccines to develop VITT

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flora peyvandi

@flora_peyvandi

1 year

Factor XII contributes to thrombotic complications and vaso-occlusion in sickle cell disease

Key Points. FXII-mediated activation of the contact pathway is increased in mice and patients with SCD at steady state.FXII contributes to thrombin generat

ashpublications.org

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flora peyvandi

@flora_peyvandi

3 years

#Von Willebrand factor propeptide and pathophysiological mechanisms in European and Iranian patients with type 3 von Willebrand disease enrolled in the 3WINTERS‐IPS study - Pagliari - - Journal of Thrombosis and Haemostasis - Wiley Online Library

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flora peyvandi

@flora_peyvandi

1 year

Last taste of India in #Bangalore before getting back to Milan. I will miss all these.

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flora peyvandi

@flora_peyvandi

2 years

#Gene therapy’s comeback: how scientists are trying to make it #safer

Gene therapy’s comeback: how scientists are trying to make it safer

Nature - Unwanted immune responses threaten to derail some gene therapies. But researchers are seeking ways to combat harmful inflammation.

www.nature.com

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flora peyvandi

@flora_peyvandi

2 years

@ProfMakris @wfhemophilia @PakPMO This is really sad and am pretty sure there are other countries in a same condition. We are talking about gene therapy in hemophilia in Europe and still having hemophilia patients with HCV and HIV in other region of the world is not acceptable

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flora peyvandi

@flora_peyvandi

9 months

On return from ASH San Diego to Denver. Is beautiful to see the extreme change of the weather. Thanks to ASH organisers for the great meeting and see you all in Bangkok for the #ISTH2024

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flora peyvandi

@flora_peyvandi

10 months

Yesterday we had an amazing #ISTH Council meeting which was extremely constructive for the future of our society. I should thank all the council members and the ISTH Staff for their constant support and help to make our society unique and strong for our next generation.

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flora peyvandi

@flora_peyvandi

3 months

Thanks to Chris Ward and the entire team for such a wonderful scientific program #ISTH2024 . We look forward for the ISTH2025 in Washington. Have a safe trip back home and a lovely summer!

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flora peyvandi

@flora_peyvandi

3 years

Multiyear Factor VIII Expression after AAV Gene Transfer for Hemophilia A | NEJM

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flora peyvandi

@flora_peyvandi

2 years

Dr Casari reports novel drugs in #VWD

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flora peyvandi

@flora_peyvandi

3 years

Starting a good day with a good #espresso in Milan

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flora peyvandi

@flora_peyvandi

11 months

Dr Castaman #managment of VWD

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flora peyvandi

@flora_peyvandi

2 years

Life is too short for mediocre ice cream. This sums up the Italian attitude to life!

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flora peyvandi

@flora_peyvandi

1 year

Taj Mahal# sign of love of Shah Jahan in 16th Century. So beautiful at Sunset! So happy to be in #India

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flora peyvandi

@flora_peyvandi

3 years

Tonight another ISTH virtual Council meeting . It was a great chat but now everyone is ready to go to the ISTH 2022 meeting in London. Let’s hope for it

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flora peyvandi

@flora_peyvandi

1 year

Prof Mannucci discussing the importance of the young investigator award of the #Fondazione Bianchi Bonomi during the #BIC2023 meeting in Bari #Italy

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flora peyvandi

@flora_peyvandi

1 year

Colosseum #Rome . Am here for celebrating the 17th April the World hemophilia day with the Italian patients organizations #Fedemo

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flora peyvandi

@flora_peyvandi

3 years

#gene therapy in Haemophilia @patient consideration is discussed at BioMarin meeting in Frankfurt. Thanks Brian for your great presentation. We need to increase the knowledge of our patients and helping them to make the best choice with a free mind

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flora peyvandi

@flora_peyvandi

2 years

Recombinant ADAMTS13 for Hereditary Thrombotic Thrombocytopenic Purpura

Recombinant ADAMTS13 for Hereditary Thrombotic Thrombocytopenic Purpura | NEJM

A 27-year-old patient with a history of severe obstetrical complications and arterial thrombosis received a diagnosis of hereditary thrombotic thrombocytopenic purpura (TTP) due to severe ADAMTS13 ...

www.nejm.org

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flora peyvandi

@flora_peyvandi

11 months

Such a joy to see another young member of the #Angelo Bianchi Bonomi centre finalising her speciality in Internal Medicine. Ada Truma today reports results of data collected of two decades at our centre on risk of cerebral venous thrombosis in women using pills.

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flora peyvandi

@flora_peyvandi

1 year

The #Hawa Mahal is a palace in the city of #Jaipur , India. Built from red and pink sandstone and is on the edge of the City Palace, Jaipur, and extends to the Zenana, or women's chambers. Where women could see and select and no one could see them. I like the idea!

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flora peyvandi

@flora_peyvandi

2 years

Lots of persons with #haemophilia are facing the aging. How we have to follow them , of course including also mild and moderate ones which we do not know a lot. These were the words of Jo. Thanks Jo for reporting this important issue to us. We need more data #EHC

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flora peyvandi

@flora_peyvandi

2 years

FDA approves #once -weekly ALTUVIIIOTM, a #new class of factor VIII therapy for 🥎 #hemophilia A that offers significant bleed protection. I hope this will happen soon also with the #EMA and at ISTH SSC we need to work for an #standardised assay for this novel important treatment

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