Looks like Facebook is starting to roll out its new preventive health tool. Important to note that health info you share on social media platforms is not covered by HIPAA, which means Facebook is not obligated by law to protect it.
All infants born in the US undergo a heel-prick test to be screened for certain diseases.
Some states hold onto those blood samples for years, even decades, and police may now be using them in criminal investigations.
My latest for
@WIRED
:
Facebook of course is promising strict privacy safeguards, but given the platform’s history of data breaches and privacy violations, how can users trust that their data will be protected?
Stanford Medicine officials used an algorithm to determine who should get a Covid vaccine first, and it prioritized some high-ranking doctors who are working from home over medical residents who see patients every day. by
@CarolineYLChen
Today is my first day as a staff writer at
@WIRED
, where I'll be covering all things biotechnology! Feel free to get in touch: emily_mullin
@wired
.com
Genomics company Illumina just unveiled its fastest, most cost-efficient DNA sequencer yet. The machine will deliver a $200 human genome and will be able to generate 20,000 of them a year.
Scientists are growing tiny brains, lungs and guts in the lab to help unravel the mysteries of the coronavirus.🧫
What are these "organoids" telling us so far? "It’s bad news adding to a pile of bad news,” one scientist told me.
Deep brain stimulation has been used for more than 30 years to treat people with Parkinson's disease.
Now, in two small trials in North America, scientists are testing whether similar brain implants can help those with severe drug and alcohol addictions.
Facebook says it won’t share your health info with other users or third parties, including advertisers, but the data will be accessible to some Facebook employees.
Neuralink says first clinical trial application will be for paralyzed people to help them type with a computer.
This has already been done, btw. Average typing speed with a brain-computer interface is about 10 words per minute.
Immunity certificates could promise a return to normalcy for some, but bioethicists and public health experts say there could be major drawbacks.
My latest for
@ozm
:
One key question: how long will the implant last? Musk says they are "very robust."
But they've only been in pigs for a few months. The brain is a harsh environment. Current chips used (Utah arrays) last only a few years, if that.
After a year of freelancing, I’m thrilled to be joining OneZero,
@medium
’s new science and tech pub, as a staff writer focused on biotech. I start next Monday!
This is wild. For the first time, genetically modified viruses (aka bacteriophages) have been used to successfully treat a patient with an antibiotic-resistant infection.
"We're making good progress towards clinical studies," Musk says. Adds that Neuralink received breakthrough device designation from the FDA in July, which provides an expedited pathway for approval.
Some personal news: Next week I’m joining the staff of my hometown newspaper,
@PittsburghPG
, as the resident health reporter!
I’ll be covering the pandemic, medical research and other health news in the region. Very excited to serve the community I grew up in!
Devastated to lose half my colleagues on
@WIRED
's science desk this week due to layoffs. We need more science journalism in the world, not less.
@WIREDScience
won't be the same.
About 80% of donated lungs are unsuitable for transplant. Scientists were looking for a way to keep these damaged organs viable long enough to repair them. So they connected the lungs to pigs — and it worked.
Hackers recently targeted a major DNA database, temporarily exposing more than 1 million user profiles to police without their consent.
I wrote about what these security breaches mean for the future of genetic privacy.
23andMe just won FDA approval for a genetic test for BRCA mutations that doesn't require a doctor's order. It's the first approved direct-to-consumer cancer test in the US.
"White-collar workers can self-isolate only because it’s someone else’s job to deliver all the things they order on demand."
@WillOremus
writes on the future of remote work post-coronavirus:
For the debut of our new science publication, FUTURE HUMAN, I wrote about how gene therapy and gene editing could end inherited deafness. But should we?
The ability to change our DNA raises questions about how far we should go — and at what expense.
Vertex and CRISPR Therapeutics just submitted their gene-editing therapy for sickle cell disease to the FDA for approval.
A decision is expected in 8-12 months. If approved, it would be the first CRISPR treatment on the market.
Deadlines in journalism vs. science:
Me to source: Hi, I'm a reporter working on a story. Are you available sometime in the next few days to chat?
Source, three months later: Hi, I'd love to chat. How about next month?
In
@statnews
, 23andMe CEO Anne Wojcicki says consumers don't need experts to interpret genetic test results, likens them to at-home pregnancy tests. That's a false comparison. Pregnancy tests give you yes/no result. Genetic risk much more complicated.
Incredibly honored to be chosen as an MIT Knight Science Journalism Project Fellow for this fall!
I'll be pursuing a book on the history, science, and ethics behind the effort to use animals as organ donors for people.
We are thrilled to announce our 2021-22 Project Fellows! These 21 distinguished journalists will pursue a diverse range of projects related to science, health, technology, and the environment.
Read about the fellows:
Several children in China who were born deaf can now hear after receiving a gene therapy injection in the ear. Another child treated in the US also has hearing:
Some personal news: I'm being laid off from
@techreview
, so I'm looking for freelance opportunities and/or a full-time gig. Editors, if you're looking to hire a biotech/medicine reporter or commission any stories, please let me know!
How can you get tested for Covid-19? What's being done about the U.S. testing shortage? How does the test work exactly? I put together a practical guide on coronavirus testing for
@elemental
:
2022 was the year base editing, a more precise form of CRISPR, was used on humans for the first time—just six years after its invention. My latest for
@WIRED
:
Excited to share my first podcast, about the Army's effort to create a vaccine that could protect against a wide range of coronaviruses. For
@sciam
, here's my 5-min listen:
@wrair
"This is a restraining order for all genome editors to stay the living daylights away from embryo editing.”
U.K. scientists found that CRISPR caused major unintended edits in human embryos. New from me:
Today was my last day at
@ozm
&
@Medium
. I’m grateful to have had the opportunity to pursue meaningful stories about biotechnology and society over the past two years. Here’s a thread of my favorite ones:
Well, today is my last day at
@techreview
, so I thought I would share some stories I’ve done over the past nearly two years that I’m especially proud of.
Scientists have used CRISPR to fix the Huntington's gene in cells taken from patients.
I recently wrote about the long road to gene-based therapies for Huntington's disease:
After her Nobel win last week, I spoke with Jennifer Doudna about what's next for CRISPR, her scientific work, and her companies. Read the interview at Future Human:
A CRISPR journalist finally learns to CRISPR.
This is a good time to admit that the last biology class I took was in high school.
(Thanks to
@mbloudoff
for taking the photo and to
@evolvwing
for letting all of us amateurs play in his lab.)
Scientists are trying to use CRISPR to snip HIV out of people's cells—and they've treated the first volunteer.
Later this month, the man will go off antiretroviral therapy to see if the one-time infusion cleared the virus from his body.
Scientists are racing to develop rapid coronavirus tests and ones that could be done at home. These new tests could make all the difference in how we track Covid-19 and future disease outbreaks — if we can get them to enough people.
GEDmatch, the DNA database used to arrest the Golden State Killer, requires users to opt in for their profiles to be included in police searches. But the breach overrode those privacy settings, making their profiles available to law enforcement.
Many cancer treatments are toxic to healthy cells. So how to only treat the tumor?
Boston-based Strand Therapeutics had figured out how to "program" mRNA to turn on and off in certain tissues and will test the idea in patients this spring.
Like many people, my mom and I recently discovered a family secret after taking a consumer DNA test.
Last weekend, my mom got to meet the full sister she never knew she had.
Someday I might write about it, but right now it’s not my story to tell.
A Baltimore nursing home has had no coronavirus infections among its residents and employees because its director took immediate action in late February.
For
@WIRED
's 30th birthday this month, I wrote about how gene therapy cures for sickle cell are now just around the corner after decades of trial and error.
#WIRED30
Startup Orchid is offering a spit test for couples to learn their risk of passing on schizophrenia, heart disease and cancer to their kids.
The problem? The genetics behind these conditions are complex and not well understood. My story for
@techreview
:
Hackers didn't stop there. They apparently took user emails they got from GEDmatch to orchestrate another attack — a phishing scam on users of MyHeritage, a consumer genetic testing company.
In Oct. 2020, a sea lion named Cronutt received a transplant of pig brain cells as a last-ditch effort to treat his epilepsy.
More than a year later, Cronutt is seizure-free. Scientists hope to eventually try the therapy in people.
My story for
@NatGeo
:
As of today, Nathan Copeland has had a brain implant that lets him control a computer with his mind for more than 7 years and 3 months—longer than any other human.
For
@WIRED
, I wrote about what the milestone means for the brain-computer interface field.
Audience member at
#CRISPRcon
asks Feng Zhang how soon we’ll edit a human embryo that will result in the birth of a baby. Zhang says, “It is feasible. The technology is there now.”