CreakyJoints.org @CreakyJoints Twitter profile

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CreakyJoints.org

2 years

We can all agree that things have been pretty unpredictable on Twitter lately. Please stay in touch with us here:

On Twitter? Join Us For #CreakyChats – CreakyJoints

#CreakyChats is a vibrant Twitter chat based on topics generated by CreakyJoints, a community of individuals with forms of arthritis & rheumatic disease.

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Last Seen Profiles

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CreakyJoints.org

@CreakyJoints

5 years

@DRxKatherine Why this matters:

A Rheumatologist Explains Why a Hydroxychloroquine Shortage Is Terrifying to Lupus and Rheumatoid...

Learn more about how a hydroxychloroquine shortage due to its use as a COVID-19 treatment could impact patients with lupus and rheumatoid arthritis.

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@CreakyJoints

4 years

This Monday at 7pm ET we are passing the #CreakyChats platform to @Tinu @Imani_Barbarin @DawnMGibson to host a discussion on #BlackLivesMatter / #Disability . Please join us & spread the word. #BlackDisabledLivesMatter #DisabledBlackLivesMatter (image of Tinu, Dawn, and Imani)

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@CreakyJoints

4 years

“I know the #vaccine was not tested in people w/ my health conditions/taking my medications but I wanted to get it partly to show other people like me that you can get it & still be OK.” #lupus #autoimmune #COVID19Vaccine #Pfizervaccine #spoonie #spoonies

I Have Lupus, Take Immunosuppressants, and Just Got the Pfizer COVID-19 Vaccine — Here’s How I’m...

Learn more about what it was like for a health care worker with lupus and on immunosuppressant medication to get the Pfizer COVID-19 vaccine.

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CreakyJoints.org

@CreakyJoints

3 years

This Wednesday at 7 p.m. ET! Join our cohost @EverydayHealth and special guests @LCalabreseDO and @shapedbyscholl for a candid #CreakyChats discussion about chronic disease + wellness. Want an email reminder? Sign up here:

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@CreakyJoints

5 years

Those who stand to be the most impacted by a pandemic are often the last to be heard. Those who are most at risk are often placed at society’s margins. We must come together to highlight and amplify the patient perspective: #spoonie #coronavirus #spoonies

An Open Letter to our Communities about Coronavirus

First society laughed

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@CreakyJoints

3 years

Dear health insurance company that denied my medication, Your doctor does not know my health better than my doctor(s). Your doctor has never seen me or spoken to me. Love, A frustrated patient PS: I want the time from my life that you wasted back.

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@CreakyJoints

5 years

BREAKING: Rumors are circulating about a study that shows people w/ #lupus don’t get #COVID19 . Emerging data via @rheum_covid says otherwise: #HighRiskCovid19 #WithoutMyHCQ cc: @LupusResearch @LupusOrg @LADAOrg @TiffanyAndLupus @morethanmySLE @Lupus_Chat

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CreakyJoints.org

@CreakyJoints

3 years

🚨Attention: Omicron is not mild and COVID is still very much a threat for people with high-risk medical conditions. Here, read immunocompromised patients’ pleas for everyone to stay vigilant. #HighRiskCovid19 #Disability #ImmunoCompromised

Immunocompromised Patients: COVID-19 Public Service Announcement

Learn more about high-risk patients’ concerns about how Omicron and COVID-19 is still impacting their everyday lives.

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@CreakyJoints

9 years

. @billmaher You're a funny guy but for many #chronicpain is real and opioids are needed for quality of life. #Notfunny #chroniclife

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CreakyJoints.org

@CreakyJoints

4 years

Heart or reply if you got at least one shot of the COVID19 vaccine. Bonus points for dropping a selfie:

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@CreakyJoints

5 years

‼️ #Coronavirus Facts‼️ What you need to know if you have #chronicillness or are immune-compromised: #CoronaVirusUpdates #COVID2019 #spoonies #spoonie #chroniclife

Coronavirus Facts: What You Need to Know If You Have Inflammatory Arthritis or Are Immunocompromised

Learn more about what the coronavirus means for those with chronic illness who are immune-compromised, such as many patients with inflammatory arthritis.

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@CreakyJoints

5 years

UPDATE: “I do not feel that it is ethical to deprive #lupus & #rheumatoidarthritis patients of a known organ-saving medication to use an unproven remedy in #COVID19 patients." -Dr. Dore #HighRiskCovid19 #LupusWarriors #coronavirus #Hydroxycloroquine

Denying Prescriptions for Hydroxychloroquine Can Be Life-Threatening for Lupus Patients: Multiple...

Learn why multiple rheumatologists feel strongly that lupus and other rheumatology patients should continue to have access to hydroxychloroquine.

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@CreakyJoints

8 years

b/c sometimes a four letter word sums it up... #ArthritisAwarenessMonth #ArthritisMonth #spoonie #chroniclife #rheum

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@CreakyJoints

4 years

As we wrap up #ArthritisAwarenessMonth remember that our pain, fatigue, & daily struggles continue throughout the year. When we tell you about our disease believe us, don't judge, & know that "fine" doesn't always mean fine. #FineIsNotFine #ArthritisMonth #Spoonie #Spoonies

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CreakyJoints.org

@CreakyJoints

5 years

#Hydroxychloroquine is a safe, effective, & inexpensive treatment for #lupus & #rheumatoidarthritis . If there is a shortage, it will exacerbate health disparities: #HighRiskCovid19 #Plaquenil #coronavirus #COVID19 #chloroquine #COVID ー19

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@CreakyJoints

3 years

In America, January 1st is also known as 🤬deductible reset day. Good luck to everyone that has to re-engage in battle, financial struggle, and countless hours navigating an insurance system created to confuse and reduce access. #NEISvoid #DisabilityTwitter #Spoonie

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CreakyJoints.org

@CreakyJoints

1 year

It’s #WorldArthritisDay ! We asked, and you answered: Here is how our community from all over the world describes arthritis in one word 🌎🗣🤝

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@CreakyJoints

5 years

An open letter to #CoronaKatie and others who dismiss the seriousness of #COVID ー19. We are #HighRiskCovid19 and we matter: #StayHome #spoonies #spoonie #chronicdisease #chroniclife #spooniechat #FlattenTheCurve #StayTheFHome #COVID19 #SocialDistance

An Open Letter to our Communities about Coronavirus

First society laughed

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@CreakyJoints

8 years

#ACR16 tweet up. #squadgoals

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@CreakyJoints

7 years

On this #WorldArthritisDay remember that you are valued and deserve the best treatment and care. Don't let your sparkle dull. #spoonie

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@CreakyJoints

5 years

ACTION ALERT: Widespread hoarding of #hydroxychloroquine ( #plaquenil ) could harm patients who need this medication for chronic #autoimmune diseases like #lupus / #rheumatoidarthritis . #HighRiskCovid19 #coronavirus #COVID19 #spoonie #spoonies

Global Healthy Living Foundation

@GHLForg

5 years

‼️Action Alert: We need to ensure that people with #lupus , #rheumatoidarthritis , and other chronic conditions continue to have access to #hydroxychloroquine : For lupus resources: @LADAOrg , @LupusResearch , @LupusOrg #HighRiskCovid19 #coronavirus

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@CreakyJoints

4 years

57% of #rheumatoidarthritis patients in a #EULAR2020 survey say #RA "totally changed their lives." Do you agree?

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@CreakyJoints

4 years

‼️‼️UPDATE! If you have a form of #autoimmune or inflammatory #arthritis or take immunosuppressant medication, chances are you’ve had questions about getting a COVID-19 vaccine. Here are some answers from a new resource from @ACRheum :

Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the...

Learn more about the guidance for autoimmune and inflammatory arthritis patients for getting a COVID-19 vaccine, including changes to timing of certain immunomodulating medication.

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@CreakyJoints

5 years

Patient leaders started a campaign called #HighRiskCovid19 . Share a photo with that hashtag and tell the world why your visibility matters.

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@CreakyJoints

5 years

Let's give some love and credit to the folks who put together the #HighRiskCovid19 campaign. We are happy to support and uplift your important work: @BeingCharisBlog @mollyschreiber @DawnMGibson @UnxpctdAdvocate @JediMaster941 and YOU.

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CreakyJoints.org

@CreakyJoints

5 years

Checking in on those that are feeling #anxious , isolated, having a flare, and/or need some extra support. Reach out if you need us. #coronavirus #spoonies #spoonie #chronicillness

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CreakyJoints.org

@CreakyJoints

3 years

And this is why we love NY Senator @JamesSkoufis - making sure #immunocompromised and #disabled people are safe. We noticed this exchange on Facebook and needed to highlight how to be an ally. 👏 #HighRiskCovid19

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CreakyJoints.org

@CreakyJoints

3 years

Two artists are shattering old-fashioned beauty standards and perceptions of people with #disabilities . "It is important to celebrate #disability & showcase the multifaceted nature of people with disabilities." - @JosephCoe :

Exhibit of Pin-Ups with Disabilities Redefining Ableist Standards of Beauty

Two local artists shattered ableist beauty standards and perceptions of people with disabilities with pin-up style art.

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@CreakyJoints

4 years

People with #autoimmune and inflammatory diseases and those on immunosuppressive therapies will be evaluated after the vaccines are on the market, which is common practice: #highriskcovid19 #spoonie #spoonies #COVID19 #COVID19Vaccine

Getting a COVID-19 Vaccine: What Immunocompromised and Chronic Illness Patients Need to Know

Learn more about COVID-19 vaccine safety and effectiveness specifically for people with autoimmune and inflammatory conditions.

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@CreakyJoints

3 years

@Imani_Barbarin "They cry. And they tell me they didn’t know. They thought it was a hoax. They thought it was political."

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@CreakyJoints

3 years

Q4: It’s so easy to say “get more sleep” or “eat more veggies” or “walk every day,” but chronic illness/disability can make such habits a challenge. What tips have helped you that could help others who are struggling? #CreakyChats

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CreakyJoints.org

@CreakyJoints

5 years

A5: Society needs to understand that #arthritis is often invisible. People might not "look sick" but can be in a great deal of pain and fatigue. Spread more empathy. #ArthritisAtWork .

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@CreakyJoints

6 years

Good morning #ACR18 . A reminder from our patient community: "I fight for my health every day in ways people don’t understand. I’m not lazy. I’m a warrior!" Thank you for believing us and treating us.

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@CreakyJoints

4 years

Save the date: May 29th at 3pm ET. Join us for an important #Covid19 discussion featuring experts from the CDC and United Rheumatology. Learn more: #HighRiskCovid19 #spoonies #spoonie

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@CreakyJoints

4 years

‼️Webinar on #Racism in #Healthcare . Wednesday, January 27 at 5 PM EST featuring @jrose1282 , @ashira_md , @IreneBlancoMD . Sign up here:

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@CreakyJoints

3 years

A third #CovidVaccine dose is here! The @CDCgov announced that #immunocompromised people who received #Pfizer or #Moderna vaccines can now get an additional third dose to improve their protection against the #coronavirus .

What Immunocompromised People Should Know About the Third COVID-19 Vaccine Dose

Immunocompromised people in the U.S. are now eligible to get a third COVID-19 vaccine dose, in an effort to improve their protection against the coronavirus. Here’s what we know so far about the...

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@CreakyJoints

3 years

As society continues to emerge from this traumatic year and figure out a “new normal,” don’t leave our community behind. For #ArthritisAwarenessMonth , CreakyJoints wants to help you share your voice.

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CreakyJoints.org

@CreakyJoints

4 years

Of the patients surveyed, one-third said that they experience nausea as a methotrexate side effect, generally speaking. As for fatigue, nearly 43 percent of those surveyed said that they experience fatigue as a methotrexate side effect: #EULAR2020

About One-Third of Arthritis Patients Get Nausea and Fatigue Shortly After Weekly Methotrexate...

Learn more about arthritis patients’ experiences with the side effects of nausea and fatigue after taking a weekly methotrexate dose.

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@CreakyJoints

3 years

“We have this thinking that only rheumatologists can practice rheumatology but we need to take responsibility for educating people outside of the field about #RheumaticDiseases to help speed up diagnoses.” — @Reuma_Online_ at #ACR21

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@CreakyJoints

5 years

People with #rheumatoidarthritis are considered in a higher-risk group for potential #COVID19 complications. Follow this guidance to stay safe and healthy through the pandemic: #HighRiskCovid19

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@CreakyJoints

3 years

“I’m finding it hard to deal with unmet expectations I had of life going back to ‘normal,’” one person shared. “It feels like we’re going backwards, and it makes me sad.” #immunocompromised #covid19

Immunocompromised People Are Worried About the Rise of the Delta Variant of COVID-19

Learn how concerned immunocompromised people are about the Delta variant of COVID-19, and if the surge in COVID cases has changed their mitigation efforts or activity choices.

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@CreakyJoints

4 years

Being an ally means taking guidance from the group you aspire to be an ally to. It means listening. It means not making the issue about you. It means not expecting the marginalized group to do your work. It means compensating marginalized people for their efforts. #CreakyChats

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@CreakyJoints

7 years

#Tweetup #selfie crew. #ACR17

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@CreakyJoints

2 years

Next time someone tells you that #fatigue is the same as being #tired you can let them know that fatigue causes an impact on the connections in the brain 🧠 #EULAR2022

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CreakyJoints.org

@CreakyJoints

3 years

For #WorldArthritisDay , we are embracing the idea of “fiercely fighting #arthritis ” as a rallying cry for the global arthritis community. See how @chroniceileen is fighting back and learn how you can print out your own sign:

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CreakyJoints.org

@CreakyJoints

4 years

A big part of why Charles says she posted about her role in the COVID-19 vaccine development is because she firmly believes that it’s important for other people in the community to see young, Black, female scientists.

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@CreakyJoints

3 years

We've heard from a few immunocompromised members of our community that they've been unable to access Evusheld, which can be used to prevent COVID-19 before exposure in immunocompromised individuals. ⁠ ⁠ Have you or someone you love experienced this?⁠ ⁠

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@CreakyJoints

3 years

Let's talk about #disability and #ableism with the amazing @Tinu and @BeingCharisBlog . #CreakyChats July 29th 7pm ET. (Because we still have to talk about this.)

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@CreakyJoints

5 years

The hashtag #HighRiskCovid19 was first created by @mollyschreiber @BeingCharisBlog — both members of CreakyJoints, an organization that supports people with #arthritis — & @DawnMGibson @UnxpctdAdvocate @JediMaster941 @RaBionic

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@CreakyJoints

3 years

People living with chronic diseases should not feel obligated to have to always educate other people about their health issues, yet they often take on that duty or it is thrusted upon them:

People with Invisible Illnesses Are Tired of Explaining Their Conditions — and We Understand Why

“I'm sick of being told to ‘suck it up’ and ‘get over it,’” CreakyJoints member Velma M. says of explaining her invisible illness to the people in her life.

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@CreakyJoints

2 years

Fatigue from inflammatory arthritis can't be cured by just sleeping. #ArthritisAwarenessMonth

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@CreakyJoints

5 years

Woah. We are being seen & heard: Shout out in @forbes about articles written by CJ patient leaders: @DawnMGibson @BeingCharisBlog @UnxpctdAdvocate Let us know if you have a topic you would like us to consider. #coronavirus #COVID19 #spoonie #spoonies

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@CreakyJoints

4 years

“I’ve got no idea how to use pain scales to record different kinds of pain … from different sources … and at different times and intensities.” - @rosieainley : #spoonie #spoonies #ChronicPain

Why Pain Scales Don’t Work When You Have Multiple Types of Chronic Pain: An Arthritis Patient’s...

Learn more about a patient’s perspective on the problem with pain scales when you have multiple types of arthritis and chronic pain.

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@CreakyJoints

7 years

More and more doctors are realizing that patients goals may not be the same as doctor goals. #EULAR2017

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@CreakyJoints

7 years

#ArthritisAwarenessMonth Day 9: It's not all in our head. Our pain and fatigue are real. #arthritis #spoonie #chroniclife

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CreakyJoints.org

@CreakyJoints

3 years

“ #Disabled people aren’t often seen as the decision makers in their care, let alone younger disabled people,” says @derekischmitz , who has cerebral palsy and spondyloarthritis. “But I’m the one living the experience in my body.” #Disability #NEISvoid

The Diagnosis Journey That Turned Derek Into a Disability Advocate

Learn how 17-year-old Derek Schmitz is not only advocating for themself but for other people with disabilities.

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@CreakyJoints

3 years

New research suggests that people may underestimate women’s pain level, while overestimating the pain level of men. Additionally, women’s pain is more likely to be attributed to psychological issues, whereas men’s will be attributed to physical issues.

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@CreakyJoints

3 years

What's the most challenging part of having an invisible illness?⁠ For us, it's being told we "don't look sick." 🙄 #ArthritisAwarenessMonth #WereStillInvisible ⁠

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@CreakyJoints

4 years

‼️‼️Although people who are on immunosuppressant medications were not included in clinical trials for the vaccines, we’re going to have more insights soon: #spoonie #spoonies #autoimmune #COVID19vaccines #Covid19vaccine #Covid19

Researchers Are Starting to Study the COVID-19 Vaccine in Autoimmune and Immunocompromised Patients

Learn more about research studies that are underway to study the efficacy and safety of COVID-19 vaccines in people with autoimmune conditions or taking immunosuppressant medication.

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CreakyJoints.org

@CreakyJoints

7 years

#ArthritisAwarenessMonth Day 2: #Arthritis isn't always visible. Believe us. #ArthritisMonth #Arthritisawareness #spoonie #chroniclife #rheum

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@CreakyJoints

4 years

Q1: Have you ever found yourself saying “I’m fine” or something similar when you are in fact flaring or in pain? If so why? #CreakyChats

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@CreakyJoints

3 years

Vaccines save lives. Join us & @Walgreens for an important #Creakychats discussion with leading healthcare nonprofits that serve people living with compromised immune systems/chronic disease ( @AIDS_United , @COTA_ORG , @LLSusa , @SusanGKomen ). When: Thursday Nov 11th at 7PM ET.

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@CreakyJoints

3 years

“We're tired of well-intentioned, but unsolicited, medical advice; yes, we probably tried that. We're tired of fighting for access to the treatments that we need to function in this world. And we’re tired of the stigma…” @JosephCoe via @EverydayHealth :

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CreakyJoints.org

@CreakyJoints

4 years

In one of the first studies to look at the impact of mRNA COVID-19 vaccines on people with chronic inflammatory diseases, researchers found patients were able to produce a sufficient amount of antibodies with relatively minimal side effects.

How Inflammatory Disease Patients Respond to the COVID-19 Vaccine: What a Small Study Shows

Learn more about the first study to look at the impact of mRNA vaccines on people with chronic inflammatory diseases.

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@CreakyJoints

3 years

Is it over? Join our COVID19 patient leaders and @DawnMGibson 's #SpoonieChat for an important discussion about what "reopening" means for us. 6/2/21 7PM ET

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@CreakyJoints

3 years

What causes pain in #rheumatic diseases? It’s not just inflammation. A small study from #EULAR2021 found that #neuropathic pain was detectable in 94% of patients. This kind of pain causes burning, tingling, numbness; may require treatment in addition to disease-modifying drugs.

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@CreakyJoints

4 years

Have you ever said that you're "fine" because it is just too much to explain? Who would understand that an invisible disease could cause so much pain and fatigue that some might not be able to brush their hair? #FineIsNotFine #ArthritisAwarenessMonth

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@CreakyJoints

1 year

TW: Homophobia. Whenever we share content about the intersections of identity/health we receive hate mail. Our staff is #LGBTQ +, Black, Hispanic, practice different religions, are from across the globe & many live with chronic disease. Not pandering - reality. #Pride2023

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@CreakyJoints

5 years

We are honored to host #SpoonieChat this wed. We will discuss #HighRiskCovid19 and how to build community/support. Thank you @DawnMGibson for your advocacy. #coronavirus #spoonies #spoonie #chroniclife

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@CreakyJoints

8 years

Who can relate? How we feel after a long and productive day. Goodnight #ACR16 #spoonie #rheum #arthritis

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@CreakyJoints

3 years

There is a HUGE difference between being tired and having #arthritis #fatigue . 😴 How do tell the two apart?

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@CreakyJoints

4 years

Rheumatologists and public health experts are urging most autoimmune and immunocompromised patients to get vaccinated as soon as they can. If you have concerns, consider discussing these questions with your doctor for reassuring answers.

7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine

Learn more about questions that can guide shared decision-making about getting the COVID-9 vaccine between rheumatologists and patients.

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@CreakyJoints

3 years

Boom. We see you. @colorofcci on point. #EquityInIBD

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@CreakyJoints

7 years

So much unites us. Excited to work and learn with our friends in Europe. #Arthritis has no borders. #pare2018

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@CreakyJoints

2 years

Get in formation. #CreakyChats : Inflamed by Irresponsible Reporting. Wed, Sept 28th 7pm ET. Cohosted by #SpoonieChat ! Special guests: @DawnMGibson @Tinu @chroniceileen @migrainesallday @zoerothblatt @authorjpsummers .

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@CreakyJoints

4 years

‼️A new study looked at antibody levels in people with inflammatory diseases, such as rheumatoid arthritis and inflammatory bowel disease, after they received the COVID-19 vaccine. Here’s what patients need to know.

Most Inflammatory Disease Patients on Immunosuppressants Mount a Response to the COVID-19 Vaccine

Learn more about a new study that looked at how different immunosuppressants affected antibody levels in response to the COVID-19 vaccine.

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@CreakyJoints

3 years

Listen to disabled people. We don't know where the next area of substantial or high transmission might be. Protect #HighRiskCovid19 people by protecting all people. Please wear your mask in public spaces. Read the @CDCgov guidance here:

Charis Hill | they/them | Free Palestine 🇵🇸

@BeingCharisBlog

3 years

. @CDCgov @CDCDirector , As a vaccinated, immunocompromised #HighRiskCovid19 person, it's not safe for me to even enter a building unless EVERYONE* is required to wear masks there. Please #ReinstateTheMaskMandate for everyone, not just some people. *as able

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@CreakyJoints

6 years

Sjögren’s is a systemic disease. Many patients experience dry eyes and mouth, fatigue & joint pain. #Sj ögrens can also impact: kidneys, the GI system, blood vessels, lungs, the liver, the pancreas, & the central nervous system. via @SjogrensOrg #Arthritis365

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@CreakyJoints

5 years

Patients w/ inflammatory #arthritis are probably more susceptible to the #coronavirus & at higher risk of complications like pneumonia, but “we don’t have data available to quantify this risk at this time”- Dr. Liew. Learn more👉🏽 #COVID19 #COVID2019

Coronavirus Facts: What You Need to Know If You Have Inflammatory Arthritis or Are Immunocompromised

Learn more about what the coronavirus means for those with chronic illness who are immune-compromised, such as many patients with inflammatory arthritis.

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@CreakyJoints

4 years

🍁🍁🍁 We are excited to announce the launch of CreakyJoints Canada. Nous sommes ravis d’annoncer le lancement de CreakyJoints Canada. We are all stronger together. Ensemble, nous sommes tous plus forts. Join:

Home - Creakyjoints Canada - CreakyJoints Canada

Learn more about CreakyJoints Canada, a digital patient community for people with arthritis and musculoskeletal disease.

creakyjoints.ca

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CreakyJoints.org

@CreakyJoints

7 years

A1) One of the biggest issues we hear is understanding the invisible nature of #chronicdiseases like #arthritis . Society needs more understanding and empathy. Just because pain might not be seen doesn't mean its not there. #RheumChat #spoonie #chroniclife

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CreakyJoints.org

@CreakyJoints

4 years

#ArthritisAwarenessMonth Day 2. What is the impact of saying you are "fine" to your doctor/healthcare provider when you are actually not "fine"? #ArthritisMonth #arthritis #rheum

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CreakyJoints.org

@CreakyJoints

5 years

. @SenSchumer please expand the #Medicare Home Infusion benefit to allow #highriskcovid19 patients to remain in their homes and receive necessary medications while the emergency #COVID ー19 declaration is in effect: #coronavirus

The Global Healthy Living Foundation Is Urging Senators to Allow Autoimmune Patients on Medicare to...

Our non-profit organization is urging U.S. senators to vote on this critical Medicare change. Here’s what you need to know.

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@CreakyJoints

2 years

It is important to talk about monkey pox in a way that doesn’t stigmatize folks. We recently published an article about what immunocompromised folks should know. Thanks @BeingCharisBlog for this tweet and starting #HighRiskMPX . Article:

What Is Monkeypox, and How Worried Should You Be?

Here's what you should know about the monkeypox outbreak — and how to protect yourself if you're immunocompromised.

creakyjoints.org

Charis Hill | they/them | Free Palestine 🇵🇸

@BeingCharisBlog

2 years

MPX is already & will continue affecting immunocompromised & immunosuppressed people harshly. We need to really, really talk about #HighRiskMPX folks before the messaging that happened in early SARS2 repeats itself as severely this time on top of the stigma affecting queer men.

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@CreakyJoints

2 years

Q1: Not every disability is visible - but if you look close enough, the signs are there. What are some of the signs of your arthritis that others can try and pay attention to? #CreakyChats

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CreakyJoints.org

@CreakyJoints

4 years

“The bottom line: I trust science,” she says. “Being on a biologic medication that’s helped to control my symptoms for almost 20 years has taught me this. I did my research." #Spoonie #Spoonies #COVID19 #COVID19Vaccine #COVID19Vaccination #COVID19Vaccines

I Have Rheumatoid Arthritis, Take a Biologic, and Just Got the Moderna COVID-19 Vaccine — Here’s...

Learn more about what it was like for a rheumatoid arthritis patient on a biologic to get the Moderna COVID-19 vaccine.

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@CreakyJoints

5 years

Repeat after us: 💪I am strong and supported. 🤲🏽I can get through this. 🦥I am slowly healing. 🗣️I acknowledge my pain. 🦻🏿I listen to my body's needs. #spoonies #spoonie #chroniclife

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CreakyJoints.org

@CreakyJoints

5 years

Because #psoriasis primarily impacts the skin, many people assume it’s merely a cosmetic problem. In reality, psoriasis is an #autoimmune disease: #COVID ー19

Psoriasis and Coronavirus: Understanding Risk, Hand Hygiene, and More

Learn more about how having psoriasis affects your risk for COVID-19, how to protect your hands from irritation from frequent washing, and more.

creakyjoints.org

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CreakyJoints.org

@CreakyJoints

5 years

Let's all send some virtual appreciation to @psufka who is taking personal time to answer questions about #coronavirus and #arthritis . We love our #rheums and appreciate all you are doing to help reduce fear and provide science based info.

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@CreakyJoints

4 years

Q5: How does racial bias in pain management impact care for black people? #CreakyChats

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@CreakyJoints

5 years

Happening right now. Patients leaders share their concerns about opening the economy prematurely. Follow the convo: #OpenAtMyHighRisk

Molly Schreiber

@mollyschreiber

5 years

I live with #RheumatoidArthritis & #Type1Diabetes . There are so many lives, like mine, that need to be considered when we reopen the economy. Let’s make sure it’s done in the safest way possible. #OpenAtMyHighRisk

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@CreakyJoints

1 year

May 20th is World Autoimmune & Autoinflammatory Arthritis Day! Did you know: around 300 million people worldwide are diagnosed with at least one AiArthritis disease? #AiArthritisDay #LearnArthritis @AIArthritisDay

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@CreakyJoints

9 years

Tweet up selfie. Thanks @HurtBlogger for the selfie stick. #ACR15

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@CreakyJoints

4 years

Q1: What is the current and historic connection between the racial justice and disability rights movements? #CreakyChats

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@CreakyJoints

3 years

“ #Omicron is very transmissible & I don’t think we can apply the severity of disease from the general population for people who are on immunomodulatory and immunosuppressive medications,” says Dr. Jean Liew, Assistant Professor of Medicine at @BUMedicine :

Omicron and the Immunocompromised: How to Stay Safe

Learn more about how Omicron is impacting people who are immunocompromised and how to stay protect your health.

creakyjoints.org

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@CreakyJoints

4 years

‼️ #Vaccine Update: We are actively monitoring the @CDCgov / @US_FDA statement and guidance regarding the J&J vaccine. We understand that this can be very stressful. We encourage you to discuss your concerns with your healthcare providers. Please continue following us for updates.

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CreakyJoints.org

@CreakyJoints

4 years

"The global pandemic is testing our relationships like never before. ... We’re losing friends left and right because we have new non-negotiable standards when it comes to dealing with the #COVID19 pandemic." Read: #spoonie #spoonies #chroniclife

How COVID-19 Is Ruining Some of My Friendships (and Why I Don’t Really Care)

Learn more about how a patient with rheumatoid arthritis and chronic illness feels differences over COVID-19 are affecting her relationships.

creakyjoints.org

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@CreakyJoints

4 years

"Because the truth is ‘too much’ for people". During #arthritis awareness month we heard hundreds of reasons why people say that they are "fine" even when they aren't. Here are 20 that made us stop and think: #spoonie #spoonies #fineisnotfine

‘I’m Fine’: Why Do Chronic Illness Patients Keep Saying This When They Are Actually Anything But?

Learn more about why people with chronic illness say they feel fine when they have pain, fatigue, and other challenging aspects of living with arthritis.

creakyjoints.org

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CreakyJoints.org

@CreakyJoints

2 years

It’s almost here! Are you feeling the excitement of ACR Eve?? 😊 The 2022 American College of Rheumatology Convergence begins tomorrow and we are so excited, we can hardly sleep! Follow along with #ACR22 and we'll be posting the latest conference updates here

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