Donald Kovach @Woden Twitter profile

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Donald Kovach

21 days

I'm putting this back up front. I want to make sure Ulysses has the best summer we can give him.

Let's Make This Summer The Best Ever, organized by Donald Kovach

Ulysses Kovach, son of Donald and Vesna Kovach, has had a rough transition into adu… Donald Kovach needs your support for Let's Make This Summer The Best Ever

www.gofundme.com

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Donald Kovach

@Woden

2 years

!!!!!! Our transplant doctor just came by. They're almost ready to begin. It could happen any minute now. !!!!!!!!

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Donald Kovach

@Woden

2 years

Cried some on the way to the hospital. Can't let the boy see me cry. He had a rough day today. We're past the point of no return here as the chemo destroys his bone marrow, and he's feeling it. Next week he starts the radiation.

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Donald Kovach

@Woden

2 years

The boy is wiped out. Next dose of radiation is in a few hours. The wife is in pain from the injections getting her ready to be the stem cell donor. All I can do is be here for them.

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Donald Kovach

@Woden

2 years

Day 12 post stem cell transplant The transplant doc came by and was very happy with Ulysses' blood counts. He said that we could be going home as early as next week. This is fantastic news.

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Donald Kovach

@Woden

9 months

We have a beautiful boy who is just now coming out of his 4 year battle with leukemia, and we, as his aged parents, have tried to do the best we can to get him thorough this have almost, but not quite gotten him to the finish line. We're losing his home. I'm so sorry.

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Donald Kovach

@Woden

2 years

It's happening NOW!!!!!!

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Donald Kovach

@Woden

2 years

More good news for the transplant! The wife's test results came in right where they needed to be. All the pain from the medication has made plenty of cells for the boy's transplant. Tomorrow morning they'll collect the cells for processing. Thursday is a go!

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Donald Kovach

@Woden

2 years

Day 13 post stem cell transplant. Ulysses' counts continue to improve. He hasn't had a fever in days now, and he's starting to have an appetite again. This is all good.

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Donald Kovach

@Woden

2 years

The boy did well over the weekend. There is a good chance that we'll be going home on Wednesday.

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Donald Kovach

@Woden

1 year

Yes I get it -- people are tired of covid. I am too. The thing is that it keeps getting easier to infect and more resistant to vaccines. When I go shopping now, I'm about the only one still wearing a mask.

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Donald Kovach

@Woden

2 years

The boy is well enough to go home today. We should be able to leave in a few hours. I'm happy, but I don't feel it. I'm too tired.

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Donald Kovach

@Woden

2 years

Post transplant Day 1: Ulysses is doing really well. His energy is good, and he's busy turning the known universe into paper clips (it's a game). He doesn't have much of an appetite, but some of that is the feeding tube and the overnight nutrition.

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Donald Kovach

@Woden

1 year

Our little boy is hanging in there. They switched him to a new med to fight the nausea. Eating and drinking is still hard for him. I love him so much. I made him a pitcher of sweet tea for him to drink this morning.

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Donald Kovach

@Woden

2 years

The boy is doing better today. He's joking with the nurses.

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Donald Kovach

@Woden

6 months

I am 60 years old today.

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Donald Kovach

@Woden

2 years

The boy is starting to feel the effects of the radiation -- some pain, some nausea. They're doing what they can for him.

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Donald Kovach

@Woden

2 years

We're home.

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Donald Kovach

@Woden

9 months

Some of the boys test results have come back, and they look good. There's no sign of leukemia in his bone marrow. The more accurate tests take a little longer, but this is still really good news.

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Donald Kovach

@Woden

4 months

The initial test results from the boy's bone marrow biopsy don't show any sign of leukemia. They said that it looks like his marrow is finally starting to recover. They said that his anemia was most likely from the virus he contracted. He's much better now.

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Donald Kovach

@Woden

2 years

I am barely holding it together. I honestly don't know if I'm going to make it this time.

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Donald Kovach

@Woden

1 year

Yesterday was better for the boy. He didn't throw up and managed to have some chicken soup and then some noodles with cottage cheese. He drank most of the pitcher of sweet tea that I made for him. Last night he said that he feels better.

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Donald Kovach

@Woden

2 years

Talked to my father today. Told him the boy was doing well. Went into some detail about what's been going on. It was a bit much for him. It's been a bit much for us as well. Good news is that the boy is doing well. Next few months will tell.

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Donald Kovach

@Woden

2 years

Tomorrow is my birthday. Before the pandemic and my son's leukemia, I would go thrift store hopping. One year I found a fantastic rotisserie for cooking meats. I think I'll do a leg of lamb on it tomorrow.

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Donald Kovach

@Woden

1 year

The doctor called to let us know that they don't actually need another bone marrow biopsy at this time. Tomorrow's procedure will just be to remove the boy's central line port. He's been wanting to get that thing out for weeks now.

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Donald Kovach

@Woden

2 years

The stem cell harvest did not go well. They're going to try again tomorrow. I was afraid this would happen.

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Donald Kovach

@Woden

2 years

Ulysses' numbers are really taking off. It looks like engraftment has occurred. He's not going to need any more platelets or blood. I'm hoping that this means that we can all come home some time next week.

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Donald Kovach

@Woden

2 years

Good night. It's been a heck of a day. Tomorrow will be day +1 for Ulysses as he begins to heal.

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Donald Kovach

@Woden

1 year

So, the final test came back from Ulysses' bone marrow biopsy. They found some leukemia cells. They want to do another bone marrow biopsy now. We are devastated.

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Donald Kovach

@Woden

9 months

Tomorrow at 7am we have to be at the children's hospital for the boy's bone marrow biopsy. After all of the tests are complete we're hoping to find out that his leukemia is finally gone.

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Donald Kovach

@Woden

1 year

The boy is headed for the ER. He's dehydrated and hasn't eaten for almost 2 days. I can't go. I'm exhausted. His mother is taking him. I'm sorry.

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Donald Kovach

@Woden

1 year

Yesterday was the boy's birthday. We played the card game Muffin Time and had cake. My wife made this wonderful cake inspired by the video game, Portal.

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Donald Kovach

@Woden

2 years

We finally got the call. They were able to harvest enough stem cells today from my wife. The needed to install a central line to get a good flow. She'll probably have to stay overnight at the main hospital if no one is around to take the line out.

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Donald Kovach

@Woden

1 year

Almost done at the hospital. Blood work is all good. The doctor is happy with his progress.

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Donald Kovach

@Woden

2 years

100 days. That's how many days we have to be extra careful with our boy. Any little thing can have a huge impact on his health. We're looking at the end of February before we can start to relax just a little. We might have to isolate, but at least we're at home.

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Donald Kovach

@Woden

2 years

To all those people who replied to my last tweet, but don't know what's going on -- my son's leukemia returned. We're back in the hospital. We've been dealing with this for 3 years now, and we thought we were in the clear. We're now looking at months long hospital stays.

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Donald Kovach

@Woden

2 years

They just came by on rounds. Everything looks good for tonight. The stem cells should be ready for transplant around 19:00. They'll update us if there is any change.

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Donald Kovach

@Woden

2 years

Stem cell transplant Day +7. The boy has a fever. They said this would happen. They said it always happens. So now they're taking blood for cultures.

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Donald Kovach

@Woden

1 year

The boy says his appetite is starting to come back. He finished the cheeseburger I made for him. That's all I have to say about that.

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Donald Kovach

@Woden

2 years

In about an hour we head down for the boy's first dose of radiation.

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Donald Kovach

@Woden

2 years

Good night, all. Tomorrow is the big day for Ulysses. I hope to see you all in the morning. I'll let you know when the transplant takes place.

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Donald Kovach

@Woden

3 years

I am an introvert. A person of few words. It hurts when I see that I am not a part of your circle.

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Donald Kovach

@Woden

2 years

The boy had a rough night. They finally had to give him some morphine. I need to get back to the hospital.

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Donald Kovach

@Woden

2 years

The boy is well. Checkup was all good. I just can't do this anymore. That long ride into town, sitting in that little room, the traffic, the long ride back home -- I'm dying inside.

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Donald Kovach

@Woden

1 year

The boy is not doing well. There isn't really anything we can do for now. All we can do is hope that his immune system recovers and that he's able to keep his food down.

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Donald Kovach

@Woden

2 years

Came home to water the plants and let the kitty know that we haven't forgotten her. Feels weird to be home alone. It could be some weeks before the boy can come home. Some snow on the sidewalk, but not enough to clear. Going to have a few beers. Later.

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Donald Kovach

@Woden

2 years

Holding off on the likes and follow backs. Don't want to end up in twitter jail again. I'll do what I can. Just want you all to know how much I love what you've done for my boy. Thank you.

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Donald Kovach

@Woden

2 years

Tomorrow the boy has a bone marrow biopsy. They need to make sure the leukemia is gone. I don't know what else they test for. It should be all new bone marrow in there.

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Donald Kovach

@Woden

2 years

The boy doesn't feel well this morning. They gave him some extra anti nausea meds right before the next round of chemo. It's going to really hard from now on.

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Donald Kovach

@Woden

2 years

the boy is feeling better this evening. He's joking with the nurses now.

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Donald Kovach

@Woden

4 months

They're sending us a lease to sign. We'll be able to move in on the 8th of March.

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Donald Kovach

@Woden

2 years

About an hour left to go before the boy is done.

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Donald Kovach

@Woden

1 year

One year ago today Ulysses rang the bell. 6 months later his leukemia returned. Hopefully it's gone for good this time.

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Donald Kovach

@Woden

1 year

The boy's appetite was better today. I'm glad.

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Donald Kovach

@Woden

1 year

The boy gained a little weight this week. We're just hoping his immune system starts to kick in now.

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Donald Kovach

@Woden

8 months

At the last minute the company decided to let us sign a lease. They want 8,000 up front. Thanks to all of the wonderful donations we can cover that. If it goes through, we can stay until March. Fingers crossed.

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Donald Kovach

@Woden

2 years

The stem cell harvest failed. They'll try again tomorrow. If it's successful the transplant will take place on Friday.

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Donald Kovach

@Woden

1 year

The boy is in the OR having his central line removed. It's been about 5 months now that he's had it in.

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Donald Kovach

@Woden

11 months

I NEED a warm, quiet, summer. I NEED it. We're facing an appointment soon where we may or may not find out if our son is cured from his leukemia. FUCK

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Donald Kovach

@Woden

9 months

Good news! We were granted a stay by the bankruptcy court. The sheriff has been notified and just needs to receive the paper work tomorrow. So that's taken care of. We have some breathing room to figure out our next move. I want to thank you all for your help.

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Donald Kovach

@Woden

2 years

One moment it was the height of summer, and the next we were informed that our son's leukemia had come back. This time it's harder to treat. Whatever it takes might not be enough. We wait. And we wait. There's no room for hope here. He has a good chance.

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Donald Kovach

@Woden

2 years

First round of radiation is done

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Donald Kovach

@Woden

2 years

The boy slept last night. I'm glad he got some relief.

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Donald Kovach

@Woden

11 months

I love our boy so much. I just can't imagine life without him. I need for his next appointment to be good news.

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Donald Kovach

@Woden

2 years

The stem cells are almost all in. The nurse is going to flush in the rest.

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Donald Kovach

@Woden

2 years

The boy felt well enough to have some pumpkin pie. He said it was good.

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Donald Kovach

@Woden

2 years

Last night we watched our favorite Christmas movie -- Die Hard. It was the first time for the boy. He loved it. We had a great time. Yippee Ki Yay!

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Donald Kovach

@Woden

1 year

They're home and safe. The boy needed IV fluids. We have our regular appointment this afternoon. I'll be going to that one. The roads are probably going to be bad.

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Donald Kovach

@Woden

2 years

Day 3 of radiation. The morning session has just started. He has one more this afternoon, and then tomorrow is transplant day. His mother is having her stem cells harvested right now. Hopefully they can get all that they need in just one session.

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Donald Kovach

@Woden

2 years

Ulysses is watching a show on his computer. I just heard him chuckle. Music to my ears.

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Donald Kovach

@Woden

1 year

Getting ready to leave for the hospital. Bone marrow biopsy today, so it's going to be a long day. If everything goes well, we won't have to go back for a couple of weeks.

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Donald Kovach

@Woden

2 years

We managed to get the tree up on Christmas eve. I didn't know if we were going to this year, but the boy wanted it, so we made it happen. I'm glad. I even managed to dig out some of the Christmas mugs and plates. It'll be February at least before the tree comes down.

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Donald Kovach

@Woden

1 year

We're home from the hospital. The boy is well. Bone marrow biopsy coming up in a couple of weeks.

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Donald Kovach

@Woden

1 year

Yesterday went well. No more daily flushing of the line. No more wrapping just to take a shower. This is a big step.

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Donald Kovach

@Woden

1 year

Bone marrow biopsy coming up in a few days. They want to see what's going on in there. The boy is feeling a little better today, but he still doesn't have much of an appetite.

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Donald Kovach

@Woden

2 years

40 minutes to the next radiation. The boy is nauseous and vomited. The nurse just gave him something for that, but he still needs to get in the shower to wash off the chemo.

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Donald Kovach

@Woden

2 years

Back at the hospital

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Donald Kovach

@Woden

25 days

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Donald Kovach

@Woden

1 year

We are doing everything we can to keep our boy alive. The long and the short of that is that it may not be enough. Why is this something that a parent has to face?

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Donald Kovach

@Woden

1 year

I can't sleep without an audiobook drowning out my thoughts. I wish I could sleep in silence, but I can't. Every damn thing I did wrong in life keeps me awake at night in endless replay. It didn't used to be like this. Stressed out I guess.

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Donald Kovach

@Woden

1 month

Ulysses was awarded $1,350 for his education.

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Donald Kovach

@Woden

1 year

So, the boy is doing well enough that he can stop taking some of his medications. His weight is good now, so that's no longer a concern. No more weekly blood tests either. In fact they don't want to see him again until August. That's the good news.

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Donald Kovach

@Woden

2 years

Tired. Good to be alone. It helps. Here for me? just me. doesn't matter. it's all about the boy.

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Donald Kovach

@Woden

2 years

Transplant day +5. Last night was uneventful. Ulysses slept well.

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Donald Kovach

@Woden

1 year

The boy continues to gain weight. I want to believe that he's going to be OK. Next bone marrow biopsy should tell us more, or not.

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Donald Kovach

@Woden

1 year

Leaving soon for the hospital. We're going straight to the surgical floor, but it's still going to be a couple of hours before the boy gets his port removed. It's OK. Taking it out is going to make him feel so much better.

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Donald Kovach

@Woden

1 year

I spent all day hanging out with the boy. It was a good day. We didn't talk all that much. It was more about just being together. I love him so much.

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Donald Kovach

@Woden

6 months

Ulysses scored so high on his test that someone from the local college called to talk to him about it.

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Donald Kovach

@Woden

1 year

The doc wants to do another bone marrow biopsy on the boy, he's also concerned about the low t-cell count. It's going to be some time before we know more, and until then there isn't much to do but wait.

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Donald Kovach

@Woden

1 year

The boy's x-ray was clean, so his cough is just a winter cough. He's still losing weight, though, and that's the biggest concern. No suggestions please: we have a team of medical professionals for that.

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Donald Kovach

@Woden

2 years

Poor boy just got an NG tube

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Donald Kovach

@Woden

2 years

Made a cheeseburger for the boy. He ate the whole thing. We're supposed to keep track of things like that.

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Donald Kovach

@Woden

2 years

I'm going to celebrate this little bit of good news with some herbal tea. I like it cold. It's an IPA. So it's not really tea.

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Donald Kovach

@Woden

2 years

Back at the hospital. The boy has a rash on both hands. They don't think it's graft versus host disease, but they're keeping an eye on it. Maybe on Tuesday we'll find out when we can go home.

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Donald Kovach

@Woden

1 year

Less stressed now that the boy is feeling a little better. Did some writing this morning.

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Donald Kovach

@Woden

2 years

If all goes according to plan, Thursday will be transplant day.

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Donald Kovach

@Woden

2 years

We're back in the room. It went well this morning. I'm hoping that this evening goes as well.

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Donald Kovach

@Woden

1 year

Can't go back upstairs until I finish weeping. Have to be strong for the family.

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Donald Kovach

@Woden

10 months

I'm so tired. I've been close to tears the past few days. I'm trying, though. I wrote. I picked grapes. I'm making dinner. I wish I could just unplug for just a little while.

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Donald Kovach

@Woden

1 year

The boy has several appointments tomorrow. We still don't know if he's cured of his leukemia. He takes his meds, and we continue to isolate for now. It's been almost 4 years since he was first diagnosed.

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Donald Kovach

@Woden

10 months

We're home now from the hospital. There's no sign of leukemia in his blood. That's the good news. His immune system is still pretty week, so we're going to have to continue to isolate. Next month they're going to do a bone marrow biopsy.

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