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MaryAnneWilson Profile
MaryAnneWilson

@WilsonMaryAnne1

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465
Following
144
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Mom/activist/proud SUNY Cortland Red Dragon Stage 4 colon cancer Stubborn AF I don't answer DMs

Manlius, NY
Joined January 2017
Don't wanna be here? Send us removal request.
@WilsonMaryAnne1
MaryAnneWilson
2 years
CT scan tomorrow - I am expecting some not good news but would appreciate any prayers or positive thoughts anyone is willing to send my way @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
5 months
My young cousin died from metastatic breast cancer today, leaving behind her husband, 7 year old, and 3 year old twins. #fuckcancer If you could hold some space for Jenny’s family tonight 💔
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@WilsonMaryAnne1
MaryAnneWilson
2 months
Hi everyone, this is Mary Anne's daughter Callie. Per her wishes, I wanted to share with all of Mom's "carcinomies" that she ended her earthly journey in the early hours of this morning. After five years of near constant treatments, surgeries, and doctor's visits, she is (1/1)
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Could use some positive energy and prayers. I have had a reaction to chemo the last two infusions...they are trying a desensitization procedure tomorrow. Really hope this works 🙏 @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 months
finally able to rest. Thank you to all of you for being her support system and sounding board through all of this. ❤️ @ThanksCancer (2/2)
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Treatment day. Breaks my heart to hear some of the other patients struggle during treatment...I just struggle to stay awake. We shall see how I am feeling later though.... @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Being admitted. Praying that I am out in time to get to DC for my daughter's graduation on Friday 🙏
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@WilsonMaryAnne1
MaryAnneWilson
9 months
Scan results not good. Current chemo is not working so will be headed to MSK to see what tricks they have up their sleeve @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Well it appears current chemo regimen is no longer effective so getting a second opinion before deciding what's next...sigh... @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Friends, thank you soooo much for all the positive energy and prayers! I got through chemo with no reaction! Gonna have to spend a lot more time at infusion from now on but am really happy I tolerated it. You all are the best 💙
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Back at the ER ....potential bowel blockage...fourth time in nine months 😭 At least my cancer card got me a little private room rather than being sent into the big holding area with lots of people @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Maybe I shouldn't tweet when it's chemo week and I am feeling awful - I am a little edgy 🙃
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@WilsonMaryAnne1
MaryAnneWilson
7 months
Thinking of @CancerCanuck today...hope he is comfortable and surrounded with the love that he always puts out there
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@WilsonMaryAnne1
MaryAnneWilson
2 years
At a larger family reunion type gathering this weekend...several days of events with 50+ people. Everyone knows my situation. One person has asked how I am doing 🤷‍♀️ @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Never knew there were people that are on chemotherapy indefinitely until it happened to me @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Feeling stressed....cancer is spreading so starting FOLFOX today. No Avastin due to my struggle with intestinal obstructions....and found out last week I am ineligible for clinical trials for the same reason.
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Thank you, all you amazing people who took time to,send good wishes, prayers, positive energy, etc. I am so very grateful! Scan results are fairly stable..spot they were watching on my spleen is no longer visualized. CEA is still up a bit so we shall see @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Round 52....ding ding
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Thanks for all of your prayers and positive energy, friends! I am being discharged from the hospital this morning and am headed to DC for my daughter's graduation tomorrow. I am truly grateful ❤️
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@WilsonMaryAnne1
MaryAnneWilson
1 year
When you're scheduled for an MRI the day after chemo when you still feel like 💩 and you tell them you have a chemo pump and they say no problem and then you show up and it's a problem @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Posted on FB that I have late stage CRC asking all my friends to get screened. Someone responded that it is a horrific death 🤦‍♀️😱. Seriously? @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Like it's not bad enough that we have cancer and have to deal with the aftermath of chemo/radiation/surgeries....now we have all these other related ailments. Cancer is the gift that keeps on giving. @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Post CT scan treat (pumpkin Oreo) @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Remember what it felt like just feeling "normal"? Yeah, me neither @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Spent nearly four hours at the oncology center today only to be told no chemo because Xray indicated I could be developing an intestinal obstruction. Trust me...I have had so many I know this wasn't one. Sigh.... @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Note to cancer muggles: Rather than commenting on our appearance (yes, that includes your "positive" comments), ask us how we feel. How we look and how we feel do not coincide. Thank you @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Started FOLFOX yesterday....they gave me a reduced dose of Oxceliplatin because I already have neuropathy. Now I am concerned because I have no cold sensitivity. Cancer is when you worry because you don't have enough side effects @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
So had chemo today and very few things sound appetizing. Add to that I have diabetes so have to watch the sugar when carbs are what I crave...add to that I was in hospital for half of August with small bowel blockage so there is another list of foods I can't eat.. @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
1 year
A glimmer of hope, carcinomies. At my insistence onc added Avastin back to my infusion. CEA did not rise for first time in a while. We gotta self advocate! (It had been d/c due to all my intestinal obstructions) Modified my diet and haven't had one in 3+ mo. Pushed hard and won!
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@ThanksCancer I am here for you. I would like to bring dinner Wednesday or Thursday...which is better? I love you. Mind you, I never heard these things but that's what I would have liked to hear.
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@WilsonMaryAnne1
MaryAnneWilson
2 years
When someone you would never expect reaches out to check on you 💕 @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Never sure how to respond when someone tells me how good I look when the chemo has done a number on the inside. Thank you? Well actually I feel like crap?
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@WilsonMaryAnne1
MaryAnneWilson
7 months
Just made a donation in memory of Jason Menuge @CancerCanuck to Colorectal Cancer Canada @coloncanada Can some of my carcinomies join me?
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Well this has been an interesting start to the week...yesterday my onc had a discussion with me re treatment side effects and wanting to keep me alive as long as possible while balancing side effects...that's a surreal convo...but a necessary one
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Back in the hospital with another bowel obstruction...thanks to the bowel surgeries and scar tissue as a result ... @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Happy New Year carcinomies!
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Seen in the parking lot at the oncology center. @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
10 months
FB friend posts starting her B-day month and 2024 with pink eye sucks. I wanted to respond...you know what really sucks? Starting year 5 of chemo...and I have carcinomies who have it worse than me @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
6 months
Hope all my carcinomies are having a good day
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@WilsonMaryAnne1
MaryAnneWilson
9 months
I need this tee shirt! @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
1 year
When your husband/caregiver is sick and feels guilty because he's used to taking care of you 😔 @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Anybody else find brushing your teeth is akin to setting your month ablaze? @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
1 year
@SenTuberville Maybe you should stop holding up confirmation of military positions for starters....if you are that concerned...which I doubt
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@WilsonMaryAnne1
MaryAnneWilson
10 months
Some of us may occasionally post something disparaging about muggles....maybe we are having a bad day of chemo side effects, perhaps we are coming to term with our own mortality, or it was just a moment...this may be the only safe place we can unload and then move on.
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@WilsonMaryAnne1
MaryAnneWilson
1 year
A well intentioned friend messaged me today and said that cancer keeps trying to make my life miserable but I keep showing it otherwise.....nope, it makes my life miserable a lot. Happy to have good days to but.... @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Mom: Do it now. Do it while you can. Me: I know,Mom. I have a terminal illness so I have to do it now. Mom: Well everyone should do it now because you just never know. Me: Um....just no @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
10 months
@JonClar58684712 @ThanksCancer I think there is such a thing as cancer guilt...feeling bad if you have it better than some people, feeling bad if you feel a bit jealous if you aren't doing as well as others....I like to hear the good news. It lends some balance to the bad news.
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Awesome weekend camping trip. Visited Watkins Glen and Letchworth State Park. Nice diversion before chemo on Tuesday @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@pschownir @ThanksCancer Sending prayers and positive thoughts for no further spread 🙏
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@WilsonMaryAnne1
MaryAnneWilson
2 years
I like to share my story as it wasn't the typical one. I dutifully had my colonoscopies and was given the all clear...however, my colon was a real loop-the-loop roller coaster so they didn't get all the way around. They did a virtual imaging in 2017 - no concern
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@mikejwhelan Thanks for the update. We are all pulling for the guy who never gives up!
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@katievscancer @ThanksCancer I hate when I run into someone I haven't seen in a while and they say " You're STILL on chemo?! I thought you were done". If only.....sigh
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@mikejwhelan Your granddaughter doesn't deserve to be the target of that crap...I am so sorry.
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Very thankful for you @ThanksCancer for connecting this community. I am forever grateful ❤...plus your levity has been awesome, i.e. you are funny af
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@WilsonMaryAnne1
MaryAnneWilson
2 years
If my story could cause others to push harder to get a more complete colonscopy or push to find a reason why you are suddenly anemic, maybe they won't have to go through this shit show
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@WilsonMaryAnne1
MaryAnneWilson
7 years
@realDonaldTrump So says the worst POTUS in history BY FAR
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@StandByYourMann @ThanksCancer Thank you Jennifer 💙. Chemo every other week so I am down and out for 3-4 days but am pretty good outside of that for the most part. No chemo last week so this has been a good week 😊
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@WilsonMaryAnne1
MaryAnneWilson
7 months
If you are looking for a way to honor @CancerCanuck this organization meant so much to him....
@coloncanada
Colorectal Cancer Canada
7 months
@WilsonMaryAnne1 @CancerCanuck Thank you all for this. We will use the funds to promote our early onset program Never too Young #N2Y in honour of all Jason (CC) and his family have done to promote awareness and support for young patients.
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@WilsonMaryAnne1
MaryAnneWilson
2 years
So my daughter was telling me about seeing a small child running through the airport yelling "I'm having a potty emergency!" with Mom close behind. And that sums up life with colorectal cancer #CRC
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Survivors night at the ballpark!
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@CancerCanuck @ThanksCancer I always wanted to share my story so if even one person can avoid what I have gone through it is so worth it. Always put my name on it..started tweeting for political reasons and felt using my real name is more credible...and real
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@EllieKdsp I see someone who is beautiful and a warrior ❤️
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@WilsonMaryAnne1
MaryAnneWilson
10 months
We know it is a lack of understanding and would never wish anyone have to get what we are going through. But to be able to have that eye roll moment in our community validates our hurt. Thank you for offering me grace when I am struggling. @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@ThanksCancer That we go through treatment , are "cured" and life is normal again
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@WilsonMaryAnne1
MaryAnneWilson
7 years
@realDonaldTrump It will be a GREAT day when you are ushered out of the White House
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@iantheCROAT @ThanksCancer That if in their eyes you "look great " you must be doing well...
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@WilsonMaryAnne1
MaryAnneWilson
2 years
I made the dumb mistake of saying out loud.."I don't have any appointments this week!" Off to the podiatrist tomorrow for infected toe ..yippee @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@mikejwhelan Never give up, Michael! Your posse is here sending prayers and positive energy
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@ThanksCancer That because we look "great" that doesn't mean we feel great or are doing well. So when you ghost us because you have decided we are fine......thanks for nothing....literally
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@WilsonMaryAnne1
MaryAnneWilson
6 years
@davidhogg111 @HenryIsOurDog Hitting the streets in central NY tomorrow, letting the WHite House Occupant know he is NOT welcome here!
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@WilsonMaryAnne1
MaryAnneWilson
2 years
And these are the things that get me through. Love my family practice NP. @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
I am a 65 year old wife and mother of three living with Stage 4 cancer. I have this crazy idea that cancer patients shouldn't have to worry how to pay for life saving treatment. I am the #radicalleft #VoteBlueIn2022
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@WilsonMaryAnne1
MaryAnneWilson
1 year
@ThanksCancer Cancer is not a good thing to do
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@purposedsailor @ThanksCancer @ohyouresotough Sorry I snapped at you...I feel like there's a blowtorch up my butt.
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@WilsonMaryAnne1
MaryAnneWilson
1 year
@SenTuberville @SenSchumer Tuberville do your damn job!
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@WilsonMaryAnne1
MaryAnneWilson
9 months
@ThanksCancer Sheer terror....my heart dropped to my stomach and my mind was racing.
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@WilsonMaryAnne1
MaryAnneWilson
6 years
@realDonaldTrump Gov't shutdown is all on you...turn off Fox news and think for a change
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@WilsonMaryAnne1
MaryAnneWilson
2 years
So what have I done on my no treatment week? Went to the podiatrist for an ingrown toenail Tuesday and now I have a UTI. So much for a week off! @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@nowwritemama @ThanksCancer @mikejwhelan A friend who had cancer and is in remission has been my savior. Reaching out through phone calls and texts, sending me flowers or another treat...she is always there and she gets it.
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@WilsonMaryAnne1
MaryAnneWilson
2 years
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Tired of all the tweets disparaging others for their religion or lack thereof. Believe/don't believe as you see fit but knock off the constant criticism of those who don't think like you!
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@JemmaWishart @ThanksCancer @Lifeiskitsch Amazing how the cancer muggles equate presence of hair with "hey you are better now"
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@ThanksCancer My family ❤
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Nothing like heading out of state for a family party and ending up in the ER and missing the whole thing. Pulling an all nighter here @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Bam! He used a pediatric scope and found the carcinoma right past where the colorectal doc had stopped. Already Stage 3. No rectal bleeding, no polyps...many missed opportunities to diagnose sooner...
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@WilsonMaryAnne1
MaryAnneWilson
2 years
In December 2017 suddenly I am anemic for the first time ever - weird. In spring 2018 I started getting really bad stomach aches - might last 2 hours or 2 days - they start looking for diverticulitis, gall bladder, etc. Sent me to a gastro specialist - he asks to do a colonoscopy
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Someone needs to dump @GregAbbott_TX on the side of the road in below freezing temperatures. What a heartless bastard...in case Texans wonder if he cares about people ..the answer is no
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@ThanksCancer Stay strong is the mantra of the muggles who don't have an effing clue. Then they say "you got this"...yeah I do...I got cancer...that's all I got
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@WilsonMaryAnne1
MaryAnneWilson
1 year
@ThanksCancer To hell with awareness....people are aware...how about cancer support?
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@WilsonMaryAnne1
MaryAnneWilson
1 year
And.....gut punch #2 - there is enough suspected cancer in the small intestines that surgery is also not an option. Praying this chemo works....and being really careful about what I eat hoping they will change their minds if I stay unobstructed
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@WilsonMaryAnne1
MaryAnneWilson
1 year
So has anyone tried drinking Ensure at room temperature? Is it gross? Starting to exhibit some cold intolerance..... @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
11 months
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@Dr_RShatsky @premera @NCCN @ASCO Thank you. As a patient it is really disheartening to know docs like him are working against us. How does he sleep at night? We sure can't
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@WilsonMaryAnne1
MaryAnneWilson
2 years
Praying for Damar Hamlin. Nothing else matters but his well being tonight
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@LibbyMbc I think so many walk away because they don't want to deal with your reality...yet here we are. The people we thought would be there but disappeared...but then there are the beautiful people we never expected to stand up for us. Those are our people, many who are on the same road.
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@WilsonMaryAnne1
MaryAnneWilson
1 year
Started FOLFOX with reduced Oxaliplatin because of my neuropathy. No Avastin due to all the intestinal obstructions I have had. Met with PA yesterday and she increased my Oxy dosage....saw my CEA from yesterday's labwork and number have jumped. Options are limited. @ThanksCancer
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@WilsonMaryAnne1
MaryAnneWilson
2 years
@FairUseLBR @ThanksCancer I am and will be in active treatment until it stops working. Been on chemo so long that most people have stopped asking how I am...including family members 🤷‍♀️
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@WilsonMaryAnne1
MaryAnneWilson
1 year
@CalltoActivism She is tone deaf in more ways than one
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