Steven Gallagher @SteveGMedia Twitter profile

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Steven Gallagher

9 months

I plan to be around for a while, but living with a terminal disease, I have made sure I am leaving behind items for my daughter to remember me. Going through old photos makes me smile, cry and wish I could turn the clock back, even briefly. #EndALS

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Steven Gallagher

@SteveGMedia

2 years

As my voice becomes more slurred from the effects of ALS, I realize my eight-year-old daughter is my best translator. At drive-thrus or with family and friends, I can count on her to give me an assist. Beyond grateful for this sweet and kind girl. #ENDALS

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Steven Gallagher

@SteveGMedia

1 year

PROUD DAD ALERT: My daughter’s lemonade stand & cookie sale raised a remarkable $361.65 for @ALSCanada ’s Walk to End ALS. We are proud of her for many reasons, but being kind is at the top of the list. She has now raised $3,400 for the walk ❤️

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Steven Gallagher

@SteveGMedia

1 year

ALS may have robbed me of my speech, but it will not silence me or others in our fight for change. I appreciate you taking a minute to hear my words. #EndALS

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Steven Gallagher

@SteveGMedia

1 year

Four years ago this week, a neurologist diagnosed me with ALS. Of all the things the disease has robbed me of, it will never take away my hope. Hope for more time with family and friends. Hope for advances in care. Hope for a future without ALS. Never lose hope ❤️

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Steven Gallagher

@SteveGMedia

2 years

ALS attacks all muscles, including atrophy of the tongue. Speech becomes hard, then impossible. It’s hard for me to talk now. Glad I did “voice banking” 2 yrs ago and recorded video messages for family. It may rob us of our speech but it won’t silence our advocacy to #EndALS .

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Steven Gallagher

@SteveGMedia

1 year

As my hands get weaker from ALS, it’s harder to use the text-to-speech app on my phone. So today I had a training session at home using eye-gaze technology with the awesome AAC team @HotelDieuShaver . I was able to work in a few Go Bills and some dad jokes. Remarkable technology.

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Steven Gallagher

@SteveGMedia

2 years

The most unnerving aspect of ALS is choking — while eating/drinking or even from air. You feel like you’re suffocating. Today’s choking episode lasted too long & scared the hell out of me. A harsh reminder of how vulnerable we are. A reminder of the need for action to end ALS.

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Steven Gallagher

@SteveGMedia

2 years

My level of care for ALS has shifted to palliative. It means more supports at home from an incredible team of healthcare providers. It’s about getting the most out of each day. Which is something I plan to do — seizing each day & fighting for a future without ALS. #NeverGiveUp

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Steven Gallagher

@SteveGMedia

1 year

I try to stay positive, but sometimes the weight of ALS is just too much to bear. The uncertainty of your future, the weakening of your body, the toll on your family, the wish you could do all the things you did before. It’s hard to escape the cruelty of this disease. #EndALS

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Steven Gallagher

@SteveGMedia

3 months

Memories popping up on my phone are one of the hardest parts of living with ALS. This photo of my daughter and me on a return flight from California in 2016 hit me hard today. My immense joy quickly turned to tears, wishing I could make more memories like this. #EndALS

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Steven Gallagher

@SteveGMedia

2 years

Three years ago this week, a doctor told me I had ALS. Still here. Still travelling. Still laughing. Still fighting. Still holding onto hope. Seize. The. Day ❤️

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Steven Gallagher

@SteveGMedia

3 months

My hairdresser has visited my home for the past year and a half. But being off my breathing machine for a typical cut is now too difficult. So my 10-year-old daughter has taken over using a razor. The first cut is impressive. A future hairstylist or whatever else she wants to be.

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Steven Gallagher

@SteveGMedia

2 years

Found this note on one of my breathing machines, courtesy of my caring daughter. I get that it can be easy to dwell on the imperfections in life. But take the time to cherish the perfect moments, too. #EndALS And, yes, a cat is always watching over me in our home.

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Steven Gallagher

@SteveGMedia

2 years

As a dad, you dream of witnessing special moments in your children’s lives, like walking down the aisle. This photo of my daughter as a flower girl at a wedding three years ago popped up as a memory today. A memory etched on my mind. A memory ALS cannot take from me. #CarpeDiem

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Steven Gallagher

@SteveGMedia

2 months

A dance-off broke out in my home tonight with my personal support workers when I played Earth Wind & Fire. I still have limited use of my arms and can confirm I am still a terrible dancer. But you couldn't wipe the smile off my face. Not today, ALS. Definitely not today.

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Steven Gallagher

@SteveGMedia

9 months

My oxygen levels have been in the 98 to 99 percent range the past few days, when they are typically in the 93 to 95 range. In my fifth year in this fight, I think it's fair to say, Take that ALS! #NeverGiveUp #EndALS

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Steven Gallagher

@SteveGMedia

2 years

ALS has hit my lungs hard. I use a ventilator daily so I can breathe easily. Harsh reality: there’s not a lot they can do for the lungs. Sharing this to show we do NOT have luxury of time or government red tape when it comes to accessing new meds. Details:

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Steven Gallagher

@SteveGMedia

2 years

Some days my hope fades living with ALS. You’re constantly reminded of the beast wreaking havoc on your body. The weakness, the falls, the struggle to breathe. But then I’m inspired after seeing the bravery of fellow ALS warriors, and it restores my hope. Thank you ❤️ #EndALS

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Steven Gallagher

@SteveGMedia

2 years

Thanks to @AirCanada staff for getting me safely from @TorontoPearson to enjoy this idyllic setting in New Brunswick. The blows ALS has dealt to my body make travel harder, but they made it seem easy, treating my daughter and me so kindly. Much respect ❤️

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Steven Gallagher

@SteveGMedia

2 months

Five years ago today I was diagnosed with ALS. The darkest of days eventually turned to light thanks to the support of many people. I'm grateful to be here. I'm also thinking of ALS warriors who are no longer with us, and whose memories we honour by fighting for advances in care.

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Steven Gallagher

@SteveGMedia

6 months

BIG thank you to the @BuffaloBills for the beautiful note of encouragement, cool gear, including a helmet and jersey signed by two of my favourite players, and an invitation to training camp. My heart is filled with gratitude. #BillsMafia #EndALS

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Steven Gallagher

@SteveGMedia

3 years

Tonight my eight-year-old daughter told me, “If I had a genie, my first wish would be a cure for ALS.” Never stop believing, especially in genies.

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Steven Gallagher

@SteveGMedia

3 years

Tonight at bedtime my daughter asked if she could hold my “bad hand” to make it feel better, and then told me she loves me more than I’ll ever know. She fell asleep holding my hand and I’m OK if she doesn’t let go. Not today, ALS. Not today.

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Steven Gallagher

@SteveGMedia

2 years

My boy Max parks himself beside me for every edaravone IV treatment for ALS. Every treatment. Pets are the best, especially this dude.

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Steven Gallagher

@SteveGMedia

8 months

My family is making beautiful memories at @WaltDisneyWorld this week. Though I am too weak to travel, they surprised me by bringing along a much younger version of me - aka Steve on a stick. I can confirm the Disney resort pool is splendid. Seize the day.

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Steven Gallagher

@SteveGMedia

2 years

@GregGowe I am heartbroken for you and your family. Your strength and advocacy were incredibly inspiring. Thank you for sharing your journey and leaving such a remarkable legacy.

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Steven Gallagher

@SteveGMedia

11 months

Today is my daughter's last volleyball game with her school team. My health makes it too hard for me to attend, so her mom will capture her playing on video. I'm grateful for that, but it's moments like this that I really curse ALS. The most important moments that I miss so much.

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Steven Gallagher

@SteveGMedia

1 year

Having a terminal disease, I focus on living each day to the fullest, not dying. I was living large this week when I surprised my daughter with a @WaltDisneyWorld vacation. Her immense excitement and joy wiped out any difficulties I had that day. #CarpeDiem #EndALS

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Steven Gallagher

@SteveGMedia

2 years

One day we’ll talk about survivors of ALS the same way we do about survivors of other diseases. One day. Hope. Never lose hope.

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Steven Gallagher

@SteveGMedia

1 year

Immense gratitude today following the delivery of my power wheelchair. The manufacturer, knowing I’m a @BuffaloBills fan, gave me a blue back and red rims to match the team’s colours. Not today, ALS. Definitely not today. #BillsMafia

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Steven Gallagher

@SteveGMedia

3 years

Recently saw another mention of ALS being incurable. Let me set the record straight on that: ALS is NOT incurable, it IS underfunded. I repeat. ALS is NOT incurable, it IS underfunded.

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Steven Gallagher

@SteveGMedia

2 years

ALS has weakened me in many areas, but my dad jokes are as strong as ever. Today my nurse asked me how I was sleeping. I responded, “With my eyes closed.” I laughed hard; she politely smiled.

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Steven Gallagher

@SteveGMedia

3 years

With every breath I take (even the ones where I need an assist from a machine) I will cherish the people closest to me and continue the fight for advances in treatment options for ALS. It is a relentless disease. But so too are the people battling it. We won’t back down. #EndALS

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Steven Gallagher

@SteveGMedia

3 years

ALS has impacted my speech, but it will never silence me. It has impacted my mobility, but I keep moving forward. Focus on what you can do, not what you can’t. Oh, and I’d love your support in the Walk to End ALS, or join the Superheroes team 😊Details ▶️

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Steven Gallagher

@SteveGMedia

4 years

To the people flouting COVID-19 restrictions (which are designed to keep us safe), remember this: Should you or anyone around you ever require hospital care for COVID, you will receive the best care by the people you are contradicting. This is a pandemic, not a conspiracy.

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Steven Gallagher

@SteveGMedia

2 years

Sometimes, in my mind, I’m still the physically active guy I always was. Then my body, weakened by ALS, reminds me otherwise. I’m OK to allow my mind to wander to days gone by … and to imagine a day when people with ALS live long and well, thanks to advances in care. #Hope

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Steven Gallagher

@SteveGMedia

11 months

ALS took away my ability to do the job I loved in hospital communications. But now that I have perfected the use of my eye-gaze computer, I discovered a new profession: Eye Gaze Deejay. Opening song at all events: Eye of the Tiger.

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Steven Gallagher

@SteveGMedia

3 years

Two years ago, a neurologist told me I had ALS. For all the blows the disease has landed to my body, it can never weaken my desire to fight, to advocate, to hope … and, most importantly, to live. #EndALS

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Steven Gallagher

@SteveGMedia

1 year

It’s a jarring contrast: Watching your body be ravaged by ALS as you scroll through old pictures of when you were healthy … and acting silly at the end of a 10 km run. ALS has taken away so much, but it will never rob me of cherished memories. Seize. The. Day. #EndALS

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Steven Gallagher

@SteveGMedia

1 year

Tonight my nine-year-old daughter told me that ALS stands for Awesome Leadership Superhero. I like it! Out of the mouth of babes.

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Steven Gallagher

@SteveGMedia

2 years

I recently started having a personal support worker visit my home to provide care and keep me safe. It’s another marker in my ALS journey … and a reminder of the important role PSWs have in healthcare. They should be treated as such.

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Steven Gallagher

@SteveGMedia

3 years

So often ALS is defined by losses: loss of mobility, speech, lung function. Mark my words, one day it will be defined by gains: advances in research, improved access to therapies & development of new treatments allowing people to live full lives. One day. #NeverGiveUp

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Steven Gallagher

@SteveGMedia

2 years

Savouring each moment as my daughter decorated our Christmas tree tonight. Witnessing the magic of this season through the eyes of a child is truly heartwarming. Not today, ALS. Definitely not today.

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Steven Gallagher

@SteveGMedia

5 years

Dear ALS: You landed a pretty good initial blow to my right hand and arm, but look out because I’m punching back really, really hard. 🥊 Nearly 8 months since diagnosis and 15 months since onset of symptoms and I’m fighting hard. I will never give up. Never. Got that?

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Steven Gallagher

@SteveGMedia

3 years

I woke up to this note from my daughter. It’s going to be a good day. No, a great day. ❤️ #NoALS

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Steven Gallagher

@SteveGMedia

2 years

This is a sign of great progress — not my unkempt beard … but the arrival of a new medication (Albrioza) to slow the progression of ALS. It’s only the third medication approved in the history of the disease, with more to come ‼️ It gives us hope. #EndALS

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Steven Gallagher

@SteveGMedia

3 years

ALS was hard today. Really [insert expletive here] hard.

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Steven Gallagher

@SteveGMedia

2 years

Dear Ottawa, how about redirecting the funding you were providing Hockey Canada to organizations like ALS Canada that receive NO core government funding for vital research? Hockey will survive without it … all we want is a chance to survive. Sincerely, A guy who wants to live

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Steven Gallagher

@SteveGMedia

3 years

Someone told me that I got dealt a bad hand in life with my ALS diagnosis. I replied that they should see all of the incredible hands I’ve been dealt in my 49 years. Absolutely incredible. You never know what’s on the other side. Enjoy each day ❤️

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Steven Gallagher

@SteveGMedia

4 years

OPEN LETTER to those in power: I wake up every night struggling to breathe from ALS, I’m winded walking up stairs, my muscles cramp a lot. Others are in worse shape and dying every day. NOT looking for pity. I AM looking for action on getting ALS patients more treatment options.

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Steven Gallagher

@SteveGMedia

10 months

A special shoutout to the @HospiceNiagara Palliative Care Outreach Team for supporting me and my family in the comfort of my home. Their collaboration with other members of my healthcare team ensures I am receiving the high-quality care I need at home. I'm beyond grateful.

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Steven Gallagher

@SteveGMedia

2 years

My medical cart holds machines that clear my lungs to prevent infection and help me to breathe. The recent addition of a poster from my daughter is good medicine for my soul and warms my heart. Combined, they give me the strength I need to keep fighting to #EndALS .

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Steven Gallagher

@SteveGMedia

4 years

Today my seven-year-old saw me struggling to tie my shoes. So she rushed over to help tie the knot. Grateful to have the best people in my life ❤️ Not today, ALS. Not today.

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Steven Gallagher

@SteveGMedia

11 months

My daughter brought home from school a beautifully written story about discovering a genie in a bottle in our home. Her wish for the genie? A cure for ALS 💜 She doesn’t just have the storytelling talents of her mother, she is also incredibly compassionate. #EndALS

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Steven Gallagher

@SteveGMedia

1 year

My family appreciates all of the beautiful comments on this tweet. Some people have asked about the link to my daughter’s “Walking for my Dad” fundraising page. Here it is:

2024 Walk to End ALS - Ontario

The ALS Canada Walk to End ALS is the largest volunteer-supported fundraiser for the ALS Society of Canada. It is a fun, family-friendly way to celebrate hope for a future without ALS, honour those...

alscanadawalktoendals.als.ca

Steven Gallagher

@SteveGMedia

1 year

PROUD DAD ALERT: My daughter’s lemonade stand & cookie sale raised a remarkable $361.65 for @ALSCanada ’s Walk to End ALS. We are proud of her for many reasons, but being kind is at the top of the list. She has now raised $3,400 for the walk ❤️

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Steven Gallagher

@SteveGMedia

1 year

For #ALSAwarenessMonth : ALS robs you of speech. After diagnosis 4 years ago, I banked my voice through @HotelDieuShaver ’s Communication Clinic, recording hundreds of phrases. One day I will use eye-gaze technology to talk & it will sound like me, especially for my dad jokes.

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Steven Gallagher

@SteveGMedia

4 years

Why do we celebrate the alarming and skyrocketing home prices in Niagara? Housing (owning and renting) is becoming unaffordable for so many in Niagara. Prices are not reflective of our local economy, but are driven by outside influences. Why celebrate that? It’s sad.

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Steven Gallagher

@SteveGMedia

4 years

Hey @ChrisSnowCGY this isn’t quite a #TrickShotForSnowy , but it’s the best I got. 16 months post-diagnosis, and I won’t back down! No tricks here, just a guy who will never give up. Never. #EndALS

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Steven Gallagher

@SteveGMedia

1 month

Haircut number 2 courtesy of my daughter, with an assist from her mom and my PSW, is in the books. Do I look nervous? Not today, ALS. Definitely not today.

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Steven Gallagher

@SteveGMedia

8 months

You know, there are days when I don't feel like I have much fight left in me. Then there are days like today that I feel rejuvenated, and I'm ready for another 12 rounds. Not today, ALS. Yes, definitely not today.

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Steven Gallagher

@SteveGMedia

9 months

🧵ALS is a brutal disease. That's why it's so appalling and unacceptable many Ontario residents living with it receive inadequate care. But the Ontario government can change that by making the @alscanada Ontario Provincial ALS Program part of its 2024 budget. 1/2

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Steven Gallagher

@SteveGMedia

4 years

My response to the breathing issues I’ve been experiencing. Not today, ALS. Definitely not today. By the way, the CCR tunes and festive socks provide a big boost!

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Steven Gallagher

@SteveGMedia

3 years

One of the hardest parts of ALS for me is struggling to talk. Stating the obvious, but I love to talk 😊Sometimes I don’t have enough air to do so or my speech is slurred. Mark my words, if* ALS robs me of that, my voice will always be heard in other ways — dad jokes and all.

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Steven Gallagher

@SteveGMedia

5 months

For ALS Awareness Month, I am sharing a few videos to give you a glimpse of life with the disease. This one is about how the amazing team @HotelDieuShaver gave me a voice after ALS robbed me of my speech. #EndALS

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Steven Gallagher

@SteveGMedia

4 years

When I was diagnosed with ALS 17 months ago, a family member asked if I had my affairs in order. Rest assured, they are👇🏼 1️⃣ Seizing each day with loved ones. 2️⃣ Fighting for more treatment options/cure. 3️⃣ Never giving up. Never 4️⃣ Living a long time. I think that covers it.

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Steven Gallagher

@SteveGMedia

1 year

Travel has been my passion in life and I’m blessed to have visited many countries. ALS makes travel harder now, so my nine-year-old daughter got me this atlas allowing me to explore places I have not experienced. How incredibly thoughtful. Not today, ALS. Definitely not today.

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Steven Gallagher

@SteveGMedia

10 months

The spouse of a friend who recently died from ALS checked in with me to see how I was doing. I was in awe she would do that in her time of grief. Further evidence of the kindness and resiliency of people impacted by this disease. A truly incredible community.

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Steven Gallagher

@SteveGMedia

2 years

A super addition to my IV pole, courtesy of my equally super and kind daughter ❤️

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Steven Gallagher

@SteveGMedia

3 years

I try to stay positive … but I gotta say, the level at which ALS sucks is immeasurable.

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Steven Gallagher

@SteveGMedia

3 years

I couldn’t read a bedtime story to my daughter because I was struggling to breathe. That I have to waste precious breath/energy pleading with @GovCanHealth to give a priority review to a new ALS treatment is mind-boggling. We’re doing our part to fight this beast. Help us out.

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Steven Gallagher

@SteveGMedia

7 months

A glimpse of life with ALS: I like to joke I smoke a hookah, but it's a nebulizer treatment that turns liquid medicine into mist, breaking up secretions in my lungs. Mucus buildup can lead to pneumonia, which could be fatal for me. My breathing is laboured but worth the effort.

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Steven Gallagher

@SteveGMedia

1 year

A day in the life for ALS Awareness Month: ALS progresses differently in everyone. I was very active the first 2 years post diagnosis. But my mobility has weakened a lot in past year. Life expectancy is 2-5 years. Sadly, some die within months while others live a lot longer. ⬇️

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Steven Gallagher

@SteveGMedia

1 year

Thank you @SylviaJonesMPP , @ONThealth and the Ontario government for becoming the first in Canada to provide coverage for a new ALS treatment. Another important step in ending ALS. Read the @610CKTB story ⬇️

NewsTalk 610 CKTB | Niagara’s NewsTalk Leader - iHeartRadio

Listen to Niagara's News at Newstalk 610 CKTB! Stay connected with live radio, local & national news, podcasts, contests, weather updates & events.

www.610cktb.com

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Steven Gallagher

@SteveGMedia

6 months

My daughter, her mom and friends are walking to end ALS on June 1. And our daughter is nearing her fundraising goal. I would appreciate you please consider supporting Olivia's efforts or even joining the team. All of the details are in this link: #EndALS

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Steven Gallagher

@SteveGMedia

2 months

Just recovered from my first bout of pneumonia living with ALS. Numerous virtual chats with my palliative care doctor and even an X ray at home allowed me to weather the storm without a hospital visit. It reminded me of the many positives in Ontario's healthcare system. #Grateful

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Steven Gallagher

@SteveGMedia

4 years

My daughter saw me struggling to hold my pen while writing a message and offered to take over to make “daddy’s hand feel better.” Dear ALS: I have a loving and supportive army of people and the kindest six-year-old in my corner to knock you out. 🥊 🥊 Got that?

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Steven Gallagher

@SteveGMedia

3 years

Had my first training session today using eye gaze technology that would allow me to use my eyes to write and speak if ALS ever robs me of my voice. Needless to say, I worked in one “Go Bills” in the session.

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Steven Gallagher

@SteveGMedia

3 years

After I was diagnosed with ALS, I vowed to be an advocate. Today I’m grateful for the chance to speak with provincial gov’t officials about expediting the process for patients to receive new therapies. Honoured to lend my voice to amazing efforts of so many others. It’s our time.

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Steven Gallagher

@SteveGMedia

5 months

Hope. Never lose hope. #ENDALS

Western University researchers unlock potential 'cure' for ALS

New research out of London, Ont.'s Western University is shedding light on a potential cure for ALS, with the goal of conducting human clinical trials within the next five years.

london.ctvnews.ca

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Steven Gallagher

@SteveGMedia

4 years

I just missed the par putt, but what matters most is that I played 18 holes nearly 14 months after my ALS diagnosis and two years since the onset of symptoms. Thankful for the moment, thankful for the tap-in bogey putt ... and for many more rounds ahead.

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Steven Gallagher

@SteveGMedia

1 year

I got emotional today when my daughter was called onto the stage at @ALSCanada ’s Walk to End ALS as she was recognized for raising more than $4,200. Tears of joy and pride. Another beautiful walk saw Team Hope raise more than $17,300. Thank you to everyone who supported us. ❤️

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Steven Gallagher

@SteveGMedia

3 years

(1/2) I can accept the harsh realities of ALS, like tomorrow having a feeding tube inserted in my stomach. What I cannot accept is the lack of action to expedite the process to get new treatments into patients. @GovCanHealth , please make #AMX0035 a priority review.

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Steven Gallagher

@SteveGMedia

4 months

As ALS Awareness Month comes to a close, I’m sharing another video to give you a glimpse of life with the disease. This one is a shootout to the Ontario Ventilator Equipment Pool, which helps keep me alive. The vital service is run by Kingston Health Sciences Centre.

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Steven Gallagher

@SteveGMedia

1 year

Sharing my experiences for ALS Awareness Month: Breathing is hard, so I wear a BiPap machine when I’m sleeping and a lot during the day. My daughter calls it my Darth Vader machine. To which I reply, “Olivia, I am your father.” The BiPap keeps me alive. A lifesaver. #EndALS

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Steven Gallagher

@SteveGMedia

1 year

1/2 My speech is so slurred from ALS, I figured my broadcast interviews for ALS awareness were over. But @WSendzik reached out with a unique idea: He would interview me on @610CKTB Radio using a text-to-speech app on my phone. The interview aired today👇🏻

Listen to Podcasts and Audio bites on Newstalk 610 CKTB Niagara | Audio | iHeartRadio

Discover engaging Audio content on Newstalk 610 CKTB. Listen to Podcasts by your favorite hosts and catch up with a variety of Audio bites & Sound bites

www.610cktb.com

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Steven Gallagher

@SteveGMedia

1 year

It’s hard learning of the passing of another ALS warrior. An inspiring man who often reached out to me with kind messages, communicating with just his eyes while in the late stages of ALS. The picture of resiliency. My heart breaks for his family. Soar high with the angels.

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Steven Gallagher

@SteveGMedia

1 year

Today, my PSW took the time during a respite visit to braid my daughter’s hair. A small act of kindness that put a big smile on my daughter’s face. A reminder that compassionate care can take many different forms. #Grateful

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Steven Gallagher

@SteveGMedia

2 years

This is a daily routine in my home. A dad should be the one helping his daughter tie her shoes. But it is our reality. And it’s another reminder of how grateful I am to have so much support in my ALS journey. Please, always know how much that means to me. And thank you ❤️

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Steven Gallagher

@SteveGMedia

4 years

I have many reminders of what ALS is doing to my body. But I am also reminded each day of the love surrounding me & my family, and the encouragement of the resilient ALS community. To people like @bsw5020 @ChrisSnowCGY @kelsieswrites & others, thank you for inspiring me to fight.

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Steven Gallagher

@SteveGMedia

2 years

Got to test drive my future new ride today, which, appropriately enough for me, featured a golf ball on the joystick. My ride will be Buffalo Bills blue. Another stage in the ALS journey and another reminder of how grateful I am to have so many supports around me. #NeverGiveUp

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Steven Gallagher

@SteveGMedia

3 years

BIG thanks to Levi Wallace & Harrison Phillips of @BuffaloBills for making a surprise appearance on my regular Zoom chat with good buddies. We talked #BillsMafia , best wings in Buffalo & ALS advocacy. I’m still smiling & grateful to the Bills and my friends for making it happen.

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Steven Gallagher

@SteveGMedia

8 months

As much as ALS has ravaged my body, including my hands, I realized today when signing a document that I still have better hand writing than a doctor. Apologies to my physician friends @JenFM7 , @NHBugBusterDoc , @RyanDSa1 for the lame dad joke 🙂

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Steven Gallagher

@SteveGMedia

3 years

I became a dad later in life, just shy of turning 42, and the past 7 years have been the best. I have so many reasons to fight to live, but watching my daughter grow up, live her life and paint more birdhouses is at the top of the list. She inspires me to never give up. #EndALS

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Steven Gallagher

@SteveGMedia

4 years

I will spend the next few weeks recording phrases into this device as part of a voice-banking system that can be used if ALS robs me of my voice. One phrase I will be repeating a lot is: “We need timely and affordable access to new therapies and clinical trials. Now.”

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Steven Gallagher

@SteveGMedia

3 years

I’m saddened health issues have impacted my ability to work. It’s an honour to be on the @niagarahealth team. Each day I’m inspired by our teams’ dedication & compassion. I’m grateful for their support of me in my job & healthcare journey, and I pray we cure ALS so I can return.

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Steven Gallagher

@SteveGMedia

3 years

I try not to complain, because I have so much to be grateful for, but the way ALS ravages your body is tough. Really tough. The days I get knocked down make me more determined to fight for change and advances in care. #NeverGiveUp

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Steven Gallagher

@SteveGMedia

4 years

The moment the COVID vaccine arrived @niagarahealth ’s St. Catharines Site. An important step forward in a long and challenging journey. Kudos to my talented colleague @an_meco for the video.

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Steven Gallagher

@SteveGMedia

3 years

I got my first cane. A stark reminder of the blows ALS has landed to my body over the past few months. But … also a new weapon in my fight. By the way, my daughter wants to decorate my cane. So, if you see a guy with princess stickers on his cane, look out! #NeverGiveUp

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Steven Gallagher

@SteveGMedia

24 days

I reflect on living with ALS for five years in @ALSCanada 's new blog series. Life has changed a lot since diagnosis, but I'm still here making memories and raising awareness. I appreciate the support and words of encouragement on this platform 💜

ALS Canada

@ALSCanada

24 days

“Despite the toll ALS has taken on me and my family, my heart is filled with gratitude.” @SteveGMedia reflects on five years living with ALS with two words in mind: gratitude and hope in ALS Canada's new blog series, In my words. Read the full blog, visit .

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