#ExposeMEnow
This is my story. I am just one of the millions of people who have had their lives destroyed due to the post viral scandal.
Please help us
#ExposeMENow
So far we've tolerated
#ToryElectionFraud
and
the
#UNCRPD
report that found this
#Tory
government guilty of grave and systematic violations of disabled peoples civil and human rights and now their taking us into
#WW3
. Anyone ready to revolt yet?
#NotInMyNameTheresaMay
Imagine going to the hospital for help. Then imagine that a psychiatrist sees you and decides to ignore all of your previous diagnosises...
They then put a DOL on you because they believe that you now don't have the mental capacity to make your own decisions.
Your symptoms 1/3
Interesting fact, I just learnt that in 1936 only one country boycotted Hilters Olympic games, guess who...?
#Russia
. All other countries INCLUDING Britain went AND saluted Hilter.
Seriously what is .
@BorisJohnson
on..? Check out .
@georgegalloway
on .
@talkRADIO
for more...!
#NoMoreBenefitDeaths
Today, I and many other disabled people came together to protest against benefits deaths due to cuts. We protested outside the DWP and then we blocked Victoria Street in central London. Not only were we kettled by the MET we were also threatened with 1/3
Just want to say a massive THANK YOU to everyone who is supporting me & .
@MrTopple
with everything we're going through atm & please wish me luck today at my upright MRI scan, tbh am soooo nervous, only taken 33 years...😲 x x x
But in the next breath, you are now apparently well enough to be consciously faking all your symptoms for attention...???
No other tests are then done...!!!
Welcome to the actual world of people and their families living with
#ME
or myalgic encephalomyelitis in 2024! 3/3
On a lighter note, guess who's birthday it is...🎂 yep, it's the wonderful .
@MrTopple
's birthday today, so please show some 💚 too an amazing man, partner and a seriously underrated fighter of social injustice who I am so proud to call the love of my life...⬇️
Altho this happened Thursday, my lilman aged 12 was on his way home from sch. He found a local lady on the floor having a seizure. He stopped, with other adults walking past, called an ambulance & waited with her. I'm so proud of him, though I'd share! X
#RandomActsOfKindnessDay
I honestly don't know, currently, how to really respond to the amazing comments and messages of support from everyone who has responded to this announcement from Steve regarding my health but I am genuinely touched by every one.
Thank you all!
✌, ♥️ & ✊! x x x
TWITTER 📣
I have an ANNOUNCEMENT
As from now I am formally stopping writing for The Canary
@TheCanaryUK
My podcast
#ToppleUncaged
will continue as will music features.
There is no heavy heart with this - but to understand please read the below ⬇️🔽
#Trump
#TrumpUKvisit
#TrumpProtest
"Walk on, walk on, with hope in your, wait what, hold on a minute...!!!" 😮😂...⬇️
American uses image of Liverpool's Champions League parade to show Trump support
I'm currently on my way to support everyone handling out leaflets in London today for
#LongCovidAwarenessDay
#LongCovid
#ME
Please support us in person or online by sharing the hashtags!!!
✊️
Am having a break from
#Twitter
and social media to fully focus on my health. Regardless of people's own assumptions regarding my health I am too unwell to do anything else. Oh and please contact Steve directly if you want to speak to him, not through me, thanks! ✌
I am so sick & tired of being questioned or blatantly disbelieved about my experiences in life. I constantly have to prove myself over & over again. As if fighting these illnesses wasn't enough, the fight for validation of them & our treatment also never ends!
#ThursdayThoughts
Start to get worse and you begin to seriously deteriorate.
Yet the medical staff continue to just stand and watch.
Why...? Because they now also believe that you are making up your symptoms.
Hmm, so in one breath you can't make your own decisions because of the DOLs... 2/3
Whilst I am genuinely sad over the passing of
#HarryLeslieSmith
I am also genuinely sad that yesterday, today & the next day around 48 people will die, not due to old age, but
#Austerity
, an ideology caused by
#Capitalism
, but sadly non of them will or really had any support...✌
That's another day nearly over and on average 48 people will have passed away because of austerity.
48 people who won't see the sun rise tomorrow.
48 people we owe it too, to fight for justice and an end to the cruel suffering under this government.
#WelfareRebellion
We really need some support with this guy's, even if it's just a re-tweet, any
#Solidarity
shown or support given is seriously appreciated. I really don't want to have give up 17 months worth of treatment. Please help us if you can! Thank you.
✌,💚&✊!
#CanarySmearCampaign
My
#ThursdayThoughts
, this is one of the most truest statements that has ever been made to describe our current global media, the control they have on others and the ignorance that is then displayed!
these deaths. And continuing to let them happen. We managed to remind them that the true criminals were behind them in the houses of parliament. 3/3
#NoMoreBenefitDeaths
From being wrongly sectioned for 9 days, then spending 2 years fighting for the custody of my son. To being told Fibromyalgia & having to crowdfund for private treatment & finally being told
#ME
#EDS
#Epilepsy
. And this is just my story, there are
#MillionsMissing
!
#ExposeMEnow
All this requires further investigation. The injustices done to patients with ME/CFS are compound and multiple. It's not just individual clinicians in the frame, but universities and departments, insurance companies, government and media. Great wrongs have been done.
We need lawyers, we need medical professionals who are finally prepared to stand up to the pyschologistation of
#ME
and
#LC
and we need support from anyone who actually gives a fuck!!! Journalist, celebrities, anyone!!!
#SaveCarlasLife
#MEawarenessHour
DON'T. LOOK. AWAY.
#SaveCarlasLife
#MEAwarenessHour
Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
#ChronicIllness
#Pride
So, in the last week, I thought I'd dye my hair. I managed to mess up my neck in the process, which caused a gastroparesis flare. I was then unable to take my meds, causing both tonic clonic and focal seisures, but hey, I've finally got my PINK hair...🤣😘
We DO NOT want a Long Covid inquiry in 40 yrs time like the blood infection scandal when we had an ME & LC community can act now!
My heart in particular goes out to those 62,000 children with LC.
Whereas diseases can’t really be compared because suffering is suffering!
arrest, myself included. Whilst this was extremely upsetting for us, it was also incredibly exhausting and emotional. The fact that disabled people have had to come out and protest to then be treated as criminals shows exactly how complicit the entire system is in causing 2/3
#AbleismInFourWords
"You don't look sick..."
"It's just growing pains..."
"It's in your head..."
"You should try harder..."
"Stop being a hypochondriac..."
"You should be exercising..."
"Do you eat properly...?"
"Your putting it on..."
"You get support, right...?"
#ME
#EDS
So it finally happened, after 8 years of madness...
@MrTopple
and I are the proud parents of
@TheChronicColab
's brand new website!!!
You know what to do...👇✊️
Ok
#Twitter
so it's only
@MrTopple
's birthday today...!
And before you ask he's 35, again, 😉...plus 2...😂!
Please join me in wishing him a very happy birthday day...! x x x
This CHILD is not much older than my son!
Could you imagine the public outcry if this was in the
#UK
? This is a CHILD protesting the
#SocialCleansing
of his people!
So what is the difference?
No really, why is it such an issue to show any
#Solidarity
or report on
#Palestine
..? ⬇️
We really have gone backwards, it actually feels like we are currently living in a Victorian like Dickens novel. The
#UN
, who have already found the
#Tories
guilty of violations
#UNCRPD
are now coming to the
#UK
to investigate...! WTAF...?
"Please sir, can I have some more..."
If anyone has EVER experienced unemployment whilst having NO money to be able to travel to an interview or the JC to receive ANY support, help or advice or if anyone is still able to show other humans empathy or compassion, could they please sign & share this petition...? ⬇️
I'm absolutely gutted after all our efforts today to
#SaveCarlasLife
&
#ExposeME
, we were locked out of
@TheChronicColab
's account and the live feeds we were putting out stopped working properly.
Thank you to everyone who still supported us online, you guys are legends!!!✊️
Am catching up with comments, messages of love & support & the amazing
#Solidarity
that has been shown to both myself & my 'rock'
@MrTopple
from everyone in the
#ME
#EDS
#Spoonies
&
#Zebra
social media communities & I honestly don't know where I'd be without you all, THANK YOU! X
The two leading UK
#MEcfs
charities are linked to an organisation fomenting the psychologisation of the illness.
As
@h_sharland
finds, from 'disordered eating' to ignoring NICE guidelines BACME are not acting in patient's interests
#SaveCarlasLife
. READ:
Wow! What a week this has been...I just wanted to say a massive THANK YOU to everyone who has had our backs recently, supported us & shown us
#Solidarity
throughout what we've been going through, you really all are absolutely amazing!
✌,💚 &✊! x x x
#SocialistSunday
“If there were this many cats and dogs dying in the streets there would be a public outcry. There has been a process of dehumanisation. Homeless people end up becoming just another statistic.”
No More Deaths On Our Streets Vigil 15/3 6pm Downing Street
MAIMES–More Great News! 40 MPs on board!
MAIMES=Dr Myhill’s Campaign for a Public Inquiry into the Medical Abuse of ME Sufferers
@JanetDaby
MP has joined our valiant band.
Link that shows you how you can help.
#MEcfs
#CFS
#PwME
#PACEtrial
#PACEFraud
Please share this
#Meme
The UK Tories not only committed
#ToryElectionFraud
, they've also been proven to be systematically killing the disabled people of this country.
#ToryCutsKill
To everyone who has played along & tweeted about
#InternationalCatDay2018
keeping it trending, well done you! 👏
Imagine if these people also tweeted about
#SevereMEday
raising awareness of
#MillionsMissing
&
#pwME
who still have no answers or support & often not even believed.
#UNVisit2018
this is what happens when you try to show direct
#SolidarityNotCharity
and organise a-political, on the street, real help for people who have no help from anyone and would literally die and this is the official council response...
WTH 😡
Are you for real
@ManCityCouncil
?
You really want us NOT to give ANYTHING to homeless people.
seriously?
Starve people, don't clothe them or keep them warm?
We are dealing with YOUR problem & failures EVERY day.
Enough is enough!
#NoMoreDeathsOnOurStreets
'Pointlessly cruel', have these MPs not seen the United Nations report that has ALREADY found this current government guilty of grave & systematic violations of disabled people's civil & human rights, thousands of poor & vulnerable have DIED due to this ideology!!!
#UnVisit2018
@ITV
As someone who was wrongly sectioned & spent 2yrs fighting for the custody of my son because I apparently had MH issues to years later discover I was actually living with
#ME
,
#EDS
,
#AAI
,
#CCI
, &
#PoTs
, I'd say
#ME
#PACEtrial
& the
#MillionsMissing
would be a good start...!!!
Thank you to everyone who has helped try to raise awareness of
#SaveCarlasLife
and everything
@TheChronicColab
is doing today and during tonight's
#MEawarenessHour
. We honestly appreciate all the support we can get.
Now, tho I need to try to turn my brain off...✊️
Wow!!! What a week this has been...it really has been overwhelming, exhausting & emotional & I just wanted to say thank you to everybody that was involved.🙏
...This is just the start of what we can do when we actually all work together...!!!
✌,💚&✊! x x x
Straight and we won't forget everyone who has shown us support and solidarity through this
#Classist
establishment led smear campaign on independent journalists, campaigners and truth seekers.✊ x x x
Specifically we need a rebuild of
#Council
owned & maintained
#SocialHousing
homes not
#AffordableHousing
built on the land the old estates were allowed to be left to rot on, as no one can really afford it.
"We pay our
#CouncilTax
where's our council maintained flats...?" ⬇️
Why a
#WelfareRebellion
is needed!
In 2008 our gov bailed the banks, as a result we faced
#Austerity
, this ideology lead to NHS cuts, welfare support cuts, deaths,
#UNCRPD
reports & a recent
#UNVisit2018
!
We have allowed this now for the last decade?
WTAF guy's?
That's why!
Last week, the UN released a damning report against UK austerity politics, calling it a ‘social calamity and an economic disaster, all rolled into one’.
Steve Topple asks whether the government will continue to deny this social reality.
Does anyone else see this outside of the ME community...?
We are literally dying here...!!!
Please see what
@TheChronicColab
are doing to try and
#SaveCarlasLife
and please do something to help us...!!!
This is a massive medical scandal that needs exposing...!!!
Help us...!!!
#PMQs
Seriously, does anyone actually really care about a medical condition that has been proven to be post viral, still being treated as psychomatic in 2024. Because this is the reality, I know because I've experienced this myself, along with millions of others.
#SaveCarlasLife
I honestly don't think people quite realise how real & raw this film actually is to some of us...
We are tho still constantly sold the same narrative over & over that "these poor people are just not trying hard enough..."
Its funny as 1/5
#IDanielBlake
#ENDCHILDFOODPOVERTY
So after the week we've had in the
#ChronicIllness
community I am so happy to see .
@TheCanaryUK
has gone
#Zebra
in
#Solidarity
for the international
#DayOfTheZebra
!!!
This is absolutely amazing along with the support of its fantastic readers & subscribers this should reach..1/2
Watching .
@MrTopple
cringing at himself on
#Sputnik
...hilarious 😂 he hates seeing himself, not sure why?
But in all seriousness a brilliant interview IMO from both .
@georgegalloway
& his better half .
@GayatriGalloway
! 👊 x x x
Gigi’s 17. She has severe ME. She is bedbound, paralyzed, unable to speak, tubefed. The hospital does not believe Gigi has a physical illness; there is talk of psychiatric hospitalization and child protection proceedings if her parents do not comply.
@jenbrea
@TinaRodwell1
@DrEReinhold
@GemmaSPearce
Hey Jen. Steve and I are literally a cab ride away, we are going to contact the family and ask if they want to meet up and discuss this further, if so, this should be enough to be able to get Gigi and her family the right support, hopefully. 🦓✊
#StandUpForGigi
#PMQs
Seriously, does anyone actually really care about a medical condition that has been proven to be post viral, still being treated as psychomatic in 2024. Because this is the reality, I know because I've experienced this myself, along with millions of others.
#SaveCarlasLife
#TORYPOISON
Our government IS the 1st state in the world to be investigated & found guilty of grave & systematic violations of disabled peoples civil & human rights!
"Its NOT fake news, it's REAL news!" .
@paulapeters2
on
@Underground_RT
!
Absolutely brilliant! ✌,♥️ & ✊ x x x
This is REAL!
How do I know? I was sectioned for 9 days under the MH act in 07, thankfully due to
#LegalAid
I was able to fight for a tribunal & interestingly I was discharged 5mins before my tribunal, after just 9 days, with no MH disorder, to later discover I had
#ME
&
#hEDS
⬇️
The horror of Gigi’s situation is not an isolated incident as dozens of children with severe ME have been threatened with being sectioned in the UK & throughout Europe for being unable to snap out of their debilitating illness. It must stop!
#pwME
Whilst this shit goes on day after day, night after night, don't mind us, the people, who this is apparently all about, dying in our millions or the planet we all have to share, rich or poor, whatever your political perspective, dying on a global scale.
#PMQs
#Newsnight
#Peston
I'm so tired of constantly having to prove my illnesses over & over again but
#ME
is REAL! So real there was actually an APPG on
#ME
in parliament this week, hopefully, eventually leading to a full public inquiry into
#PACEtrial
&
#MAIMES
.
Please support this!
#MEawarenessHour
It's almost
#MEawarenessHour
in the
#UK
(8-9pm every Wednesday). This is part of a joint global action by
#pwME
(people with Myalgic Encephalomyelitis) to raise as much awareness of
#ME
as we possibly can. And we need your support too! There are an estimated 65 million people 1/4
@TheChronicColab
Whether you are disabled or chronically ill, we are all fighting the same battle. From the psychologistation of conditions like
#ME
and
#LongCovid
to the removal of GP sick notes. The Chronic Collaboration along with its allies will fight back!!!
Can everyone
#Boycottnewsnight
starting tomorrow? The widely discredited hulk of the former
#BBC
flagship is a standing disgrace to the country and a flagrant abuse of the punitive licence fee
This is the reality of so many of us living with chronic conditions that are currently being dismissed as mental health within the NHS.
WHY IS THIS HAPPENING? THIS HAS TO STOP!!!
WHY ISN'T ANYONE DOING ANYTHING ABOUT THIS???!!!
HELP US!!!
#SaveCarlasLife
#ExposeMEnow
@That_Snail_Girl
@Fighting4M_E
@TheChronicColab
@RuthCadbury
My focal seisures were dismissed as "anxiety attacks," and I was told my non-epileptic seisures were psychological. I was diagnosed with epilepsy after crowdfunding and seeing a private doctor along with ME, EDS, AAI, CCI and POTs which were all being dismissed as Mental Health.
Only 25 MPs tried to save BBC Manchester’s Jewish Community Radio three years ago.
#Corbyn
#McDonnell
and me were three of them. Just think about that...