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National Down Syndrome Policy Group Profile
National Down Syndrome Policy Group

@NDSPolicyGroup

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The NDSPG supports people with DS to have a say in the formation of policy in matters that impact their lives. We provide the secretariat for @APPGDS

Joined March 2021
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Thank you @BatterseaPwrStn for showing your support for the #DownSyndromeBill by lighting up your beautiful chimneys in our colours. @LiamFox @tommyjessop @StephenMcGann we look forward to celebrating with you & the wider community tomorrow at 1:30pm outside Parliament - join us
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
May I suggest we all celebrate tonight! 🥂the first Bill of its kind in the world! A BIG day for the #DownSyndrome community, thank you all so much for your support! In person and online! @LiamFox @PositiveaboutDS @DSRF_UK @dontscreenusout
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
George Webster will make history by presenting award #VirginMediaBAFTAs ‘being able to take part this year is very special. Things in the industry are slowly starting to change & seeing more people like me should become the norm. Thank you to @BAFTA
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
What better way to celebrate the progress of the #DownSyndromeBill than on the steps of Number 10 with ⁦ @LiamFox ⁩ and members and supporters of the NDSPG. A great start to #WDSD2022
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
So many excited children with #DownSyndrome receiving their copy of ‘This is Me!’ by one of our founding officers, TV and all-round superstars - George Webster - just in time for #WorldBookDay . George, you have so many mini-fans who think you’re fantastic 🥰 @NHS_RobW
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
A beautiful end to a wonderful day. Thank you to everyone who braved the artic weather and tube strike to come and show your support for the #DownSyndromeBill Thank you London Eye for showing your support and to @LiamFox for working so hard with us to make it happen.
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
Happy #WorldDownSyndromeDay ! An exciting start to the day for our founding officers and their families with a trip to Downing Street. Later we will be joined by lots more people with Down syndrome, their families and professionals as we share with MPs at our celebratory event.
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
Absolutely fabulous to share #WorldDownsSyndromeDay with @Project21uk at Parliament. So much fun!!
@Project21uk
Project 21
1 year
Lovely day in Westminster with @StephenMcGann and other wonderful people celebrating our big day 💂‍♂️🍰☕️ Happy World Down's Syndrome Day! 💙💛 @NDSPolicyGroup #WDSD23 #ChangingTheNarrative
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
What a great day for ⁦ @NDSPolicyGroup ⁩ founding member ⁦ @fionnathan ⁩, Freddie & Max representing their community at Parliament today. Pictured here in ⁦ @LiamFox ⁩ office before the #DownSyndromeBill event for MPs today @ Portcullis House. Thank you 2 all who came
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
#DownSyndromeBill has passed its Third Reading in the ⁦ @UKHouseofLords ⁩ and now awaits Royal Assent. Thank you ⁦ @LiamFox ⁩, ⁦ @BaronessHollins ⁩ ⁦ @SyedKamall ⁩ for your support, dedication and commitment. Over the moon!!
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
We did it!!! Thank you to everyone who wrote to their MP, signed our petition and supported the #DownSyndromeBill @LiamFox
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
James shares about his job in A&E at his local hospital, while Ed explains about his job with a water company. Potential employers were keen to listen and discuss ways their companies could also provide paid employment for people with Down syndrome. #DownSyndromeAct #Guidance
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
What an AMAZING result! #DownSyndromeBill November 26th 2021 Unanimous!
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
Really detailed meeting with minister @mariacaulfield and our Advisory Group. A very open discussion with significant commitments made by the minister who has taken away all the issues raised today for further work.
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
What a beautiful photo - thanks for sharing 🥰🥰
@Breathwick
Katie Breathwick
1 year
An amazing day with Jack & Innaya and other amazing advocates on the terrace ⁦ @HouseofCommons ⁩ celebrating the #DownSyndromeAct . Thank you @drliamfox and ⁦ @NDSPolicyGroup #WDSD23 #withusnotforus
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
We are delighted that the #DownSyndromeBill passed its Third Reading today and now moves to the House of Lords. Very moving to hear MPs share their experiences and fantastic to see their commitment today to improve opportunities and outcomes for those with the condition.
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Overwhelming support from over 90 groups working with people with Down syndrome & other learning disabilities for #DownSyndromeBill as it progresses through @UKHouseofLords There's still time for you to show your support in this letter @BaronessHollins
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Great to have Heidi Thomas (creator & producer Call the Midwife) & actor @StephenMcGann join us on Friday with @LiamFox to celebrate the #DownSyndromeBill passing its 2nd reading. Heidi says ⬇️
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
The #DownSyndromeBill has just passed the Committee Stage in the @UKHouseofLords with no objections! The Third Reading will be on Friday. @LiamFox @annabeltall @davidgoss @BaronessHollins @GillianKeegan @sajidjavid @Siobhan_Baillie
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
@AlStewartOBE @LiamFox We are delighted to have supported @LiamFox & worked together on the #DownSyndromeBill People with Down syndrome have been at the heart of Parliament today with MPs from across the House giving their support. Our team enjoy a well deserved rest in Liam’s office after the event ⬇️
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Self advocate and one of our founding officers @HeidiCrowter95 encouraging the next generation. Such a beautiful shot 🥰 #DownSyndromeBill
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Turn the sound up for this one 😂 People with Down syndrome deserve to be included in the activities they enjoy. Thank you to ⁦ @Girlguiding ⁩ & your volunteers for working towards this. The #DownSyndromeBill will raise the profile of those with DS ⁦ @LiamFox #Brownies
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
“I would consider it an honour to come along to Parliament on the afternoon of the 26th, and would take great pride in standing shoulder to shoulder with your fantastic community.” Heidi Thomas, writer, creator, producer Call The Midwife. Sign up @LiamFox
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
‘Hopefully people will listen to us, understand us and really talk to us so that we truly do have a voice.’ Inspiring words from actor & our ambassador @tommyjessop ⁩ speaking at our event. He has been instrumental in the success of the #DownSyndromeAct
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
It’s been a pleasure and a privilege to work with @LiamFox on the #DownSyndromeBill We are determined to continue the hard work, including people with Down syndrome, their families and the organisations that support them in the conversations we have. Join Us!
@LiamFox
Sir Liam Fox
3 years
I am delighted to bring forward the #DownSyndromeBill as my Private Members' Bill. This Bill is a world first and has its Second Reading in the @HouseofCommons on Friday. This is why the #DownSyndrome Bill is needed👇
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
We’re so excited to launch our Consultation on Monday. We will present the answers you give as evidence to the @DHSCgovuk who will be writing the Guidance for the #DownSyndromeAct #MakeYourVoiceHeard and make a difference. Please share and encourage others to take part.
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
To all the MPs who are supporting this Bill - THANK YOU THANK YOU from the bottom of our hearts❤️❤️❤️❤️❤️❤️
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
If you are an adult with Down syndrome please do join our Advisory Group facilitated by our founding officers. You will be part of a dynamic group sharing your experiences and hopes for your future.
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 months
Did we ever dream this day would come? When a young man with #DownSyndrome would hold open the door of @10DowningStreet for his peers to enter? Of course we did! #MoreToCome #EndTheStereotypes #DownSyndromeAct #WorldDownSyndromeDay @LiamFox @mariacaulfield
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
"We now have a Down Syndrome Act" Let's celebrate 🍾🎉🥳 We cannot wait to start the next steps. Join up at where will be shortly announcing details of how you can get involved and have your voice heard! #DownSyndromeAct
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Happy Easter everyone 😊
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Lively debate for @LiamFox Down Syndrome Bill @ukhouseoflords - which passes to the next stage! Expected 1st April 😊
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Tonight #WeRememberDebbie A beautiful young lady with a radiant smile, taken too soon in the cruelest of ways. Join us in a wave of light to remember Debbie Leitch who deserved so much more.
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
When a child has Down syndrome their family has an extra role as an advocate. They must learn to navigate new systems, source support, juggle every day life with appointments & therapies. Help make this easier & support @LiamFox and the #DownSyndromeBill
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@NDSPolicyGroup
National Down Syndrome Policy Group
5 months
We have worked hard to raise the profile of people with Down syndrome in Parliament by hosting meetings and events, bringing together MP’s and the Down syndrome community. This is great news and a sign of changing times. More to come! #DownSyndromeAct @LiamFox
@GMB
Good Morning Britain
5 months
Six new employees who have Down’s syndrome are now working in the Palace of Westminster as part of a pioneering programme to get people with the condition into work. Amy works as a catering assistant as part of the initiative and is keen to serve some top dogs in government!
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
The #DownSyndromeBill has given young people with Down syndrome the opportunity to share their hopes for their futures. Their voices must be heard at the highest level and by those making decisions that impact them. If you are an adult with Down syndrome join them - see below 👇
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
The event we hosted at the @HouseofCommons on #WDSD2022 was so much fun, so good humoured and buzzed with excitement. The #DownSyndromeBill has its Third Reading in the @UKHouseofLords on Friday. The future is bright.
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
We send our condolences to the family of Ben King, a young man with Down syndrome who suffered ‘ill-treatment’ & ‘wilful neglect’ at the hands of his carer. Dami Tobi Ayan has been jailed for 9 months after beating Ben, who later died from cardiac arrest.
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Remember our short clip where Tom shared how he wants to be a fitness coach but can’t find a suitable course? Well look at him today putting @thebodycoach through his paces. Amazing things happen when people reach out and include. Great for your CV Tom!! @LiamFox @GillianKeegan
@PositiveaboutDS
Down Syndrome UK | Positive About Down Syndrome
2 years
Delighted to see Tom of TomFit recording workout videos with the very wonderful @thebodycoach . Tom had a blast & we can't wait to see the videos! Tom is working towards his dream to become a Fitness Coach, with training supported by @FutureFit_UK Together we can do this!
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Such a great feeling to see these beautiful, strong and courageous young women take the opportunities before them. They have been instrumental in the process of the #DownSyndromeBill @Bethany40644990 @HeidiCrowter95 @garrettflo Rachel
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 months
It was so great that you could both join us today to celebrate #WorldDownSyndromeDay What an amazing journey you have both been on, thank you for sharing it with so many.
@ManniCoeWrites
Manni Coe
3 months
It’s all about him. It’s always been about him. The return of his smile. The return of his voice. That was the mission. Reubs - you are my hero ❤️ 🦸 happy #WorldDownSyndromeDay now and forever. I love you more than #chocolatemilk @canongatebooks @LittleToller @Waterstones
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
@LiamFox ⁩ thank you on behalf of all our community!
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Reuben asks @LiamFox ‘What reason would people have to object to it?’ #DownSyndromeBill
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
I deserve to be included! Yes, Sam, yes you do! The #DownSyndromeBill will make that a reality! ⁦ @LiamFox
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
Our Advisory Group formed a Human Library. This facilitates conversations between different groups. It challenges perceptions by putting names, faces & stories to the stereotypes. They will be engaging with MPs on #WorldDownSyndromeDay #DownSyndromeAct #ChangingTheNarrative
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Support the Down Syndrome Bill #changingthenarrative
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
We are so glad that senior leaders and pupils from @ManorParkSchSM1 could join us and local MP @paulscullymp to celebrate #WorldDownSyndromDay at Parliament.
@ManorParkSchSM1
Manor Park Primary Academy
1 year
Showing our support for World Down Syndrome Day 2023 @scullyp @LEOinclusion @LEOacademies #WDSD2023
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
"We want to live rich, messy lives." @fionnathan addresses MPs and guests at an event hosted by @LiamFox at the House of Commons in support of the #DownSyndromeBill and to celebrate #WDSD2022
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Tweet your MP today and ask them to attend the event with @LiamFox tomorrow from 1:30-3:30pm. A great opportunity to discuss the #DownSyndromeBill with Dr Liam Fox MP @fionnathan
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
What a year!!! Thank you to everyone who has supported us in our efforts to bring the voices of those with Down syndrome and their families to the heart ❤️ of Parliament.
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Today’s the day! Second reading of the #DownSyndromeBill being brought by @LiamFox and supported by the government! Thank you! Looking forward to seeing everyone at Westminster this afternoon!
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 month
“We must not treat people with Down syndrome as second class citizens in their own country” Thank you @LiamFox for championing people with #DownSyndrome in Parliament & challenging your colleagues to right historical wrongs. Ask your MP to vote for #NC41
@itvwestcountry
ITV News West Country
1 month
'We must not treat people with Down's Syndrome as second class citizens' North Somerset MP and former Cabinet Minister @LiamFox is calling for abortions of foetuses with the condition to be made illegal past 24 weeks
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 months
Millie, a woman with #DownSyndrome makes a strong case in her support for the suggested #NC34 amendment to the Criminal Justice Bill by @LiamFox MP #NC34 to bring #EqualityAt24 to babies with the condition. Write to your MP here 👉🏼
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
We are celebrating #WorldDownSyndromeDay #DownSyndromeAct with afternoon tea on the Terrace at Parliament. We are holding an open ballot for people with Down syndrome, their families and leaders of organisations who support them. Details below 🍰 @LiamFox
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@NDSPolicyGroup
National Down Syndrome Policy Group
5 months
A belated happy birthday to our wonderful Ambassador Mr @StephenMcGann . Steve always brings a bit of razzamatazz to our events and we’re very appreciative of his time and effort. Here he is leading the #ChickenDanceChallenge at our #WorldDownSyndromeDay event in Parliament 🥳🥂
@StephenMcGann
Stephen McGann
5 months
Today is my birthday, so you are obliged to agree with this statement.
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Actor @tommyjessop has worked so hard with us to make the #DownSyndromeAct a reality. Great to see him celebrate this achievement with @LiamFox @BaronessHollins @kenross2011 @USAmbUK and his mischievous side as he and good friend @fionnathan share a joke together.
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Happy #WDSD2022 from the National Down Syndrome Policy Group who have started the celebrations with @LiamFox at Number 10 Downing Street! #DownSyndromeBill @BorisJohnson
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Heidi Thomas, creator and producer of Call the Midwife, speaks beautifully about her brother David and her hopes for the #DownSyndromeBill which will be one step closer to becoming law following it’s 3rd reading this Friday 4th February. ⁦ @LiamFox
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
“The Queen is expected to give royal assent to the #DownSyndromeBill within next few days The legislation aims to make it easier for people with Down syndrome & their families to secure the services they need & to challenge officials not doing their duty.”
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
Our Advisory Group formed a Human Library. This facilitates conversations between different groups. It challenges perceptions by putting names, faces & stories to the stereotypes. They will be engaging with MPs on #WorldDownSyndromeDay #DownSyndromeAct #ChangingTheNarrative
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
Today was the first day for Fionn, National Down Syndrome Policy Advisory Group Chair, on his jobshadow in UK Minister for Education Gillian Keegan's office in Westminster. "Fulfilling but tiring," he said. "Her team work really hard."
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 months
A law that treats us differently because of our characteristics doesn’t meet 2024 standards. Yet we have a law that does just that after 24 weeks of pregnancy where abortion can still be offered up to birth if Down syndrome is confirmed. Write to your MP
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
MPs have backed new laws to recognise people with Down syndrome as a specific minority group.
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Come and join @LiamFox @tommyjessop @StephenMcGann and Heidi Thomas to celebrate the 2nd reading of the #DownSyndromeBill . Meet at 1:30pm. Further details and to sign up please follow link
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
It’s been an absolute pleasure working with George. A history-maker!
@lorraine
Lorraine
2 years
'The world needs to change, because we're people and we exist and we deserve equal respect.' George Webster made history when he became the first CBeebies presenter who has Down's Syndrome and now he's paving the way for others with learning disabilities.
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
Advisory Group member, Harshi, shares her experiences at the round table discussion following the Down syndrome debate in the ⁦ @HouseofCommons ⁩ organised by ⁦ @LiamFox ⁩. ⁦⁦Minister @mariacaulfield ⁩ chaired the meeting. #ChangingTheNarrative #DownSyndromeAct
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Join us outside Parliament on 26th November for what we hope will be a celebratory event as MPs vote on #DownSyndromeBill Follow us, message, email contact @dspg .uk to stay informed. Families welcome, activities for the kids. Wear pink, blue or purple to create a wall of colour
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 months
Just enough for a quick #TexasHoldem dance while waiting to join the World Down Syndrome Day Reception @10DowningStreet with @mariacaulfield and @LiamFox
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
Proud to be in the top three Twitter accounts most mentioned by MPs in the last 24 hours. With your support we have raised the profile of people with #DownSyndrome to a new height. It is inspiring to see our Advisory Group members speak for themselves at the highest level.
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Perhaps the most inspiring outcome of the #DownSyndromeAct has been people with Down syndrome taking the opportunity to share their views with a wide-ranging and influential audience. Here one of our Advisory Group members shares her thoughts with Civil Servants. #HaveYourSay
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 months
Sir @LiamFox MP is seeking to change the law and to ensure full legal equality for those with #Downsyndrome . Find out more and email your MP here #EqualityAt24 #NC34
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
A very busy day for our Founding Officers @fionnathan @HeidiCrowter95 @jamesca68412009 . A well earned rest after rewarding meeting with @LiamFox and before the All Party Parliamentary Group for Down Syndrome. #DownSyndromeBill
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
We’re so glad to have support from @Project21uk whose members contributed to our consultations with the civil servants for the #DownSyndromeAct So glad you enjoyed your day with our Ambassador @StephenMcGann after meeting at our #WorldDownSyndromeDay celebration at Parliament 🤩
@Project21uk
Project 21
1 year
Huge thanks to @StephenMcGann for coming in on his day off to be our private tour guide at Call The Midwife studios 🎬🤰👩‍⚕️✝️ We held fake babies, explored infamous locations and met the cast in this brilliant production. We had a truly incredible time... ✨️ Roll on Series 13!
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
People with Down syndrome die, on average, 28 years before their typical peers. Let’s help them live well & live longer through investment in research, focussed healthcare & better training in medical education @DSRF_UK @DrLisaCameronMP @LiamFox @Siobhan_Baillie @ElliotColburn
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 months
Born together, grow together, but protected differently before birth. Join us in advocating for #EqualityAt24 . Write to your MP using our quick and easy template ⬇️ Ask them to support and vote for Sir @LiamFox amendment #NC34 . #Twins
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
“I would say to people who have autism,  Down’s Syndrome or some physical disability, I would say go for it, act your heart out” James Martin Congratulations to all involved in this award-winning film 🤩🥳🥂
@BAFTA
BAFTA
1 year
Here's to making sure you thank your mums! ❤️ #EEBAFTAs
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 months
We stand for change in a world where twins can share everything but equality. After 24 weeks, both twins should have equal protection. But if one twin has Down syndrome, they're not given the same rights. This is discrimination. It's time for the law to recognise #EqualityAt24 .
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
URGENT An invitation from one of our founding officers and TV presenter, George Webster, to take part in our consultation. The results will be presented to the @DHSCgovuk to help them write effective and meaningful Guidance following the #DownSyndromeAct
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
This truly is an historic day and we feel very privileged and humbled to have played our part. Thank you @LiamFox and team, your commitment and resolve has made the seemingly impossible a reality. We look forward to really celebrating this world-first on #WorldDownSyndromeDay
@LiamFox
Sir Liam Fox
2 years
It’s been a momentous day in Parliament as the #DownSyndromeBill passed all its stages in the @HouseofCommons . The Bill now moves to the @UKHouseofLords . I hope we can get it passed by both Houses of @UKParliament by #WorldDownSyndromeDay on 21 March. #DownSyndrome @NDSPolicyGroup
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
"I passionately believe all babies, children and adults with Down syndrome should be treated equally with love, care and respect in our communities" Reuben #DownSyndromeBill
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
I deserve to be included! #DownSyndromeBill @DSRF_UK
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Our founding officers with Down syndrome have entered @DimensionsUK Learning Disability and Autism Leader’s List 2022 because of their outstanding work and taking a lead in their lives. We will hear if they’re successful in a few weeks time.
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
We were delighted to see the Down Syndrome Bill receive cross-party support at its second reading on 26th November 2021 and look forward to productive cross-party engagement at Committee stage.
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
Great to have Secretary of State for Education, ⁦ @GillianKeegan ⁩ at our event to celebrate #WorldDownSydromeDay . A great opportunity for children and parents to share their experiences first-hand. #DownSyndromeAct #DSGuidance #ChangingTheNarrative
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 months
Thanks to our fabulous ambassadors @StephenMcGann , Heidi Thomas & @tommyjessop for your support. What an amazing morning we have enjoyed inside number 10 with our Advisory Group & supporters. Thank you @LiamFox @mariacaulfield for your commitment & hospitality. #DownSyndromeAct
@StephenMcGann
Stephen McGann
3 months
What a BRILLIANT way to spend #WDSD24 - with our wonderful mates at the National Down Syndrome Policy Group @NDSPolicyGroup There is NO better way to do No10! xx
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Proud Dad moment! 😍 Sam shares his hopes for the future with supporters outside Parliament. #DownSyndromeBill
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
Great to meet you Mr Fisher and to hear how well supported Billy is. We hope you enjoyed your day!!
@HarrisSutton1
Harris Sutton
1 year
Billy and his Principal supporting the Down Syndrome Act today at the House of Commons. #DownSyndromeAct #DSGuidance #WDSD2023 #NDSPolicyGroup #ChangingTheNarrative #WithUsNotForUs
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Everyone should have speech and language! @HeidiCrowter95 Absolutely ! @ColetteLloyd @PositiveaboutDS
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 months
“I want to be seen for my abilities, not just my diagnosis." – #DownSyndromeAct Consultation Participant (Cheshire, Feb 24) @LiamFox @mariacaulfield @DHSCgovuk #WorldDownSyndromeDay #EndTheStereotypes
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Founding officer @HeidiCrowter95 says, ‘she hopes the Bill will help change the NHS and change the negative stereotypes’ #DownSyndromeBill @LiamFox
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
Thank you @PaulHowellMP for visiting with @LiamFox and the @NDSPolicyGroup today and supporting the #DownSyndromeBill
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
Our Advisory Group has over 40 passionate individuals with Down syndrome from across the UK. They meet regularly to discuss issues that matter to them, they set their own agenda and host their own meetings. For more information email us contact @ndspg .org @LiamFox @mariacaulfield
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
How better to celebrate #InternationalWomensDay than with our founding member Heidi Crowter who was named as BBC 100 Women in 2022. She is a fantastic advocate for #Downsyndrome and has worked hard on the #DownSyndromeAct She is #ChangingTheNarrative #equality #inclusion
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@NDSPolicyGroup
National Down Syndrome Policy Group
1 year
We have come a long way but there is still a long way to go. It is not enough to just live longer, we are campaigning for people to live happier and fuller lives according to their wishes.
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@NDSPolicyGroup
National Down Syndrome Policy Group
3 years
@LiamFox announced The Down Syndrome Bill yesterday. It is ambitious, life changing and long overdue. We are delighted that Dr Liam Fox MP will champion this Bill with co-sponsor @ElliotColburn and look forward to working with them. Second reading Friday 26th November.
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 years
Professor Sue Buckley explains why she supports the Down Syndrome Bill via @YouTube Thank you @SueBtalk for your dedication to improving outcomes for people with Down syndrome for the past 50 years!
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@NDSPolicyGroup
National Down Syndrome Policy Group
2 months
Congratulations to @kenross2011 upon receiving his OBE today. Ken works tirelessly with @PortsmouthDSA and @NDSPolicyGroup putting words into action and making inclusion for people with Down syndrome a priority wherever he goes. We’re glad you and your family enjoyed your day! 🍾
@kenross2011
Ken Ross OBE
2 months
Incredibly honoured today to be at Windsor Castle with my beautiful family for my investiture. I was presented with my OBE by HRH Princess Anne and was able to chat with her about my hopes for a more inclusive country for people with Down syndrome. @JackHFRoss @mrtomross
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