ANGELMAN SYNDROME AWARENESS National Diversity Award Winner 2022 Points of Light Award 2022, BCyA 2022 Ambassador for the Lake District Foundation 2024
PROUD MOMENT
I am so very proud to be able to share with you all that I have the privilege of been asked to be an Ambassador for the
@lakesfoundation
I am so proud and am looking forward to supporting & being a part of the team, promoting and taking care of the beautiful Lakes x
Please everyone ask a celeb but only the nice ones๐ letโs get me to 15k followers who want to share my Smiles &follow my journey with
#AngelmanSyndrome
lets see how many we can get
fun and I guarantee a Smile a day๐pls to help make Team Melissa even bigger and betterโค๏ธThanx x
๐ถHAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY TO YOU, HAPPY 18th BIRTHDAY DEAR ๐๐๐MELISSA ๐๐๐
Please could everyone join in and send Melissa happy Birthday wishes โค๏ธ
Letโs see if can get the whole world to join in ๐
Letโs make it
#NationaMelissaDay
#HappyBirthdayMelissa
Evening all ๐ Thought it might be fun to see how many Hello Melissa messages I can get this evening ๐ wonder if I could get 1000 ๐๐
#AngelmanSyndrome
๐
Please all send me a
#HelloMelissasSmile
xxx
HAPPY 21st BIRTHDAY MELISSA๐๐๐๐๐ฅณ๐ฅณ๐ฅณ๐๐๐๐
Today is a special day for this Inspirational,courageous,kind,
thoughtful, wonderful young lady, please join me in wishing
#HappyBirthdayMelissa
๐
๐๐๐๐๐ฅณ๐ฅณ๐ฅณ๐๐๐๐
Believe in yourself ๐๐ and you can achieve so much โค๏ธ please send me your encouragement as my legs are getting tired after so many steps ๐
#AngelmanSyndrome
Doctor: She will probably never walk or be able to do very much, sheโll change your life forever, Iโm sorryโ
ME:Well just look at her now, she has changed my life for the better and I wouldnโt swap her for anything, I didnโt need your sorry, I have my beautiful Daughter MELISSA
HAPPY BIRTHDAY MELISSA๐
Today is a special day for this Inspirational,courageous,kind,
thoughtful, wonderful young lady, please join me in wishing
#HappyBirthdayMelissa
๐
๐๐๐๐๐ฅณ๐ฅณ๐ฅณ๐๐๐๐
OH MY !! ๐
Melissa just said โLOVE MAMAโ๐
She has said Mama a few times but this time Iโm sure she said LOVE I had to share it with you all, my heart is bursting with pride ๐
#AngelmanSyndrome
Woohoo Look at me ๐ walking on grass is a little more tricky but I think Iโm doing great ๐๐ Thanks to all of you and your fabulous support โค๏ธ
#AngelmanSyndrome
First time wearing my splints And pushing my chair, not bad driving for a first go ๐
Cโmon Twitter friends you are always so supportive send me a Message of encouragement
#AngelmanSyndrome
๐
Itโs sad I donโt get as many of my friends on here saying Hello as I did when we were Twitter, pls take a moment if you see this to say Hello Melissa ๐ x
#MelissasSmileyChristmas
#AngelmanSynfrome
I wanted to say Thank you to my lovely Twitter friend
@HamillHimself
for liking so many of my Tweets โค๏ธ but I thought Chewie could say it for me ๐ x
#AngelmanSyndrome
๐
All your lovely words and messages of encouragement are helping me to walk so much better in my GRAFOS I stiil need a little help from Jacob on tricky ground but Iโm getting there ๐ Love this video of us ๐๐
#AngelmanSyndrome
#SaturdayMotivation
Doctor: She will probably never walk or be able to do very much, sheโll change your life forever, Iโm sorryโ
ME:Well just look at her now, she has changed my life for the better and I wouldnโt swap her for anything, I didnโt need your sorry, I have my beautiful Daughter MELISSA
Completing a puzzle, even if it only has four pieces, is definitely something to celebrate ๐ working on my fine motor skills ๐๐
#AngelmanSyndrome
Good morning Friends ๐ I love Monday as itโs the start of a brand new week and the chance to try and achieve what you didnโt manage to last week ๐๐ Have a great day and Iโll see you all later x
#AngelmanSyndrome
๐
#MondayMotivation
#Mondaymorning
I think this is worth a thousand Well Done Messages
Saying Mama, at age 16 may not seem a big deal to some but to us itโs AMAZING ๐โค๏ธ
#AngelmanSyndrome
๐
Walking to the post box to send one of my special Smile Thank you cards ๐ thatโs got to be worth a well done Melissa message ๐๐
#AngelmanSyndrome
#FridayFeeling
โm absolutely blown away by the kindness of my Twitter friends โค๏ธ This is what 460 cards looks like !! You have helped to make my 18th Birthday so special x
Hi friends, bit of a worrying time here, Just had an appt with Doc she is a little concerned so I have to have a scan to find out what is happening inside my head, Iโll keep you posted, keep me in your thoughts and if you pray, please say one for me x
#AngelmanSyndrome
๐
๐๐HAPPY BIRTHDAY ๐๐
๐ถ๐ถ ๐ถ๐ถ ๐ถ๐ถ ๐ถ๐ถ ๐ถ๐ถ
Today is Melissaโs 17th Birthday please join in and send a
HAPPY BIRTHDAY MELISSA
Letโs try and make this a really special day for the Smiliest young Lady on Twitter ๐
We Love you โค๏ธ Have a fabulous day P.A. And Jacob x
How amazing is this ๐ climbing the stairs !! โค๏ธ thatโs got to be worth a well done, so much effort needed see
#AngelmanSyndrome
๐ isnโt going to stop me achieving x
#KeepSmilingMelissa
Happy Sunday friends๐Pls everyone ask a celeb to help get me 20k followers who want to share my Smiles & my journey with
#AngelmanSyndrome
lets see how many we can get promise
fun and a Smile daily๐help make Team Melissa even bigger and better
#SundayMorning
#SundayMotivation
Dear Mr
@HamillHimself
You are so lovely in liking my posts about raising awareness of
#AngelmanSyndrome
๐
Iโm sharing my achievements showing what is possible when you never give up but itโs tough
Would you please help me by joining as my Ambassador โค๏ธ Thank you Love Melissa x
Hello Itโs Melissa here ๐ Iโm sharing my Smile to raise awareness of Angelman Syndrome๐ I use my iPad to get my messages across as I donโt have a voice of my own yet (Iโm working on it ๐) I hope you like that I am using a few Makaton signs too xx
#AngelmanSyndrome
๐
Update ๐ Melissa has had quite a few seizures over the weekend and today had 3 in quick succession, we were worried so took her to A&E
Asleep at home now so please keep her in your thoughts ๐
#AngelmanSyndrome
Today is International Angelman Day, observed annually on February 15, to raise awareness of AS a rare complex genetic disorder.
Please help me Twitter friends and share the words ANGELMAN SYNDROME To show just how amazing my Angel friends and I are โค๏ธ
#AngelmanSyndrome
๐
Morning all ๐ my GRAFOS have gone away to have more padding fitted (they made my foot bleed) so Iโm Captain bendy legs today ๐ but I can still get where Iโm going โค๏ธ
#AngelmanSyndrome
๐
#SaturdayMotivation
please send me a
#HelloMelissasSmile
to tell me Iโm doing well ๐
Canโt wait for summer to get out and about again, going for a walk is the best thing ๐ especially when you take your wheels with you for when you get tired
#AngelmanSyndrome
๐
#WednesdayMotivation
Thx everyone for all the messages and Love you have sent Melissaโs way we took her out today for a little drive she is still indicating her head aches and is having tremors and absences but not as many as previous days so hopefully things are settling ๐ค
#AngelmanSyndrome
Not sure whatโs happening with Twitter but I have lost over 100 followers in a day !!
I havenโt unfollowed anyone so if you can still see my smiles pls let me know, I donโt want to lose any of my friends ๐x
Happy New Year ๐ฅ Here are P.A. And I to send you our Love and Best Wishes for 2020 hope it is a great year for us all (we could do with some good luck) may all your dreams come true โค๏ธ๐Cheers ๐ฅ๐ฅBe careful if you are out and about and enjoy xx
#NewYearsEve
#AngelmanSyndrome
๐
Hear ye Hear ye ๐ I have a little message with some Makaton added just for fun ๐ Please listen to it (donโt just hit like๐) as I want to see if everyone likes my video messages better than just written ones๐๐ Thank you xx
#AngelmanSyndrome
๐
Morning all ๐
Celebrate the small achievements โค๏ธ Have you ever seen such excitement ๐ Iโm learning to navigate around the program by myself ๐ โsayingโsimple sentences is something to celebrate in our house ๐
#AngelmanSyndrome
๐
Melissa is making herself a sandwich For the first Time how fabulous is that โค๏ธ
These milestones are so amazing Iโm one proud Mum
WELL DONE MELISSA
#AngelmanSyndrome
๐
Morning all ๐ Iโm feeling a little better this morning, still got my pesky cough and sore throat but looking through the Smyths toy catalogue is cheering me up x
Take Care and Be Kind
#AngelmanSyndrome
I canโt speak but Iโll Never give up trying๐I have been working hard for years to say Jacob to put a big smile on my Brotherโs face, this shows just how much effort it takes for me to make sounds I will get there because I wonโt give up
#AngelmanSyndrome
๐
#SaturdayMotivation
Thought everyone may need a little Smile this evening ๐ so Iโm sharing my lovely message from my very good friend
@VancityReynolds
again because itโs one of the best Iโve ever got โค๏ธ x
#AngelmanSyndrome
๐
I have to share this,
Melissa went to alert staff at School when one of the other students had a medical incident and needed help. What a Hero ๐
#AmazingMelissaGrace
#AngelmanSyndrome
๐
Seeing young ladies, who were in the same class as Melissa when she went to mainstream school,posting getting ready to go & party with high heels and make up whilst we sit here watching a message from Santa over and over. Iโm crying inside for my beautiful girl
#AngelmanSyndrome
Aww P.A. Has told me I have lots of unfollowers this morning Maybe my Smiley Tweets arenโt making everyone as happy as I thought during this horrible time โน๏ธ
Never mind Iโll keep posting them for my friends who do like them ๐x
#AngelmanSyndrome
๐
#StayAtHomeAndStaySafe
IMPORTANT ๐
Today is our amazing Mumโs Birthday ๐๐ฅณ Lets make her feel really special โค๏ธ she deserves it ๐๐๐
Not P.A. Today but KATHRYN โค๏ธโค๏ธ
Please can everyone send her a message x
#HappyBirthdayKathryn
NEWS๐
I am so proud to share that I have been selected to receive a British Citizen Youth Award (BCyA)YOUNG ANGELMAN SYNDROME AWARENESS CAMPAIGNER
Iโm humbled to be a recipient of such a prestigious award I will receive a special medal of honour at The Palace of Westminster ๐
Please keep this going ๐it is so exciting we are reaching so many new friends and educating them about Angelman Syndrome ๐ Letโs aim for 20k followers and beyond ๐ the more we share the more peeps we reach pls Everyone Tag a Celeb
#TeamMelissa
#AngelmanSyndrome
Thank you xxx
Iโm very proud of myself today, we went out for a drive and stopped at a little cafe, I used my iPad to ask the lady for a cake and said Thank you.
#AngelmanSyndrome
๐
#AmazingMelissaGrace
I was diagnosed with
#AngelmanSyndrome
at 3 years old since I have struggled every day to achieve more than anyone thought possible I hope my achievements and adventures are an inspiration to others to never give up I want to show the ups and downs of life with a rare conditionโค๏ธ
Look at me ๐ walking in my GRAFOS on my own ๐ please could you send me a well done message
@PeterEgan6
โค๏ธ my P.A. Is a huge fan of yours ๐
#AngelmanSyndrome
P.A. Is feeling a little Down today โน๏ธ She works so hard and gets very tired, a few tears this morning ๐ข
I think she is fab but can I ask
Please could everyone send her a little Twitter Love and a message to cheer her up โค๏ธ
#AngelmanSyndrome
๐
#StayHomeSaveLives
Proud Mum moment ๐
A young girl in a shop today was having what her Mum described as a Meltdown, Melissa stopped,sat down near her held out her hand and kept it there till the girl noticed which took a while,Melissa smiled she smiled and they hugged ๐her mum hugged me ๐ฅน
Oh dear, Melissaโs not well again she has been struggling with illnesses for a while it seems one after another, Doc appt on Monday, she needs some investigation to find out why๐
#AngelmanSyndrome
A combination of my Gall stones and chest infection are making me feel yucky today ๐ค So here is a previous video instead of a daily pic xx
#MelissasSmileyNewYear
#AngelmanSyndrome
I am so proud to share with you I have been given a Point of Light award.
The award recognises outstanding individuals, it it wonderful to have my hard work raising awareness of Angelman Syndrome recognised ๐
#AmazingMelissaGrace
I canโt speak but Iโll Never give up trying๐I have been working hard for years to say Jacob to put a big smile on my Brotherโs face, this shows just how much effort it takes for me to make sounds I will get there because I wonโt give upโค๏ธ
#AngelmanSyndrome
#ThursdayMotivation
ITโS ARRIVED ๐๐๐
A huge THANK YOU to those of my amazing Twitter friends who made it possible, I have my own Trike๐
I canโt tell you how much this means to me x
Thanks also to Martin
@TomcatSNILtd
Join me on my maiden voyageโค๏ธ No stopping me now โค๏ธ
#AngelmanSyndrome
๐
Iโm still in awe that a Hollywood Star like the very wonderful
@HamillHimself
not only follows little me but sent me such a lovely message of support โค๏ธ
#AngelmanSyndrome
๐
IMPORTANT ๐
Today is our amazing Mumโs Birthday ๐๐ฅณ Lets make her feel really special โค๏ธ she deserves it ๐๐๐
Not P.A. Today but KATHRYN โค๏ธโค๏ธ
Please can everyone send her a message, Letโs get it trendingโฌ๏ธ
#HappyBirthdayKathryn
#HappyBirthdayKathryn
#HappyBirthdayKathryn
Update Friends..... I have had a Covid test this morning a huge Thanks to Nurse Hayley for making it so easy and quick, nothing to be scared of ๐ฉโโ๏ธ and to
@MarieRimmer
for making this happen ๐
Iโm feeling a little brighter today and even managed a Smile x
#AngelmanSyndrome
๐
Morning all ๐ Iโm feeling a little better this morning, still got my pesky cough and sore throat but looking through the Smyths toy catalogue is cheering me up x
Take Care and Be Kind
#AngelmanSyndrome
UPDATE !! Melissa has slept most of today, her Temp is back to normal range, she still has a chesty cough and is a bit clingy and weepy, Iโm pretty sure she has Flu, but will still be keeping a close eye on her๐ฉโโ๏ธ
A huge THANK YOU to everyone who has sent Get Well Messagesโค๏ธx
Thatโs what determination looks like ๐ going to post a letter, Iโll get down the step myself โค๏ธ Got to be worth a well done eh friends ๐
#TuesdayMotivation
#AngelmanSyndrome
๐
Iโm going to be 18 years old in July ๐ During 2020 I raised over ยฃ5000 for charity
As this is my special year 2021 is going to be my Fundraising year !!
I will be challenging myself to walk or ride my Trike as far as I can ๐ Details to follow x
#AngelmanSyndrome
๐
Update friends ๐ Melissa is still struggling with Covid, the Doc is trying Antibiotics to help her awful chesty cough and clear congestion, poor thing is exhausted but still Smiling ๐ keep sending her kind thoughts and love x
#AngelmanSyndrome
#AmazingMelissaGrace
Shh donโt tell Melissa but I would love to get her to 30k followers for her Birthday tomorrow ๐
To help her raise awareness of Angelman Syndrome ๐
Cโmon Twitter lets make her Birthday special ๐๐
Evening all ๐ Thought it might be fun to see how many Hello Melissa messages I can get this evening
I wonder if I could get 1000 ๐๐
#AngelmanSyndrome
๐
Please all send me a
#HelloMelissasSmile
xxx
When you complete a puzzle, even if it only has four pieces, is definitely something to celebrate ๐ working on my fine motor skills ๐๐
#AngelmanSyndrome
Wow Iโm super excited as itโs Day 24 of
#MelissasSmileyChristmas
๐ ๐ป๐๐๐๐๐๐๐๐๐๐๐Itโs Christmas Eve friends โค๏ธ enjoy ๐ฅ
Update friends... Melissa is pretty much the same today, Antibiotics will hopefully start to work soon,
Covid test tomorrow morning, nurse is coming here to give her the test.
Please keep sending Melissa your positive thoughts and hugs xx
Todayโs the day I received my BCyA ๐ at the Palace of Westminster
Iโm so excited and honoured to be the first person with Angelman Syndrome to receive this award ๐ what an amazing day
#BCyA22
#AmazingMelissaGrace
#AngelmanSyndrome
๐
๐๐๐๐ฅณHAPPY NEW YEAR MY FABULOUS TWITTER FRIENDS ๐ฅณ๐๐๐
Love to all for an amazing 2023
from our house to yours with love and kindness ๐ xx
#AngelmanSyndrome
๐
#AmazingMelissaGrace