Official twitter account of 3.5y/o (I age in Decades)
#Autistic
writer,
#poet
,
#Artist
and
#Author
Matty Angel. Theres no more Princess Nom Nom she died. ♿
Hello beautiful, wonderful people who I adore and think the world of.
I have a fundraiser up to help pay for surgery. I know many of you can't give and THAT IS OKAY.
If you can, it is welcome, even if its just a dollar.
My surgery date is AUGUST 12!
My 88 year old neighbor just knocked on my door really concerned saying. "I have had no vaccination and I don't know how to get one"
Well Neighbor, let me make this happen for you. You know you can get them at home now?
@sarah4ilam
would be proud of me!
Hi. My Name is Matty. I am 31 years old and I have Autism. I live in a supported living program and receive care in order to live on my own.
This year is an election year. When voting please keep in mind people with Disabilities. We often can't speak for ourselves.
Love Matty
It is with sorrow that I must share
Her Royal Highness Princess Nom Nom, Booksitting bagsleeping Fattycat Swishytail the First, Ruler of Kingdom of bedroom, current ruler of Matty Land and first in line to the couch.
Has gone to sleep.
Long may she reign in her dreams.
BIG NEWS!!! It appears At Home Vaccinations have begun. I am scheduled for next Wednesday morning.
A huge big thanks to
@sarah4ilam
for a continued push for disability/accessibility of the vaccine here in Christchurch.
I am so glad solutions are coming for my disabled whanau
So here is an interesting thing. WINZ wants you to use MyMSD on the internet... to apply and manage benefit stuff.... yet they also think internet is a luxury item.
At 1:30pm tomorrow,
Her Royal Highness Princess Nom Nom, Booksitting bagsleeping Fattycat Swishytail the First, Ruler of Kingdom of bedroom, current ruler of Matty Land and first in line to the couch.
Will be saying her final goodbyes.
May she visit in our dreams.
Matty
Maybe all the pain I went through adding to this report was a waste.
I just wanted to stop it hapening to others.
Cannot do that if no one with power reads it.
-
PM on defensive after minister admits not reading interim abuse report
My Alaska Mom said I have to reactivate my twitter because I can't live a life without friends just cause I am mad at my body. And something about people worrying about me.
Okay... Soooooooo today is the day I fly to wellington and speak to the health committee at parliament. I will be outside on the forecourt from 11:30 to 12:30 if anyone wants to show some support :)
I am nervous. But... I am going to do this.
I debated all day if I should say anything about the Roe v Wade situation in the USA. As a New Zealander I am very far away from the emotions and conflict over there. However... As a Christian I have decided to say something. Which is very rare for me when it comes to politics.
So I suppose I can tell you all this now. The special thing I auditioned for... Well I was chosen.
I now get to work with an award winning playwright person and a few other disabled friends :) and we will get to create something special.
First zoom class is tonight 7pm!
So WINZ is going to cut my benefit on the 11th of December. I gave them all required documents but no one did anything with it.
I cried this morning asking them who I can speak to, to try prevent this. They cannot provide anyone. I asked if going in person to line up would help.
The last promise I made with
@MotherOfMeeps
was to look after paddington bear.
He arrived today with some other things from her as well, including a final card. And a santa unicorn.
Please meet paddington bear. He is very special.
From my friends 5 year old. It really is that simple.
Mum: "Matty is transgender, she just... has a bit of a confused body, like she got the wrong one.
Five Year Old: Oh yeah, that happens to my lego people a lot
:( Now I can finally say why I have been emotional all day.
We text most days I loved her so much. She meant so much to me. I was informed earlier and I have been a crying mess.
All day I have worn this dinosaur necklace she gave me.
She wanted to visit me this month.
Hi Twitter, this is not the news we wanted to have to share with you. Meep Mama has died. We knew this was inevitable- her cancer was not curable and she was living what life she could while she could.
UPDATE
Princess Nom Nom is doing better. She has been eating which is the best news we could have hoped for. She will be at the Vets today and Tonight with an IV Catheter in, if she continues to improve I can bring her home tomorrow for recovery here.
Thank you everyone.
Being autistic does not make my transgender/intersex/gender identity any less valid.
I am happy being me. I hurt no one else in my decisions. Being me has not impact on your daily life. Just be kind and respectful to me and me to you and all is fine, its not hard.
Be kind.
My goodness, I got meet and thank
@ValerieAdams84
, she is Mum to a child with Autism. A fellow South Aucklander who escaped.
She showed you could another path.
Forever greatful.
I wonder what job winz will make me do. Mobility impaired, cant walk. Im incontinent so nothing with food. Cant shower or dress myself so I cant really help anyone else... I require transportation in a suitable car, so who will pay for that? I have ptsd and cant go out alone.
Okay so I Wasn't sure if I would post this but here we go.
Tonight I did the paper work for the gender marker on my birth certificate to be corrected.
I hope the hateful people leave me alone.
This is a reminder tweet that I am intersex/transgender.
And if you agree with J K Rowlings views... You are hurting me....
And it would be great if those I love or who love me would not follow her.. shes using her followers as justification her hate has merit.
I have made the hard decision... that will probably make a few of my friends grumpy... but I have decided my house is a harry potter free zone. Not long ago I donated my harry potter lego, my movies... games...
The author has hurt my soul. :(
I tried to take my life. I have hurt my neck. The police came and saved me. I was unconcious. Im now in the hospital.
I just wanted the noise to stop.
I rang crisis team and they said they cant help me. So i tried to help myself
Please forgive me.
Love Matty
To
@NZNationalParty
I want to apologize to you for existing.
I am sorry.
If you want me to die can you let me know? It would be easier than being told I will not be looked after.
I just got an email saying I may loose some care due to your changes.
Summary of my thoughts today after my session with the royal commission into abuse in care.
Hope im not to scary. Recorded this 10 times to get right...
Love Matty
You have all been so kind to me over the years, with generosity and support. Most unasked, and I try not to ask to much of you when I do need too...
But I do need to ask something of you now...
Please don't let NZ fall to the anti tr-a-ns, evangelical Chr-ist-ian stuff. Please.
I want to give special thanks to RNZ journalist
@rosiejanegordon
for giving her time to cover the petition and select committee over the last weeks and also for her genuine care and kindness.
Others said "not important" where she said lets do this.
Tēnā koe Rosie
Nini everyone.
Emotional day.
I will miss Princess Nom Nom for the rest of my life. Thank you for letting me share her with you all of these years. Its nice to not be alone in missing her.
We really spent nearly 2 decades just her and I surviving the world
My taxi person who I adore just called me to check if I was okay cause I had to cancel therapy today, my therapist is sick.
It made me feel kind of important for a second there :)
Despite it being a very busy election time,
@sarah4ilam
my local MP and a very wonderful ally to the Disabled community. Made time to stop by and Talk disability and health.
Thank you Sarah! Lets keep making the world better, no matter what the election results are!
I know this is a big ask. But yesterday was my birthday.
Please do not let them isolate me from the community.
I can keep fighting for my disabled and higher needs friends. I love them.
But I cant face the hate towards my right to exist.
I just did something very incredibly brave... Someone had power over me with something can I took it away. Complicated situation... Can't get into it.
But I was brave and I wanted to share that part.
Dear 2020 Voters - When voting this year remember to not just vote for you. Remember that when you vote you can affect the world for the most vulnerable. Remember those with disabilities, those in poverty, those struggling.
Your vote can make a healthier world for everyone :)
I have a "friend" at the library, she is the girl working in the cafe. She slipped a plate/dropped things today and started crying. I went after her in my chair and gave her a "you got this" talk and about anxiety etc.
She said thank you, and I feel I did something good today.
I was right. There was something wrong, the pressure difference in my head on each side of the granulations was significant, a difference of 12.
All the head pain, eye pain, pulsatile tinnitus, has a physical cause.
The report will have treatment options
What I did and what I shared today… It was hard. But I did it. I just want the world better for those who come next.
Love you all. Need some quiet for a bit.
My friend and I were talking on skype when her 4 year old comes up and says I HAVE BIG NEWS. we ask what it is... She tells us she is marrying the fridge because it always has what she wants....
Just to update everyone.
It turns out the incredibly bad pain I was going through was one of the drains being blocked, we removed that drain and now I have a sore oozing stuff…. Gross!
But pain is now down to a nice manageable level. And I am way more comfortable.
Love you
Today I am doing something that has taken years to get to. I am having my ACC Sensitive claim assessment. What happened to me was wrong. It was not my fault. But I must be honest how it affected me.
I must be brave.
For those wondering why I am quiet and might be for a few days. Tomorrow is the anniversary of the Christchurch 2011 quake.
It was a very scary time for me. House exploded with me inside... A lot of other bad things happened also.
It was a bad time.
My whole life is going to change soon. And I hope you all will go through that change with me. I hope no one will judge me and you will still all see me as me.
Please.
This is my care worker cleaning my windows... She doesn't have to do that... But she wants me living in a nice house and in dignity :(
A bit emotional this morning. Always get teary when someone who is paid to be here cares beyond what there paid to do.
I guess I am saying... for 16 years this lady kept me alive, she gave me someone to love... and gave me love in return... this lady with no obligation to me helped me grow and become me.
Tonight she will meet a bunch of my closest friends. and I hope they like her too.
Today after doing my talk I realized I have become far better at conversations than I ever thought I would. Gosh I am so happy. I am faster at thinking of my words and saying them. I think I am at the regular speed others talk now
Today is Christmas day. If you have a child or adult with Autism around, remember that the change in routine, noise levels, comfort, new things in their space etc, might be a bit to much.
Do not be mad at them, they are not ruining Christmas.
Just an update, Southern Cross has settled with the insurance claim for the part of the surgery they said they would cover.
Special love and thanks to
@AuntyFeeble
who supported me through that mess.
And all my friends who gave me love and kindness to get through it all.
Hey everyone. So a
@FoxyLustyGrover
Fairy Godmother update
A pair of shoes did come, orange ones with flowers! Another pair was ordered too, some neat Nikes that I should be able to put on and off myself.
This weekend I am travelling. I will be masking for my safety due to surgery soon. I would like to hope if any of you feel unwell that you will mask too.
You don't need a government/law/legislation to make you do the right thing.
Love Matty
Thank you all for allowing me to share this world with you. 10 years ago society was not ready for someone like me I think... I am glad its changing. Thank you all for being part of that change so I can be here.
Ccovid vaccine people just called me I told them I'm having trouble getting to the place and getting support etc and not comfortable going somewhere new... They said they will start doing home visits soon.
So... they took my details and will contact me when that rolls out.
I have decided to describe my energy levels using cats.
I have about 3 cats of energy and 2 of them are sleeping and one is waiting for food to appear.
So.. I am having a bit of a health scare at the moment.... I don't really wanna talk about it but.. just wondered if you all can send me sparkles. My dr appt is next week. Though this friday I am going to hospital for my sleep.
Just need lots of sparkles everything is okay.
I just wanted you all to know that meep mama tried to stay as long as she could okay.
Tonight's been a mix of anxiety and crying.
Sorry to anyone else who I make cry. I just... I am just sad and maybe broken.