Malu Profile Banner
Malu Profile
Malu

@Luisa00715528

922
Followers
1,081
Following
46
Media
2,140
Statuses

A PSSD patient trying to raise awareness for this life ruining condition, caused by SSRIs.

Germany
Joined May 2022
Don't wanna be here? Send us removal request.
Pinned Tweet
@Luisa00715528
Malu
11 months
It's beyond words how much I miss myself and everything about my life before taking an SSRI. I miss every emotion I had, I miss to laugh, I miss to cry, I miss to feel love, I miss to be intimate, I miss to be lovesick. I miss to have ups and downs. I miss to be alive. #PSSD
9
48
153
@Luisa00715528
Malu
6 months
With heavy heart, I have to announce that my friend Lena, who suffered from severe PSSD and damage from Benzos, ended her life. She wanted to live, but she couldn't go on without emotions, akathisia and hundreds other med induced symptoms. I will always remember her. 💔
Tweet media one
49
79
276
@Luisa00715528
Malu
2 years
A #PSSD friend and I are looking for volunteers for a Photograph campaign to raise awareness for this devastating iatrogenic syndrome. Our stories need to be heard from the outside world 🌍 Please reach out to me if you like to join ! #pssdisreal
Tweet media one
6
53
105
@Luisa00715528
Malu
6 months
Lena wanted to let the world know that PSSD and Benzo damage was the reason for her suicide. Her death is an absolute tragedy and was preventable if she had been given informed consent about the risk of SSRIS and Benzos. #PSSD
6
26
98
@Luisa00715528
Malu
8 months
Me: Could Sertraline change my personality? Doc: No, there is nothing to worry about. Here I am, years off (!) the medication and still have flattened emotions, no sexuality and cognitive impairments. My personality not only changed, it was erased completely. #PSSD
10
26
75
Healthy people have no idea how lucky they are to experience normal human emotions. I can't put into words how much I miss to feel like myself. Without emotions and sexuality I even don't feel like a human or woman anymore. All I want is feeling alive again. #PSSD #SSRI
6
23
67
@Luisa00715528
Malu
2 years
Today is Suicide Prevention Day🎗. Due to the immense reduction in quality of life caused by #PSSD , there is a high suicide rate in the community. With more research and a prospect of a future treatment option, such fates could be prevented. Please spread the word and help us! 🙏
Tweet media one
6
33
66
@Luisa00715528
Malu
2 years
(1/2) Please be aware of the risk to end up with Post SSRI Sexual Dysfunction after the use of a SSRI #antidepressant . Next to the persistent loss of one's sexuality, which is very distressing itself, patients suffer from severe emotional blunting. This can be life ruining.
Tweet media one
5
36
64
@Luisa00715528
Malu
8 months
It's totally absurd. I took an SSRI because I had PMS and felt too emotional. And now I am begging to get my feelings back every second of my day. For more than 2 years. Never thought it's possible to lose one's emotions for life. #PSSD #HSP #psychiatry
3
18
60
@Luisa00715528
Malu
8 months
Imagine you permanently lose your ability to be intimate and feel love. Imagine you permanently lose your ability to feel emotions. Imagine these symptoms are caused by an "safe and effective medication " and doctors don't believe you. This is the reality for #PSSD patients.
2
16
55
@Luisa00715528
Malu
8 months
I often think of David Stofkooper, one of the PSSD patients who ended his life because of persisting severe anhedonia and emotional numbness caused by Sertraline. His story hits close to home as I suffer from the exact same symptoms + genital numbness.
4
21
55
@Luisa00715528
Malu
2 years
Another submission by a #PSSD sufferer to the photo campaign of @PSSDNetwork . Antidepressants like SSRI's or SNR's can cause persistent side effects like genital numbness. Actually this is no side effect, it's bodily harm. Please help and spread the word. #MentalHealthAwareness
Tweet media one
4
31
59
A rapidly growing number of people end up with serious medical complications after cessation of SSRIs. The #PSSD community asks departments of neurology, psychiatry, gynecology, and urology for help.
Tweet media one
3
25
50
@Luisa00715528
Malu
8 months
Today is my birthday. I miss feeling the excitement and nostalgia I used to feel on this special day. But I am still stuck with PSSD and traumatized that my emotions and sexuality didn't come back after coming off an antidepressant years ago. All I wish is coming back to life.
Tweet media one
8
9
49
@Luisa00715528
Malu
8 months
@PSSDNetwork @guardian @DrDavidACox @ROSIE_PSSD @DrDavidHealy @abcsoka @RMelcangi As a PSSD patient, it's amazing to see that more public awareness is increasing! One thing that wasn't mentioned in the article is that PSSD is often accompanied by emotional flattening & cognitive impairments which can be even more life ruining than the loss of sexuality alone.
3
6
48
@Luisa00715528
Malu
2 years
(1/3) Hello! My story is on tik tok now. I still can't believe that my life has stopped in 2021 since taking a #SSRI for PMS symptoms. If I had been informed about the risk of #PSSD , I would have never taken the medication. I am here to raise awareness.
3
16
47
@Luisa00715528
Malu
2 years
Another photo of the photo campaign of the @PSSDNetwork . We need to cover this medical emergency and give #PSSD a face. It's long overdue. To be part of the change, visit the network's website and upload your photo there. #ssri #depression #sexuality
Tweet media one
1
24
44
#PSSD means seeing the colors of the world but not feeling them. Life is right in front of me, but I can't perceive it. I am not part of my own life and exist behind a fence. Without emotions and sexuality, there is no life. I am feeling dead, no matter how hard I try. #SSRI
Tweet media one
3
23
53
@Luisa00715528
Malu
9 months
My ex boyfriend has a new gf. I am not only grieving this past relationship, but also the fact that I will most likely never experience a loving and sexual connection again. An SSRI has rendered me neurologically incapable of feeling these precious aspects of human life. #PSSD
6
16
40
@Luisa00715528
Malu
10 months
This can be the permanent result of taking an antidepressant. #SSRIs can destroy one's emotional range and sexuality for life. This is #PSSD
Tweet media one
4
38
65
@Luisa00715528
Malu
9 months
@freyaindiaa Thanks a lot for talking about Post SSRI Sexual Dysfunction, @freyaindiaa ! Everybody who is considering to take an antidepressant should know of the risk to lose one's sexuality and emotions permanently after stopping the medication. More about PSSD here:
0
11
39
@Luisa00715528
Malu
8 months
Since I have lost my emotions and sexuality after taking an antidepressant for PMS, I have lost my ability to connect with others. Our ability to connect is one of the most fundamental aspects of being human. #PSSD is beyond inhumane and torture. #psychiatry #ssri #snri
7
14
42
@Luisa00715528
Malu
7 months
Getting permanently castrated and emotionally numb from an "safe and effective" medication is one of these things. #PSSD #SSRI #Psychiatry
Tweet media one
2
20
40
@Luisa00715528
Malu
9 months
When you get PSSD you realise that you only have one life, one body, one brain. All of it got completely ruined by one decision. Going to a doctor and taking an "completely safe" medication. #InformedConsent #Psychiatry #SSRI
@Riggwelter_PSSD
Lauren Siân Taylor
9 months
When you develop #PSSD , you're almost frozen at that point in time. I've been in this state for 14 months now and every single day I'm in total disbelief at how my life turned out. One decision has led to catastrophic consequences. When you have PSSD you truly realise how fragile
7
16
49
2
15
39
It is good to see that @Gerd_Gruender , Professor of Psychiatry in Germany, speaks publicly about #PSSD in this video. We appreciate that he classifies SSRI induced PSSD as a (serious medical) complication rather than a side effect. @PSSD_Germany
3
23
40
@Luisa00715528
Malu
11 months
SSRI'S can numb your emotions for life. Doctors should inform their patients about that risk. #PSSD #InformedConsent #psychiatry #neurology
@CatholicAwesome
Catholic Supremacist (Not a man)
11 months
I feel like before they put people on SSRIs they should ask “Are you okay with possibly never being able to cry again?” I can’t describe how awful it is to not be able to just cry when you need to and I haven’t taken that crap in over three years.
12
16
122
1
13
39
@Luisa00715528
Malu
7 months
All I want is feeling emotions and having my sexuality back. I just wish for an ordinary life with ups and downs and not being stuck with #PSSD .
1
14
35
@Luisa00715528
Malu
8 months
Another impression from r/PSSD. This person felt deep depression before getting PSSD, which was more bearable than feeling nothing at all.
Tweet media one
2
15
36
@Luisa00715528
Malu
9 months
This is #PSSD . Antidepressants can deprive you of all your emotions and sexuality for life (yes, after stopping). This is a violation of human rights. We were not warned about this possible catastrophic outcome. Please help to make this scandal public. 📢 #InformedConsent #SSRI
4
16
34
@Luisa00715528
Malu
9 months
How is it legal that there is no warning an SSRI can numb emotions and genitals for life? @US_FD Docs told me these medications are perfectly safe. I haven't touched any psych med for almost 2 years and I still have no sexuality and almost no emotions. #PSSD #psychiatry
2
7
30
@Luisa00715528
Malu
6 months
Same here. In addition to the severe sexual dysfunction and emotional numbness I am suffering from since stopping an antidepressant years ago, my periods are light and irregular. Thanks to an SSRI my dream of becoming a mother got destroyed. #PSSD #awareness
@tct88
TC
6 months
@NicoleShanahan I’ll never be able to have children thanks to an SSRI giving me permanent sexual dysfunction ( #PSSD )
2
6
20
3
9
31
@Luisa00715528
Malu
6 months
Same here. I never thought that taking an SSRI would permanently ruin my life. #PSSD
@Riggwelter_PSSD
Lauren Siân Taylor
6 months
I never thought a five minute visit to the GP would cost me my health.
2
9
51
1
8
33
@Luisa00715528
Malu
8 months
I've been living in such agony since my soul, my emotions and sexuality got completely wiped out by an officially approved drug, which I took for PMS. I am a fighter, never gave up and always looked for solutions. But after 2 years of #PSSD I am at my end. This is no life.
3
7
32
@Luisa00715528
Malu
2 years
I agree. Sex and being intimate with someone was always very important to me as a woman and it's still. But I lost my sexual functioning and my deep emotions since taking #Zoloft for PMS for 3 months in 2021. I can't put into words how large my grief about this loss is. #PSSD
@ISSM_INFO
ISSM
2 years
Tweet media one
3
4
19
1
12
33
It's time that medical regulators wake up and step in 🚨 Do your job and inform patients and doctors that SSRIs can permanently harm people‼️ @bfarm_de @EMA_News @US_FDA @FDArecalls
A rapidly growing number of people end up with serious medical complications after cessation of SSRIs. The #PSSD community asks departments of neurology, psychiatry, gynecology, and urology for help.
Tweet media one
3
25
50
1
17
33
@Luisa00715528
Malu
6 months
An SSRI is the medication Aya is talking about. She wasn't warned that she could permanently lose her emotions and sexuality from taking it. We urgently need awareness for #PSSD .
@ayaalaanaser
Aya alaa
6 months
I never imagined I'd end up a disabled zombie in my twenties because of a supposedly safe and effective medication prescribed by a trusted doctor. Psychiatry stripped away my humanity and left me to suffer in a never ending state of torture. They took away my life.
1
14
58
0
14
33
@Luisa00715528
Malu
8 months
#PSSD is one of these things.
@myfight2beheard
Julie
8 months
Tweet media one
1
6
21
1
11
32
@Luisa00715528
Malu
9 months
Today is my brother's birthday. I forced myself to go to the party but I couldn't celebrate him as I did before taking an antidepressant for PMS and ending up with #PSSD . I have lost my emotions and he has lost his sister two years ago. #informedconsent #psychiatry #ssri
2
12
31
For everyone who is considering to take a #SSRI , please be aware that this can be the outcome. Your doctor will most likely not inform you about the possibility to end up with permanent #PSSD after stopping the medication. 👇 #psychiatry #zoloft #prozac #neuroscience
Tweet media one
1
25
32
@Luisa00715528
Malu
9 months
This is the most traumatic thing I have ever experienced. Losing my personality, my soul and feelings for the world and my own life permanently. How can an officially approved drug make you permanently numb on every level of your body system? It's cruel. @US_FDA @EMA_News
4
10
31
@Luisa00715528
Malu
7 months
Deep friendships, a loving partnership, sex, travelling the world, dancing, nature, exercising, music and good food used to be the things which made me happy. Since I have lost my emotions by a medication I took years ago, all of these things give me nothing anymore. #PSSD
1
10
31
@Luisa00715528
Malu
8 months
The brain is the most complex organ of the body. Science even doesn't know which biological mechanism causes depression or emotions. To mess with it (without informed consent about risks!) with fake chemicals is the most irresponsible thing docs can do. #PSSD #MedTwitter #SSRI
3
7
28
"There was nothing more traumatic in my life than losing the sexuality that had always grown with me. I can no longer feel excitement or pleasure. I did not receive honest information on the harms or informed consent." (1/2)
1
15
32
Tweet media one
1
16
31
@Luisa00715528
Malu
8 months
It's 2024 and there is still no individualised medicine. To realise that, we need experts listening to patients and their individual story. We need doctors who listen to patients who were harmed by their medications to make medical prescriptions safer. #PSSD @drpraveenpsy
@ROSIE_PSSD
rosie
8 months
Why am I being blocked? Is the truth threatening to you or something?
Tweet media one
7
8
54
1
6
29
@Luisa00715528
Malu
8 months
@justin_garson I 100% agree with you. The most catastrophic outcome of SSRIs is that the sexual side effects and emotional numbing can persist indefinitely after stopping the medication. This has happened to me at the age of 26. PSSD has devasted my life for 2,5 years.
2
2
29
@Luisa00715528
Malu
8 months
I would do everything to FEEL again. #PSSD
@MoralMedicine
Moral Medicine
8 months
Emotions are the gateway to the soul. They’re what it means to be human. What these sufferers would give just to feel human again…
1
4
10
0
9
29
@JDaviesPhD That antidepressants can cause persistent sexual dysfunction and emotional numbness after stopping the medication. This condition can persist for life. We urgently need more research about #PSSD .
0
3
28
@Luisa00715528
Malu
8 months
PSSD can be much more than sexual dysfunction! #emotionalblunting
@PieAreSqwared
Loading...
8 months
@IronBlake1 Appreciate it mate. The numbness isn’t even the worst part, it’s being so emotionally numb that when you hug your own mother it’s no different to hugging a tree. You look at your loved one and it’s just as exciting as looking at a mannequin. You just feel absolutely nothing.
0
1
10
0
5
27
Suffering from #PSSD is: Seeing the beauty of the world and everything you could enjoy, but you can't. Your brain just doesn't produce an emotional response anymore.
2
9
27
@Luisa00715528
Malu
9 months
Since suffering from PSSD I have irregular and very light periods. Before being harmed by an antidepressant my menstruation was always on time and normal. I wonder if the medication made me infertile since studies found out that SSRI'S affect sex steroids.
3
11
24
@Luisa00715528
Malu
2 years
(1/2) Hello world! Here is an update regarding the photo campaign of the #pssd network. A full writeup, with instructions and where to upload your photo can be found on the following page: Let's raise our voices! 📢
Tweet media one
3
16
25
@Luisa00715528
Malu
9 months
This is #PSSD , a persisting condition after stopping an SRI antidepressant. These medications can ruin one's emotional depth and sexuality for life. I wish I was informed about that before ending up in this catastrophic state. #psychiatry #ssri #snri #MedTwitter #GP
@kaneki24222
Ken PSSD (22 years old)
9 months
@ROSIE_PSSD The pain is indescribable. Cannot feel love for my family, friends or pets. I go for walks and cannot feel the sun on my skin. No excitement, no pleasure. Just a deep, unwavering emptiness. What is life when it can’t be lived :(
0
9
30
1
9
26
@Luisa00715528
Malu
11 months
Suffering from #PSSD and severe emotional blunting means you lose everything a human being lives for. When you lose your emotions and sexuality you lose the ability to feel any kind of pleasure, happiness or human connection. #PSSD is much more than numb genitals.
Tweet media one
2
12
28
@Luisa00715528
Malu
8 months
@PieAreSqwared I used to think that I would never be suicidal myself as I always had a deep trust and that there always will be ways to handle challenges of life. But with PSSD and severe emotional numbness I can't find any way to live. It's absolutely impossible, so suicide became an option.
2
6
27
@Luisa00715528
Malu
7 months
I feel the same. How is it possible that an officially approved and commonly prescribed medication can numb out emotions permanently long after stopping taking it? There was no informed consent. #SSRI #PSSD
3
8
26
@Luisa00715528
Malu
8 months
My friends travel the world, go to festivals, start their careers and plan families with their partners. Meanwhile I am stuck with #PSSD . Permanently castrated and emotionally flattened after taking an antidepressant for few months, years ago.
2
10
27
@Luisa00715528
Malu
9 months
Hey fellow #PSSD sufferers, I just want to inform you that I got tested positive for Small Fiber Neuropathy after doing an QST diagnostic in a german university hospital. More can be found in this post on reddit.
2
11
23
@Luisa00715528
Malu
11 months
@morg60730332 Yes, it's traumatizing every single day. Therapy, exercise, healthy diet, seeing friends and family, petting my dog give me no relief. It just feels like my whole nervous system is shut down and that it does not react to anything what I am doing or what's happening around me.
3
8
29
How can I move on when I have lost my potential love of my life, feelings for my family, enjoyment of hobbies, pleasure and even the ability to feel negative emotions due to #PSSD ? My life is meaningless and flat since suffering from this surreal understudied condition.
1
8
26
@Luisa00715528
Malu
2 years
I can confirm that. I used to be high sensitive, empathetic and very emotional. I've lost all of those qualities while taking Zoloft. And horribly they didn't come back after I stopped the med #PSSD
@benzosarebad
Fiona French, freedom is bliss
2 years
I wonder how many people on antidepressants are actually aware of their lack of empathy and inability to connect with others? It can be very subtle, may be seen as symptoms of their "illness".
1
4
16
2
11
27
@tc88tt I agree. It's devastating how our lives got ruined after trusting experts saying 'ssri's are perfectly safe'. Losing my emotions, my soul my personality and sexuality is such a trauma and makes living impossible. I don't know how much longer I can hold on. It's tough. #pssd
2
3
27
@Luisa00715528
Malu
11 months
This is what can happen after taking an #SSRI . It's called #PSSD .
@PieAreSqwared
Loading...
11 months
@AbudBakri @WillPSSD I am one of them. 26 and left with numb genitalia, anorgasmia, and completely blunted emotions following Citalopram. There is no help for us, I should be enjoying myself at this age, not walking around like a lifeless corpse.
1
8
26
1
9
25
@Luisa00715528
Malu
11 months
To all my fellow #PSSD sufferers, other iatrogenic harmed ones and everyone else who stumbles upon this post. Have a peaceful moment watching this reindeer under the Northern Lights. I hope there will be a bright future so we can live our lives to fullest. Goodnight. 🤍
@buitengebieden
Buitengebieden
11 months
Reindeer under the Northern Lights..
956
20K
156K
2
3
25
@Luisa00715528
Malu
9 months
PSSD is beyond words cruel. Healthy people can't imagine how horrific this human made condition is. Without chemical interruption of the brain chemistry, this wasn't possible. #SSRI
@ayaalaanaser
Aya alaa
9 months
I just can't believe that humans get to have their emotions, sexuality and memories stay throughout their life and i just lost them only at 23. Where should i go now my life ended so early. I am forced to consciously watch everything that once made me human without reaching it.
9
18
66
1
8
24
@Luisa00715528
Malu
11 months
This is #PSSD with emotional blunting. It's inhumane and not comparable to depression, trauma, anxiety or anything else. Our emotions do not fluctuate at all because the blunting is caused by the medication. No amount of speech therapy, exercise, healthy diet, friends etc. help.
@PSSD_sufferer
PSSD sufferer | I regret taking antidepressants
11 months
@LTaylor85471 Exactly, I wake up every day and I still have #PSSD . I can’t feel my emotions. I can’t feel sexual desire. I can’t enjoy anything because of the anhedonia that’s always present, no matter what I do. There is no relief. I feel no bond to other people. I never wake up normal.
3
5
20
3
12
26
@Luisa00715528
Malu
9 months
People who don't have sexual side effects (or emotional blunting) ON an #SSRI still have the risk to develop permanent #PSSD . Symptoms like genital numbness and libido loss can also start after stopping the medication and never go away.
Tweet media one
1
7
23
@WillPSSD I am also still in disbelief something like this can happen from an officially approved medication, which is described as "perfectly safe with almost no side effects". I never thought that a 5 minute consultation with a doc would destroy everything which made me feel alive.
2
7
24
@Luisa00715528
Malu
9 months
PSSD is a devastating and life altering condition. It should be investigated as a chronic systemic illness where patients are treated just as others. The fact that the symptoms are caused by an SSRI shouldn't influence how we are cared for. This needs to CHANGE! #MedTwitter
3
11
24
@Luisa00715528
Malu
11 months
For everyone who is considering to take an SSRI / antidepressant. Please be aware that you can end up loosing your entire emotions and sexuality for life. Unfortunately #PSSD is underrecognized, so your doctor most likely won't inform you about that risk. #psychiatry #neurology
@tct88
TC
1 year
#PSSD is more than a side effect; it's a life-altering nightmare. Relationships shattered, loss of emotions to the point where we can no longer function. These medications are capable of doing this, leaving you without a backup plan as there are no treatments either. #Awareness
1
31
61
0
11
24
@Luisa00715528
Malu
2 years
@s_debadrita1709 Hi, most of the #PSSD patients get gaslighted by the medical system as there is no recognition for this devastating condition. Doctors often don't believe that antidepressants can cause persistent sexual and emotional impairment. If you are interested, please reach out :)
1
7
24
@Luisa00715528
Malu
7 months
Missing one's depression and anxiety shows how devastating medication induced emotional numbness can be. Prescribers of psych drugs should have this risk in mind inform their patients about #PSSD . #SSRI #SNRI #Sertraline #Prozac #MedTwitter #Psychiatry
4
7
22
This can happen after taking SSRIs or finasteride. #PSSD and #PFS can be so much more than sexual dysfunction. These medications can cause that patients lose their ability to feel any kind of emotion or pleasure for life. 🚨
1
13
24
@Luisa00715528
Malu
9 months
This can happen after taking antidepressant. You can end up with #PSSD .
@ayaalaanaser
Aya alaa
9 months
I just can't believe that humans get to have their emotions, sexuality and memories stay throughout their life and i just lost them only at 23. Where should i go now my life ended so early. I am forced to consciously watch everything that once made me human without reaching it.
9
18
66
4
9
23
@Luisa00715528
Malu
8 months
@PSSDNetwork Thanks a lot to everyone who is brave to show their face and speaks publicly about #PSSD . I am glad to see that this video covers also the emotional numbness as PSSD can be so much more than the loss of sexuality. The emotional symptoms ruin every aspect of my life.
1
5
23
@Luisa00715528
Malu
2 years
As Emily says, #PSSD sufferers need medical attention. However, due to the lack of recognition and research for this devastating iatrogenic syndrome, no medical help can be found. That has to change as soon as possible. 🥼🧬 @bfarm_de @mpi_mr_hd #SSRI
1
8
22
What is life without feeling things? I wish this was just a philosophical question, but for me, since suffering from severe PSSD, it's reality. Even though I haven't taken any psych drugs for 1.5 years, my feelings and genitals are still numb. #psychiatry #ssri #neuroscience
0
8
23
@Luisa00715528
Malu
11 months
This is #PSSD with severe emotional blunting. For healthy people it's very hard to understand how it feels like. Before I took an SSRI for PMS, I didn't know this total inhuman and surreal state myself. The worst is that it most likely persists for life. Medical help is needed!
@PSSD_sufferer
PSSD sufferer | I regret taking antidepressants
11 months
@PieAreSqwared I can not even enjoy things like food or exercise anymore. It is like the reward system is no longer functional. I feel no connection or joy when being with friends or with my family. I can not feel that nice feeling after sleeping or after a shower. I have lost all of my hobbies
0
5
13
1
9
21
@Luisa00715528
Malu
11 months
For everyone who is considering to take an antidepressant, please be aware that they can make you lose your libido and genital sensitivity for life. Your doctor most likely won't inform you about the risk of #PSSD . #SSRI #Zoloft #Citalopram #Prozac #psychiatry
@PSSD_sufferer
PSSD sufferer | I regret taking antidepressants
11 months
Alison, 27: ”I’ve come off the pills but my sex drive isn’t back” ”I wasn’t on them for that long - about six months altogether - but I feel like they have had a long-lasting effect on my libido. I still don’t have it back.” #antidepressants #sertraline #venlafaxine
2
9
14
1
6
19
@Luisa00715528
Malu
2 years
(2/2) EVERYBODY is asked to retweet and make this go viral. 📢 We need public awareness and more research about the prevalence, etiology and therapy options for PSSD. More information can be found here: #SSRI #InformedConsent #psychiatry #mentalhealth
0
15
22
@Luisa00715528
Malu
8 months
@DrEvans_Health Doctors don't warn their patients about the risk to lose one's sexuality and emotions for life after stopping an SSRI. Every PSSD patient wish they knew before about this catastrophic potential outcome. That's why I try to inform others.
3
5
21
@Luisa00715528
Malu
10 months
It's the same for me. I used to love the warm and loving atmosphere of christmas. This year is the third time I can't feel this magic anymore. All I want for christmas is getting my emotions and sexuality back. 🎅 #PSSD #SSRI
@PSSD_sufferer
PSSD sufferer | I regret taking antidepressants
10 months
Merry Christmas. I can’t even tell it’s Christmas because of the emotional numbness and there’s no atmosphere. Every day feels the same. I can’t feel anything for my family. I can’t look forward to the Christmas presents. I can’t feel warm, fuzzy feelings like love or happiness.
Tweet media one
5
9
33
2
7
18
@AliBeckZeck Exactly this happened to me. I got prescribed Zoloft for PMS symptoms. Then I ended up with #PSSD , got devastated about the permanent loss of my sexuality. Doctors didn't believe me, told me it can't be from the medication, pushed me to take more and now everything is even worse.
1
7
19
@Luisa00715528
Malu
8 months
@DrEvans_Health I never saw a post telling you that you are harmed. All we do is trying to inform other patients about the risk to end up with PSSD. And I don't want to worry you, but you can also develop PSSD symptoms AFTER stopping the medication.
3
1
19
@Luisa00715528
Malu
9 months
Valentines is just another aspect of life PSSD patients miss out. Due to officially approved antidepressants we stopped taking, we got deprived of our entire sexuality. Permanently. If you see this, please be our Valentine and interact with this to help raising awareness. 💐
1
5
20
@Luisa00715528
Malu
2 years
Thanks to all psychiatrists, who are open to educate themselves about Post SSRI Sexual Dysfunction before saying 'it's impossible that you still suffer from g€nital numbness, the medication is out of your body for months. It's all in your head.' #Zoloft #PSSD #Psychiatry
@JamesMelville
James Melville 🚜
2 years
Absolutely this.
Tweet media one
39
344
2K
0
6
18
@Luisa00715528
Malu
8 months
@ROSIE_PSSD I am the same, Rosie. I am trying everything to get better (healthy diet, exercise, social contacts etc.) and being optimistic. But since my reward system and sexuality seem to be shut off neurologically, it's hard to believe in a brighter future.
1
2
20
@Luisa00715528
Malu
8 months
@LifeInSalt Same here with 28. I never thought it was possible to be stuck in a state where I don't live but don't die. Living with almost no emotions and sexuality is as cruel as choosing suicide.
0
4
19
@Luisa00715528
Malu
7 months
THIS can be the outcome of taking an SSRI. #MedTwitter #psychiatry #mentalhealth #sertraline
0
7
19
@Luisa00715528
Malu
8 months
@DrDavidACox is right. PSSD patients are confronted with the same medical gaslighting as ME/CFS sufferers. This @guardianscie article will help warn thousands about the damage #SSRI medication can cause. Thank you so much!
@DrDavidACox
Dr David Cox
8 months
I've covered #mecfs for many years and until the #LongCovid crisis, it was too often a similar story - patients being told that their symptoms weren't real, being neglected, ignored and often gaslit when they tried to get help
3
12
92
2
8
19
SSRI'S can not only numb your genitals permanently, they can also blunt your emotions and leave you behind with no personality after stopping the medication. This can persist for life. #PSSD can be so much more than losing one's sexuality.
Tweet media one
0
8
20
@Luisa00715528
Malu
9 months
@markhoro @ConversationEDU ..and sometimes this numbing effect persists permanently after stopping the medication. I still suffer from emotional and genital anesthesia, libido loss, numb skin and cognitive impairments. I haven't taken any psychiatric drugs for 2 years. #PSSD
3
4
19
@Luisa00715528
Malu
8 months
@robwipond Rob, thank you so much for talking about PSSD. I am not exagerating when saying that PSSD ruined my life. I used to be a sensitive girl, full of life, until I completely lost all of my emotions and sexuality permanently after taking an antidepressant for PMS years ago.
3
1
17
@Luisa00715528
Malu
10 months
This is #PSSD .
1
7
17
@PsychToday Thanks for this article! PSSD is a devastating medical condition which urgently needs more research. Thousands of people all over the world are suffering from this and there is no cure. More information can be found here: @PSSDNetwork
0
4
18
@PSSDSimon @PSSDCanada Unfortunately I can relate to these words to 100%. I had this realisation not only once in the beginning after stopping the medication, I experience this shocking moment several times per day, especially after waking up. PSSD is a sureal constant nightmare with no end in sight.
1
8
19
@Luisa00715528
Malu
7 months
@_roseyesha I guess it was posted in r/Psychiatry. This subreddit has deleted many posts about PSSD in the past. Beside that they do not allow patients to speak about their experience and "Antipsychiatry" posts. This basically means they only want to hear about benefits from psych drugs.
Tweet media one
4
2
17
@Luisa00715528
Malu
8 months
@NMacFa I would be interested to hear how severe cases who lost their entire emotional range and sexuality permanently by taking a "safe and effective" medication years ago, should be optimistic? Especially because #PSSD is multisystemic, complex and underresearched.
3
0
16
@Luisa00715528
Malu
7 months
I couldn't have described it better what it's like to live with emotional numbness and PSSD. More impressions about how life ruining this medication induced disease is, can be found here:
Tweet media one
4
8
18