Konstantinos Lontos Profile
Konstantinos Lontos

@KonLontos

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Blood cancer doc. Alumni @uoaofficial (MD) @PittTweet (PhD, IM/HemOnc) @MDAndersonNews (BMT & CT). Opinions of my own not my employer’s. Rude=block.

Joined June 2022
Don't wanna be here? Send us removal request.
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@KonLontos
Konstantinos Lontos
2 months
I am a hematologist but don’t tweet much about hematology because there are other great people that do. I tweet about issues that need more attention: unchecked pandemic that still causes daily new disabilities/post-viral syndromes and medication safety
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@KonLontos
Konstantinos Lontos
2 months
Hey @ashishkjha my cancer patients will be wearing masks in public whether you think it is “fringe” or not. It is their RIGHT to protect their health. But thanks for stigmatizing them and putting them at risk for hate violence. #YallMasking let’s blow this up
@luckytran
Dr. Lucky Tran
2 months
By calling masks "fringe" Jha is contributing to stigmatization of an effective public health tool so that he can punch left and right in order to further his personal centrist political views. It is completely wrong to put your own politics above public health like this.
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@KonLontos
Konstantinos Lontos
4 months
The @GOP in North Carolina is trying to rescind the health exemption for public mask wearing. In other words, all of my chemo patients that wear masks with crowds to protect themselves could be arrested for protecting themselves! What on earth are you thinking?
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@KonLontos
Konstantinos Lontos
9 months
@ronawang @SalvMattera this action is likely illegal
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@KonLontos
Konstantinos Lontos
13 days
Reminder that the only vaccine that has shown data on this variant is Novavax and they look very good
@EricTopol
Eric Topol
13 days
New CDC #SARSCoV2 genomics The KP.3.1.1 variant continues its rise to dominance in the US, accounting for largest fraction of new Covid cases, and a driving force for the current wave
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@KonLontos
Konstantinos Lontos
2 months
#YallMasking Like our brain depends on it :) Why let a virus cut quality of life years from you?
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@KonLontos
Konstantinos Lontos
1 month
It is a common joke among providers that patients say “I did my research”. It is not a joke for me. I invite it. Do your research, bring your questions
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@KonLontos
Konstantinos Lontos
5 months
@AdeAdamson @adamcifu What about vulnerable people that wanted to attend? You are outraged about the regular people being cold but not about vulnerable people catching covid.
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@KonLontos
Konstantinos Lontos
18 days
It blows my mind that olympic athletes spent 4 years training for this moment and their team didn’t think to protect them with high-quality masks just before the actual competition.
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@KonLontos
Konstantinos Lontos
5 months
I am a doctor and I endorse this message
@NicoReznick
Nico Reznick 🏳️‍🌈🏳️‍⚧️🇪🇺🌍
5 months
If you live with a rare disease, then you probably ARE more qualified to speak about it than a doctor who maybe spent one afternoon in med school learning about the condition you experience every day and have likely researched far more extensively and diligently than they have.
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@KonLontos
Konstantinos Lontos
2 months
I am so tired of providers not discussing the risks of medications/interventions because patients “might get scared”. It is THEIR choice. Give them ALL the information
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@KonLontos
Konstantinos Lontos
11 months
@tessfalor Honestly, until I started reading about long covid I had never, in my entire 14 years of medical training, heard of MECFS. And most physicians don’t. But this is not the problem. The problem is that once they encounter something they don’t know, they do not educated themselves
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@KonLontos
Konstantinos Lontos
2 months
@ChrisAlvino my wife wanted to do it and I looked into the data. There was a sub 1% chance of keratectasia and infections and blah blah. Glasses are fine. No reason to risk your life over this
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@KonLontos
Konstantinos Lontos
5 months
@AdeAdamson @adamcifu in 2019 there was no airborne lethal virus. They could wear a N95 mask but even this can fail in a room full of people without proper ventilation. And how do they know if the maintenance guy ensured good ventilation? A big chunk of population has health issues
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@KonLontos
Konstantinos Lontos
5 months
@AdeAdamson @adamcifu Everyone has their own risk assessment and comfort. All I am saying is that we should not be outraged when a center accommodates vulnerable people compared to every other aspect of modern society that doesn't give a buck about them
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@KonLontos
Konstantinos Lontos
4 months
Hey @SenThomTillis @virginiafoxx @danbishopnc @PatrickMcHenry your hands OFF my patients! Just because you are fixated on protestors you are not going to jeopardize the health of vulnerable people
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@KonLontos
Konstantinos Lontos
1 month
I am part of a few physician support groups and it is interesting that every time someone asks about covid isolation 90% of the answers are “negative test” and not the unscientific @CDCgov guidelines. Hey @CDCDirector did you even ask the physicians or just the companies?
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@KonLontos
Konstantinos Lontos
26 days
If I was taught in medical school about #MECFS , I would have definitely chosen a career in academia researching it. When a disease has no treatments, there is a ton of space for contributions. Oncology on the other hand much harder to have a real impact as a researcher
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@KonLontos
Konstantinos Lontos
3 months
@tmprowell I tend to think that most people know the dangers but they cannot sustain the social stigma of being covid conscious
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@KonLontos
Konstantinos Lontos
4 months
@wonderartsy ridiculous. I always mask for my patients, no questions asked
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@KonLontos
Konstantinos Lontos
7 months
The only reason this woman died is that we failed to recognize #MyalgicEncephalomyelitis as the disease it is and fund it appropriately. The average physician out there thinks that chronic fatigue syndrome is another term for laziness
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@KonLontos
Konstantinos Lontos
22 days
@AJKayWriter Sure you do you. But please stay at home when sick. Other people might not be as privileged in their health and they would not fare well with the virus
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@KonLontos
Konstantinos Lontos
23 days
I actually do check this now. After I discovered how many more problems patients report compared to what literature captures, I go and check patient groups for every med I want to prescribe or take
@IT_Guru74
Kevin Kelly
23 days
My advice: Don’t go on any medication that has a Facebook Recovery group. (I wish that I was joking.)
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@KonLontos
Konstantinos Lontos
1 month
@dysclinic Unfortunately these diagnoses are not on the vocabulary of most physicians and so get missed frequently
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@KonLontos
Konstantinos Lontos
6 months
@CDCDirector You just made the world a less safe place for anybody with health issues, congrats
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@KonLontos
Konstantinos Lontos
1 month
Since I became aware of the undisclosed risks of psych meds, I have read so many heartbreaking stories. Thousands of lives ruined because 1) we didn’t taper the drugs correctly 2) we didn’t recognize side effects 3) we didn’t acknowledge protracted withdrawal Stop this madness
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@KonLontos
Konstantinos Lontos
21 days
@AJKayWriter Classic ableist person. Lock up all frail people so that I don’t bother thinking about getting somebody else sick
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@KonLontos
Konstantinos Lontos
5 months
@EM_RESUS we should not be using antidepressants for sleep
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@KonLontos
Konstantinos Lontos
2 months
It took 30 years and one of their own ( @markhoro ) to suffer through disabling withdrawals for Psychiatry to produce good deprescribing guidelines (The Maudsley Deprescribing guidelines). What does this say about how we listen to our patients?
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@KonLontos
Konstantinos Lontos
1 month
If I was a professional athlete right now my no1 priority would be not to catch covid. Even mild long covid can end your career.
@1goodtern
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1 month
"Hello everyone, unfortunately I have to announce today that I will not be able to take part in the Olympic Games in Paris. I suffer from a so-called post-infectious syndrome caused by a viral infection... the cause of this syndrome is unclear... in February of this year I
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@KonLontos
Konstantinos Lontos
13 days
For people that do not know what extremely severe ME/CFS looks like: some patients have such energy limitations that they cannot chew or swallow. When that happens usually they end up in the hospital. Unfortunately most providers do not know anything about this disease 1/3
@PaulRKeeble
Paul Keeble ME/LC
13 days
A poignant image created by Jornelia Paulsen (the ME shrinking world pictures are also hers IIRC) on the #MaeveInquest and imagining all the seats in the court room taken up by other ME patients as imagined by Dan Wyke.
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@KonLontos
Konstantinos Lontos
16 days
It is a common theme among patients with chronic illness that friends exit their lives. It goes to show that most friendships in our society are superficial and based on gains - networking, having fun etc
@daringshift
daringshift
16 days
In 2017, my best friend said I'd become a shell of my old self and ended our friendship. Everyone else followed suite. Just one friend continued to check in on me, even though she was busy starting a family. She is my most cherished friend, and also my only friend. 2/
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@KonLontos
Konstantinos Lontos
4 months
@EricTopol not surprised. I am wondering how the world will look as infections continue to happen
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@KonLontos
Konstantinos Lontos
21 days
300k people trying to help each other because we do not support them adequately
@psychharm
Daniel Owens
21 days
Antidepressant withdrawal and online support We keep getting told that psychiatrists have never seen antidepressant withdrawal or that it is at best minimal. Online tells a different story. There are currently over 100,000 people in Facebook support groups desperately trying
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@KonLontos
Konstantinos Lontos
17 days
I was discussing with a young woman that was raped in the past and has been tapering first benzo and then mirtazapine over the last 4 years. She told me “I would prefer to get raped again than having to taper these drugs”. It gives you an idea of how awful this experience can be
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@KonLontos
Konstantinos Lontos
1 month
I do believe that there is a use for psych drugs. However, most of them have a small benefit and tremendous risks. Patients need informed of this and this doesn’t happen in 15 min appointments. Furthermore, most providers are not aware of how severe these risks are. 1/2
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@KonLontos
Konstantinos Lontos
17 days
@pan_accindex @UCSFMedicine @UCSF honestly @UCSFMedicine how much more of this? I get that he has different opinions, but targeted harassment?
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@KonLontos
Konstantinos Lontos
2 months
Hey @Lufthansa_USA your flight #LH429 had CO2 readings in the 2000s ppm throughout this long flight which increases the infection chance many fold. Why don’t you have clean air in your aircraft? You don’t want to keep your staff and passengers healthy?
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@KonLontos
Konstantinos Lontos
1 month
If someone understands why @US_FDA approved a medication that increased 6-fold the suicidality in CHILDREN please let me know because I do NOT get it. At all.
@chrisaikenmd
Chris Aiken, MD
1 month
Last year, escitalopram (Lexapro) joined duloxetine as the two #antidepressants with @US_FDA approval in childhood generalized #anxiety disorder. Here's the trial that was based on (note suicidality higher on med, 9.5 vs 1.5%): #psychiatry #mentalhealth
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@KonLontos
Konstantinos Lontos
6 months
@CDCDirector @HHSGov You cant improve long covid if you do not decrease covid cases - and for that you are actually worsening the situation. So much hypocrisy
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@KonLontos
Konstantinos Lontos
18 days
Once you learn the concept of protracted withdrawal you suddenly can solve a ton of medical “mysteries”
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@KonLontos
Konstantinos Lontos
4 months
This is correct. These drugs have the potential to devastate lives due to severe withdrawals and they only work 10-15% of the time for a short duration. Your body gets used to them fast. They need to be used only for severe cases and for a few months
@justin_garson
Justin Garson
4 months
I went to a talk earlier this week by two psychiatrists who joked that, if they told patients all the risks of SSRIs and how they scarcely outperform placebo, nobody would take them. My sense is this is pretty much an open secret among professionals.
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@KonLontos
Konstantinos Lontos
4 months
During all my years of training, I saw the common practice of prescribing atypical antipsychotics for the elderly hospitalized demented/agitated patient. Nobody ever mentioned that since 2005 there is a FDA black box warning to NOT do that until I discovered it myself
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@KonLontos
Konstantinos Lontos
5 months
@benyahr I always google or uptodate stuff because I want to make sure I am not forgetting or missing something. Be worried when they don’t do that
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@KonLontos
Konstantinos Lontos
3 months
@tmprowell Me neither but wait for it: what if prospective employers do not like your mask? What if your academic colleagues miss you at dinners? What if they label you as “crazy” or “hypochondriac”? The repercussions are often real
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@KonLontos
Konstantinos Lontos
30 days
@NohaAboelataMD remember the olympics that everyone had influenza??? you don’t? oh right it never happened
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@KonLontos
Konstantinos Lontos
5 months
@AdeAdamson @adamcifu Do you really think that patients not feeling safe anymore in the hospitals due to the mask policies is something to be proud about? I don't care about your definition of "reality". I care about what makes sense. And respecting vulnerable people makes sense to me.
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@KonLontos
Konstantinos Lontos
7 months
What is a difference between a patient and a child in California with COVID? The patient has to stay locked in the hospital room, watching people entering in full gear. The child on the other side can go to school after one day! Incredible #COVID19
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@KonLontos
Konstantinos Lontos
3 months
@AbraarKaran my first infection was a sore throat for three days. My second, I could not move from the bed for a week.
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@KonLontos
Konstantinos Lontos
5 months
@dysclinic same, I see a lot of patients that have not connected the dots with clots, strokes, fatigue etc
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@KonLontos
Konstantinos Lontos
2 months
Antidepressants can change their side effects over time. Just because your patient did not have any side effects for the first 6 months, it does not mean that new SE won’t arise later
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@KonLontos
Konstantinos Lontos
30 days
@BBCSport why on earth would you publish this?
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@KonLontos
Konstantinos Lontos
1 year
How many people need to get #longcovid for us to understand that the acute hospitalizations are not the major problem anymore?
@loscharlos
charlos
1 year
"Since August 2020, @PutrinoLab , director of rehabilitation innovation at Mount Sinai, has helped treat more than 3,000 people with #LongCovid ... [only] about 15% to 20% report full recovery."
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@KonLontos
Konstantinos Lontos
1 month
Let’s assume you are on the 3.5% of people that developed long covid despite vaccination. You lost your work and agonize over the well-being of your family. Then you open social media and you see professors minimizing the harm despite the data. How do you feel?
@adamcifu
Adam Cifu
1 month
I don't think MOST people need to be testing for COVID. But, since they are, I find it really interesting to watch the evolution of the clinical syndrome over the years. My patients' current "wave" features a lot of lingering nasal congestion.
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@KonLontos
Konstantinos Lontos
2 months
@elle_carnitine it is no that, it is that energy disorders are not really taught at all in med school. Thus all doctors believe that “push” is always good
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@KonLontos
Konstantinos Lontos
7 months
@maolesen really, what the heck. Just had the 2nd worst wave and they keep pushing the make believe strategy
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@KonLontos
Konstantinos Lontos
2 months
@ashishkjha for those seeing this @michael_hoerger has far better modeling and explanations. Follow him instead
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@KonLontos
Konstantinos Lontos
1 year
This is indeed a serious issue. The US academic system has pushed the beloved, well-rounded, super knowledgable clinician educator to the brink of extinction. It is all about grants and papers
@TheLancetHaem
The Lancet Haematology
1 year
"The needle would move forward more efficiently when academic medicine equally recognises... clinicians... who dedicate their careers to honing their skills and... impart their wisdom onto the next generation of physicians" Art of Medicine by @THilalMD
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@KonLontos
Konstantinos Lontos
1 month
@SacksDisa @CDCgov @CDCDirector of course we do. Covid is more deadly than any other virus and disables 3.5% of people for a really long time. And yes they need to isolate or wear N95 masks to not spread it. There is also treatment for the right people
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@KonLontos
Konstantinos Lontos
5 months
How MDs think: -A thousand patients complaining about a drug -> anecdotal -A person writes down and publishes the same exact complaints -> Data -FDA puts these complaints on the package insert -> SCIENCE
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@KonLontos
Konstantinos Lontos
9 months
@hausofhemlock I always advise my cancer treatment patients to start using 3M Auras
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@KonLontos
Konstantinos Lontos
2 months
If you are unable to help as a provider, it doesn’t mean that the patient is to blame (psychosomatic issues). Excellent post
@dysclinic
S Blitshteyn MD, FAAN, Dysautonomia Clinic
2 months
Following our lively discussion on #stress and mind-body connection when it comes to #POTS or #LongCovid , here is my take on stress and some pointers to other physicians dealing with complex patients: #MedTwitter #NeuroTwitter ✔️ Stress is an important trigger for any chronic
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@KonLontos
Konstantinos Lontos
5 months
@maosbot Enjoy your day sir
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@KonLontos
Konstantinos Lontos
9 months
@Azeem_Majeed I understand what you are saying but you have to be careful when you dismiss concerns, often patients with lived experience know more than the “experts” on side effects of treatments
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@KonLontos
Konstantinos Lontos
1 month
@nilikm this virus is relentless. You cannot relax even for one occasion
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@KonLontos
Konstantinos Lontos
1 month
@AhmadRehanKhan She didn’t say they are a myth, she said that they are constructs, criteria we use. That it is not objective like cancer or anemia. This is a fair argument you can chat about. And shutting it down with labels only shows that you are afraid of something
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@KonLontos
Konstantinos Lontos
24 days
@NeurologistMom The most infuriating thing is that we know that recovery is possible and instead of working towards that we lost decades from people enjoying blaming patients
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@KonLontos
Konstantinos Lontos
9 months
@EricTopol @Nature Hey @Nature I would like to know how important the edits were that it took more than a year to accept this
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@KonLontos
Konstantinos Lontos
2 months
@ScholerinED Yeah but there are a ton of off-label uses and it is not his job to control prescriptions. His job is to advise and ensure safety
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@KonLontos
Konstantinos Lontos
3 months
@ParianteLab @guardian they are not “addictive” but they make you dependent on them. You need to take them to not be ill due to withdrawal effects. Pharma convinced everybody that withdrawal lasts a few weeks but unfortunately it lasts months to years
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@KonLontos
Konstantinos Lontos
1 month
If your provider informs you about side effects and then finishes with “but these are rare” or “but I have never seen them myself”, they say it to give you an idea of the odds of developing the side effect. It does NOT mean that it will not happen to you
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@KonLontos
Konstantinos Lontos
1 month
Reasons to test for covid: 1. You don’t want to spread it. If you give it to 30 people, 1 will get long covid 2. There is treatment if eligible which might decrease odds of long covid 3. You will need the positive test for trials and insurances if you develop long covid
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@KonLontos
Konstantinos Lontos
1 month
@inkblue01 I think that every person has a breaking point in their immune system and after the X infection they start getting them more and more frequently
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@KonLontos
Konstantinos Lontos
2 years
Do you ever wonder what “abnormal blasts” on flow cytometry mean on day 14 bone marrow? Well we looked into this and they have poor prognostic value for progression of disease! Thus, you do not have to re-induce, wait it out
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@KonLontos
Konstantinos Lontos
7 months
@ScholerinED It is sad that healthcare personnel need to be forced to protect their patients, otherwise they don't want to.
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@KonLontos
Konstantinos Lontos
2 years
Rounding with the A (literally and figuratively) team @EJShpallMD @joysiloo and celebrating the Astros! @MDAndersonNews
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@KonLontos
Konstantinos Lontos
5 months
@MVGutierrezMD some people developed permanent gastroparesis on them
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@KonLontos
Konstantinos Lontos
25 days
You might have been on an antidepressant in the past and had a good experience. This does not mean that you ll have the same experience when you restart it. Many patients complain about severe side effects the 2nd time. Reason likely being prior withdrawal injury
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@KonLontos
Konstantinos Lontos
8 months
@ENirenberg I have seen numerous people that are constantly sick after their Omicron infection. @ChrisCuomo has the same thing. You can wait for the prospective controlled cohort study to be convinced but this study would be quite hard to do.
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@KonLontos
Konstantinos Lontos
13 days
as you can imagine this does not end up well. Maeve died. If they had provided her with feeding support she would have had a chance to recover one day. The result of the trial was “nothing wrong happened, there is no approved treatment for me/cfs anyhow”. Scandal 3/3
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@KonLontos
Konstantinos Lontos
5 months
@AdeAdamson @adamcifu it sounds like you cannot hear another opinion without calling people names
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@KonLontos
Konstantinos Lontos
2 years
@DavidSteensma Are all these fellows really better than the best fellows in all the other programs? what drives this kind of behavior? MD Anderson does top-notch research with people from all over the world and tremendously more diversity
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@KonLontos
Konstantinos Lontos
20 days
This is how severe me/cfs looks like
@JanetDafoe
Janet Dafoe
21 days
@TimesONeill ⁩ I wondering why nobody’s posting this photo of Whitney in December 2016 I took the picture. you have his & my permission. I’ve sent it to you. It’s what Sarah & Maeve saw so they knew that tube feeding was possible. The red is from ice he put on his stomach.
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@KonLontos
Konstantinos Lontos
3 months
Very sad example that medical gaslighting can even cost lives. #Akathisia is a common side or withdrawal effect of all psych drugs and providers should know about it
@AkathisiaAlli
Akathisia Alliance for Education and Research
3 months
We've been criticized for claiming #akathisia is often misdiagnosed as a functional neurological disorder and that this can cause significant harm and increase the risk of suicide. To those who doubt this is true, please see the following posts taken from a support group.
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@KonLontos
Konstantinos Lontos
2 months
@StevePhillipsMD I never claimed the vaccine has no serious side effects but to blame impaired immunity to a vaccine taken in 2021 versus a virus that has infected people repeatedly over 4 years is a bit of a stretch? People want to blame the vaccine because if covid is to blame it is terrifying
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@KonLontos
Konstantinos Lontos
11 months
@healingfromlc I wear a mask everywhere and I am an MD. Stand your ground. State the obvious: you are a person with fragile health in the middle of a covid wave
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@KonLontos
Konstantinos Lontos
11 months
@Doc_Valerie @tessfalor Deep down all doctors want to help. The system though pushes some to their limit. If they have to see 25 patients , 5 days per week, there is no time to think outside the box and read some more. We need to do better system-wise for this to improve
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@KonLontos
Konstantinos Lontos
1 month
Functional implies psychogenic which it is not. ME/CFS dysfunction lies in the mitochondria which are unable to utilize oxygen properly leading to oxidative stress and multiple system dysfunction Zach has made his life goal to gaslight me/cfs and long covid patients. So bizarre
@ZacharyGrinDPT
Zachary Grin, PT, DPT
1 month
The answer is multidisciplinary rehabilitation. PT, OT, ST, and psych. There is zero evidence to support pathology in ME/CFS that would make it impossible to re-learn to chew and swallow. It is a functional symptom which is 100% real and treatable with the right treatment.
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@KonLontos
Konstantinos Lontos
5 months
@AdeAdamson @adamcifu I am glad she was outside and she didn't run the risk of a health disaster for no reason
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@KonLontos
Konstantinos Lontos
2 months
Both finasteride and isotretinoin have warnings for permanent neurologic/psychiatric disorders. Inform the patients before prescribing
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@KonLontos
Konstantinos Lontos
2 years
We are happy to share our new meta-analysis on lenalidomide-induced SPM published at @TheLancetHaem . Although clearly not easy to understand why, this data supports that lenalidomide only drives SPM in MM patients.
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@KonLontos
Konstantinos Lontos
13 days
so they look for something and they found nothing. Then they assume it must be psychological. They refuse to educate themselves on a new frontier. And while this plays out they don’t provide tube feeding to the patients 2/3
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@KonLontos
Konstantinos Lontos
1 month
I was not either. But once you join any patient support group it is all there. Thousands of examples. And @markhoro has done a great job tabulating it in literature. Also @taperclinic has many interviews on harms
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@KonLontos
Konstantinos Lontos
4 months
@RickABright maybe they should start vaccinating farmers
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@KonLontos
Konstantinos Lontos
8 months
Classic unfortunately. Even a tiny dose of benzo needs a LOT of time to get off and SLOWLY. Otherwise you give your patient a long-term brain injury that they will have to fight alone because no-one believes them. Same story again and again
@angpeacock1111
Angie Peacock, MSW, CPC (ICF)
8 months
8 years ago yesterday, a psychiatrist took me off 1mg Lorazepam abruptly. 6 days later the gates of hell opened & swallowed me whole. He &his office never believed me, never read 1 medical journal article I gave them &only saw my symp through the lens of the PTSD. #psychwtitter
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@KonLontos
Konstantinos Lontos
5 months
It is very hard for chronically sick people to become doctors and this had led to underrepresentation of such experiences in the field and less understanding of patient experiences
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@KonLontos
Konstantinos Lontos
7 months
Anyone that prescribes psychotropic medications should listen to @markhoro on this interview and buy the official NEW Maudsley de-prescribing guidelines. You cannot prescribe without knowing how to de-prescribe
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@KonLontos
Konstantinos Lontos
8 months
@ENirenberg I am not aware of other viruses weakening the subsequent response to other pathogens apart from these two. Of course they are nothing alike, but this a similarity
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@KonLontos
Konstantinos Lontos
5 months
@elle_carnitine this is beyond unacceptable. Consider shaming them eponymously online
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@KonLontos
Konstantinos Lontos
2 months
@ScholerinED Seroquel for sleep. We can play this game all day. It is not the pharmacist’s job.
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