Bethany's dad @JeremyH09406697 Twitter profile

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Bethany's dad

6 years

For anyone joining in my story now its been on the television, it's so important to listen to this to hear the bigger picture and to put into context the things heard. Then take time to read my tweets. This isn't and never was just about Beth.

Lucy Adams

@BBCLucyAdams

6 years

2 weeks ago @BBCfileon4 told Bethany’s story @JeremyH09406697 & failed promises to Transform Care listen here

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Bethany's dad

@JeremyH09406697

2 years

Three years ago, Beth was locked in a seclusion cell. Clinicians then were recommending she went to Rampton Today we went out shopping together, then she cooked me an amazing chicken curry The right care, in the right environment, by amazing staff with humanity & right support.

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Bethany's dad

@JeremyH09406697

5 years

4 weeks ago Beth was kept locked in a seclusion cell The Priory wanted her to go to Rampton. They said she needed High Secure Care. Look at today..A family walk by a local river How many more people are locked away just because a blinkered clinician cannot see the right way?

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Bethany's dad

@JeremyH09406697

5 years

What an awesome day! Beth loves her new place..wide open spaces inside..a huge garden, guinea pigs to cuddle when you see fit.. We sat and ate a cooked meal together (with plates and cutlery!) then chilled out in the lounge with games on her ipad Shes fast asleep now..happy!

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Bethany's dad

@JeremyH09406697

5 years

In less than 2 weeks Beth is off to somewhere where she will be properly supported and allowed to do the things that keep her anxiety low. Where her love of animals will be used as therapy.. Look at that happy smile..

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Bethany's dad

@JeremyH09406697

5 years

Beth used to phone me every day. Upset, crying, distraught. Now she only phones me when she wants something. She's become an 18yr old!! Couldn't be happier..

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Bethany's dad

@JeremyH09406697

4 years

Othering.... I hate this with a passion. ..

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Bethany's dad

@JeremyH09406697

5 years

I got the Expert by Experience role I was interviewed for!! Will soon be taking a seat on panels carrying out Care Treatment Reviews to see if inpatient stays are required & whether care is safe, appropriate and person centred From driving a lorry to hopefully driving changes😊

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Bethany's dad

@JeremyH09406697

5 years

Beth's last night in a seclusion cell She's super excited about tomorrow 1st off she's got a long drive.. 4-6hrs. Shes got activity bags & has her Ipad back..I've stuffed it full of apps and all her favourite tunes. The guinea pigs will be there to welcome her with squeaks ❤

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Bethany's dad

@JeremyH09406697

4 years

Its been 12 months since Beth was freed from seclusion and released from the Hell that was Llanarth Court. She's changed so much and found out so much about herself. Her care is totally person-centred and she has regained her love for life. Thanks to everyone for your support.

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Bethany's dad

@JeremyH09406697

4 years

Amazing day with Beth.. First time I've seen her for over 100 days. She caught loads of fish!! It was tough social distancing and not having any hugs but hey!.we've been thru far worse! She won the 'Kicked my dad's arse' fishing trophy and was rewarded with a new fishing hoody

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Bethany's dad

@JeremyH09406697

4 years

6 months ago Beth's Responsible Clinician at The Priory Llanarth Court, was recommending she needed to go to Rampton High Secure because she was so dangerous. Today instead, she's fishing with some of her amazing care team from @Mersey_Care #happy

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Bethany's dad

@JeremyH09406697

5 years

Brilliant, brilliant news!!

Beth’s moving!!

Phew..Its been a difficult 3 years watching Beth deteriorate in front of us.

medium.com

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Bethany's dad

@JeremyH09406697

6 years

More progress!! Beths care taken over by new team of carers She met them out of the cell in extra care setting Basically a mini bedsit Had a bit of wobble wen got overwhelmed but managed well by new team. It's gone so well she's sleeping in there tonight! Not locked in a cell.

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Bethany's dad

@JeremyH09406697

5 years

Awesome day out with Beth today..a windy walk in the Ribble Valley. #ExcursionsNotSeclusions

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Bethany's dad

@JeremyH09406697

5 years

Wanna see happiness?

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Bethany's dad

@JeremyH09406697

4 years

Bloody hell!! Beth took part in HER Cpa meeting! 1st time in years shes been allowed to go into one She had prepared ace questions too that challenged her care plans & pushed for extra support in areas important to her. Things I never knew.. And they are all being acted on!

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Bethany's dad

@JeremyH09406697

2 months

Beth's been out of hospital for 7 months now... And she looks bloody fantastic! #prouddad

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Bethany's dad

@JeremyH09406697

3 years

Someone was out on the raz for her 21st yesterday!!!

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Bethany's dad

@JeremyH09406697

5 years

Im sick of hearing phrases like 'Complex cases' 'Challenging issues' They arent Its YOU..you dont have the understanding you require Talk to the person, their families, their loved ones. Find out what support they need. Then shape & resource that need Simple..not complex

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Bethany's dad

@JeremyH09406697

5 years

Enjoying life to the max!! Transforming Care might have failed to work..but Transforming Beth is making a huge difference!! Meet Harley Quinn Mk2..❤❤

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Bethany's dad

@JeremyH09406697

4 years

Beautiful weather and an awesome new look!

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Bethany's dad

@JeremyH09406697

5 years

Someone just asked me how Beth's behaviours have been changed... My answer... People around Beth changed their behaviour. Not hers. #EasyFix

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Bethany's dad

@JeremyH09406697

5 years

without worrying if I'm going to be blabbing about it Lots of people have really pushed the boat out for Beth and I really am so thankful for everyone's hard work And thank you from me for all for your massive support and love & thanks from Beth! P.s.Her doors are all open! X

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Bethany's dad

@JeremyH09406697

4 years

Another great day with Beth. Dog walking/training in the sun followed by a picnic Shes rocking her new short blonde hair. Shes finding her own look after 4 yrs not even having a trim Im not daft enough to fall for her 'ughh..smell my ice cream' trick tho! Love her to bits!!

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Bethany's dad

@JeremyH09406697

4 years

I haven't seen Beth since March 20th This all changes on Thurs..we are meeting up to share in her new hobby...Fishing!! She has been 9 days running in all sorts of weather. She absolutely loves it! Amazing for someone who struggles with unstructured time My fave hobby too 🐟❤

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Bethany's dad

@JeremyH09406697

5 years

All commissioners. All local authorities. All psychologists and psychiatrists. All CCGs and case managers If you think ANYONE with Autism/LD needs to be locked away like Beth was Look at this picture No locks. No bans on parental contact. Just Care..(deliberate capital 'C')

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Bethany's dad

@JeremyH09406697

5 years

Beths moving day confirmed as Sunday 15th Dec.. So if you are anywhere between Abergavenny and the Preston area and you see a minibus swerving down the motorway, full of delirious, grinning idiots..Dont worry..Its just the Beth Bus..

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Bethany's dad

@JeremyH09406697

6 years

Had an update for today NO WOBBLES!! So great to get such a positive call from carers who clearly 'get' Beth Look what happens when the right people are in the right place doing the right thing Beth currently just chilling out relaxing after busy day No locked doors No hatch.

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Bethany's dad

@JeremyH09406697

6 years

Beth wants me to share this with you.

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Bethany's dad

@JeremyH09406697

6 years

For anyone who has ever doubted the power of the Tweet Contact today with my beautiful daughter was outside of seclusion cell We hugged We talked without a door in the way We shared ur jokes and cards She loves them But at the end they locked her way again. Full blog soon.

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Bethany's dad

@JeremyH09406697

5 years

I got home yesterday evening a bit drained and a bit emotional.. I found a note on the doormat from a neighbour that cheered me up. Thanks both!!

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Bethany's dad

@JeremyH09406697

6 years

Tee Hee...just phoned to talk to Beth, I heard carer tell her "I've got Dad on the phone". I then hear Beth reply "Please could you tell him I'll call him later..I'm too busy" Yay!! Do you remember 3 weeks ago when she said on radio4.. "I've done nothing..the same as every day"

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Bethany's dad

@JeremyH09406697

5 years

Reasonable Adjustments? The other day Beth wanted to take full advantage of the hot weather by having a water fight. One male staff hadnt got any clothes to change into so declined Her solution? Wear some of hers Full marks to him 'cos he did without a moments hesitation 👏

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Bethany's dad

@JeremyH09406697

9 months

One of the most important things that too many of us take for granted. A key to your own front door. I cant share any more pics of the amazing home because Beth wants to be left to quietly get on with her new life. Rightly so I've got a bit more time to help others now.. X

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Bethany's dad

@JeremyH09406697

5 years

How do you make Beth the happiest person in the world? Tell her that her guinea pigs can live with her in her new place!! I dont think she will sleep til she gets there on Sunday!!

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Bethany's dad

@JeremyH09406697

4 years

Why is 'Call the police' the first piece of advice given by Social Services to families who are struggling with behaviour that challenges? I hear this from most ppl who call me Nobody wants to criminalise their own child or loved one Families need support. Not to be afraid.

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Bethany's dad

@JeremyH09406697

6 years

Beth very upset today.. Her mum and Nan went to visit her in the seclusion cell. Beth needed the loo. Why should a 17 year old have to use a toilet with no door on? In full view of her care staff. All whilst being recorded on CCTV Autistic. Not a Criminal How would u feel

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Bethany's dad

@JeremyH09406697

5 years

I'm not stopping though. Just because Beth will be moved out of the cell and out of solitary confinement doesnt mean the fights over. The System still needs fixing. The doors to cells and wards still need unlocking. I've got more time to work on this now. #MakingADifference

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Bethany's dad

@JeremyH09406697

4 years

Awesome.!!! Wanna somebody who is really happy?!! 🥰🥰

Julie Grant

@juliegrant1875

4 years

For the first time,in almost 15 weeks,I saw my son! #autism #nonverbal #COVID -19

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Bethany's dad

@JeremyH09406697

6 years

I promised noon.. Tomorrow I will be speaking about Beth's appalling situation on BBC Breakfast TV. And the situation of so many other people with LDs Beth's plight will also be heard in the House of Commons today at 4pm In the debate about social care funding. Bless you all.

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Bethany's dad

@JeremyH09406697

4 years

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Bethany's dad

@JeremyH09406697

6 years

Beth's had another great day today, one slight wobble where she wanted to go back to seclusion to be alone Her new staff just let her be alone in extra care instead, gave her some time and then re-engaged Perfect! Well done everyone! Seeing her Friday..Can't wait for more hugs

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Bethany's dad

@JeremyH09406697

6 years

Message from Beth.. Hi. Thank you for your cards and letters. I will be strong. I promise. I will come out soon. Thank you for helping my dad. Merry Christmas. Beth

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Bethany's dad

@JeremyH09406697

4 years

I'm losing track of the hair colours! X

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Bethany's dad

@JeremyH09406697

6 years

I guess I've been a tad quiet about Beth Thruth is my barristers are advising me to keep quiet for now. There is a massive amount going on. Im keeping a very very detailed diary. I will share all when I can. For now please pray for us I wont shut up about Atus though. Ever

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Bethany's dad

@JeremyH09406697

6 years

On Wednesday, BBC 1 Breakfast is running a 3 hour special on SEND, People in ATUs and people with LD. I'm appearing alongside loads of families and survivors. Don't miss it. It's very special. Thank you to the producers for this wonderful opportunity. Record it. No excuses!!!

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Bethany's dad

@JeremyH09406697

4 years

Feels like a good day to tell you I'm Co-chairing NHSE's Parent Council working on the Children & young persons Autism LD and Mental Health Taskforce looking into radically improving services in NHS and private inpatient settings I will be working alongside some awesome people!

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Bethany's dad

@JeremyH09406697

5 years

Massive news tomorrow regarding people with Autism and LD locked in inpatient settings. I've been invited on Sky News, ITN, Victoria Derbyshire etc so you know someone's getting roasted!! I cant wait for this to come out.. Lips are sealed til tomorrow. SORRY!!

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Bethany's dad

@JeremyH09406697

6 years

Matt Hancock, The Secretary of State for Health, has been in touch. We have arranged to meet to discuss Beth's situation at St Andrew's. We will also be discussing the wider use of ATUs.

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Bethany's dad

@JeremyH09406697

5 years

@MattHancock You described cases like Beth's as 'Complex' 'Extreme' 'Difficult' Nah..they arent. The system must realise what can be achieved by the application of HUMANITY It will save the NHS 100's of millions. See this picture You need to question why Beth was locked up

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Bethany's dad

@JeremyH09406697

5 years

Im going to be quiet for a bit about Beth..she needs time to adjust & we know there will be ups and downs as we all learn what works & what can be problematic It wont help if Im giving a running commentary Beths team all deserve an atmosphere where they can try things out...

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Bethany's dad

@JeremyH09406697

6 years

Do not be afraid to 'like' our story. I won't be upset or annoyed. There isn't a 'I hate this button' Think of like as "I love Beth's strength" Retweet to share this strength.

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Bethany's dad

@JeremyH09406697

5 years

Merry Christmas from me and Beth! Thinking of everyone having to visit loved ones in seclusion rooms and inappropriate settings.

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Bethany's dad

@JeremyH09406697

4 years

We've got a CPA meeting tomorrow For the 1st time ever Ive been sent an amazing set of care plans to review-theyre brilliant OT, Speech & lang, nursing reports, activity plans, psychiatry and psychology, health, healthy eating, etc They demonstrate real understanding of Beth 1/8

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Bethany's dad

@JeremyH09406697

4 years

Just a bit of creativity and a dollop of humanity.. How to enable visits in lockdown. A very 'reasonable adjustment'

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Bethany's dad

@JeremyH09406697

6 years

Matt Hancock has announced full investigation into Beth's care. Tears in my taxi. Xx

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Bethany's dad

@JeremyH09406697

4 years

Off to see Beth for the 1st time since lockdown began. Thinking of everyone who isnt able to do this because units not allowing contact or visits.

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Bethany's dad

@JeremyH09406697

4 years

Beth moved out of St Andrew's Northampton 2yrs ago and out of Llanarth Court 16 months ago. She's doing ace and loving life. Have @StAndrewsCare or @PrioryGroup ever asked what was done to achieve this? Nope...

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Bethany's dad

@JeremyH09406697

5 years

This is fantastic.. Well done and thank you to @EHRC

Matt Hancock facing legal challenge over 'repeated failures' in autism care

Equality and Human Rights Commission takes first legal step over the 'inappropriate inpatient care' of more than 2,000 people.

inews.co.uk

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Bethany's dad

@JeremyH09406697

5 years

4.45 am car booked to whisk me to London to do Sky News in the morning live too.. Im not going to stop til they open the last door on the last person locked away. This isnt and never has been just about Bethany..

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Bethany's dad

@JeremyH09406697

6 years

Today was the 2nd Anniversary of Beth's incarceration in the fortress of failure. I love you Beth. Hang in there, I know you are anxious about Christmas and worried about the future You will read this one day and see how many people are following our journey. You are famous!

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Bethany's dad

@JeremyH09406697

5 years

Im gutted.. Just been to the CoOp to buy some beer.. I tried to pay using 'Happiness' and 'Therapeutic Value' Apparently theyre not recognised currency.. #SallyAnnHart

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Bethany's dad

@JeremyH09406697

5 years

At last. Matt Hancock and the Govt respond. Thanks once again to Ian Birrell

Government demands discharge for autistic people wrongly locked up

Among the cases is Beth (pictured), the teenager whose atrocious 'care' led to a landmark legal battle that last month forced an apology and damages from the NHS.

www.dailymail.co.uk

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Bethany's dad

@JeremyH09406697

4 years

Please teachers...remember this tomorrow...

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Bethany's dad

@JeremyH09406697

4 years

I am so pleased to be able to announce my involvement with the Oliver McGowan Mandatory Autism Training I hope my background as a Further Education Tutor, including 10 yrs delivering The Prince's Trust Team Programme to develop skills of 16-25 yr old inc Autistic LD students

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Bethany's dad

@JeremyH09406697

5 years

So, how stressful did Beth find it? How much anxiety driven behaviour was there? Not a jot! Because the planning had been done by the experts..her team, the wonderful Actually Autistic advisors and her family. Because autism and her anxiety are at the heart of everthing..

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Bethany's dad

@JeremyH09406697

5 months

The right support opens up the world for people like Bethany. Staff who really understand the person they support and who do their utmost to fulfil dreams. Community Integrated Care have helped Beth fulfil a lifetime dream today.. A trip to Comic Con. They are awesome!!

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Bethany's dad

@JeremyH09406697

6 years

Today's update. Beth has always loved animals. They calm her. Today she spent time with a visiting dog and then spent time with a guinea pig which again she adores. Had a wobble over wanting something she couldn't have but again this was managed by allowing Beth to calm herself

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Bethany's dad

@JeremyH09406697

5 years

I wont ever shut up about •3 years of Seclusion •A pen left in her arm for weeks •236 minutes in just one episode of restraint •Hundreds and hundreds of restraints •Diabetes bought on by situation •19 police officers at same time called to deal with her at St Andrews 1/3

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Bethany's dad

@JeremyH09406697

5 years

Less than 12 weeks ago @PrioryGroup mgt & MDT wanted to send Beth to Rampton High Secure Instead today Beth went out for the morning, then had lunch out before going and getting her hair straightened. Shes ready to go full on Harley Quinn..

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Bethany's dad

@JeremyH09406697

3 years

Had an awesome day with Beth. She's had a real passion (note..not 'obsession' or 'fixation') with Harley Quinn for quite a while.. Today she wanted to go shopping for Christmas stuff dressed up as her...so we did!! Thanks to her amazing team for support her! #dowhatmovesyou

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Bethany's dad

@JeremyH09406697

5 years

@EHRC And look at her now!! Happy, free, and loving every minute!!

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Bethany's dad

@JeremyH09406697

5 years

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Bethany's dad

@JeremyH09406697

4 years

Here you go for those who missed it.. The Sky News piece about Beth's amazing new life..

Rachel Lucas

@RachelSkyNews

4 years

It’s a privilege to be able to report on how Bethany is doing now with the right support. Thanks to Bethany & @JeremyH09406697 for allowing @ashishskynews and I to share her story. Here is our report

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Bethany's dad

@JeremyH09406697

4 years

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Bethany's dad

@JeremyH09406697

5 years

If I said I was going to start a zoo or dogs home where the animals were kept locked in cages 24/7, never went outside and never had kind, loving human contact there would be an outcry So why is it ok for people with Autism or mental health problems?

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Bethany's dad

@JeremyH09406697

5 years

Thats the plan.. Ive submitted my application today for the role of 'Expert by Experience'. I hope to be sitting on panels who recommend whether inpatient care is a required to treat people with LD / autism. 🤞🤞🤞🤞🤞🤞🤞🤞🤞🤞

Kim

@MumOlsson

5 years

FINALLY! I'M ACTUALLY THRILLED! CAN'T IMAGINE THE FAMILIES JOY! NOW FOR THE HUNDREDS OF INNOCENTS LOCKED UP! 🌹

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Bethany's dad

@JeremyH09406697

4 years

Because he cares. Because he has humanity. Because he wants to help. Because he's taken the time to find out how he can support her..something few staff & no bank staff ever did in the ATUs Thank you Alan at Boothman Park Fishery. Thank you MerseyCare and Team Beth..Ace day!

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Bethany's dad

@JeremyH09406697

5 years

Her support team have been brilliant..they had a welcome box of Lush smellies, pampering stuff, arts and crafts stuff, sensory lamps and toys. They are all so friendly too..I've never drunk so many 'brews'! The walls have been decorated in exactly the colours Beth chose too.

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Bethany's dad

@JeremyH09406697

10 months

2.7 miles!!!!!!! She's finally got her own amazing house with an equally amazing support team. And its just up the road from me! One question remains....just what the heck will I do with all the spare time I'm going to have??

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Bethany's dad

@JeremyH09406697

4 years

A blog about the amazing way my Autistic daughter Beth is being looked after during Coronavirus.. Thank you Team Beth Thank you @Mersey_Care #COVID ー19 #coronavirus #lockdown

Restraint Reduction Network

The Restraint Reduction Network is a network of organisations and individuals committed to eliminating the unnecessary use of restrictive practices. We want ser

restraintreductionnetwork.org

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Bethany's dad

@JeremyH09406697

6 years

Before it gets too busy... Just want to say a huge THANK YOU from me, Beth and the family. Your support has been so massively important to us. Here's to a better year in 2019.

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Bethany's dad

@JeremyH09406697

3 years

Message from Beth... Thank you to everyone for the Birthday thoughts. I've had a brill day!!

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Bethany's dad

@JeremyH09406697

5 years

Over the last couple of days Ive bought home box after box of Beths belongings. Just opened one thats made my eyes tear up.. Every single card you have ever sent her..every note, every joke & each and every kind word Some stuck to the pages of a scrap book 100s of treasures

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Bethany's dad

@JeremyH09406697

6 years

Yesterday Beth moved nowhere. She cant yet. However her planning, her support and the support for those who will be helping her travelled an immeasurable distance. All because of everyone of you. Every tweet. Every reply. Every suggestion and lead. It worked. Details to follow

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Bethany's dad

@JeremyH09406697

5 years

Good things are around the corner..But how did we get from this..to this in just 3 weeks?

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Bethany's dad

@JeremyH09406697

4 years

About to deliver a session to Social Work students from @warwickuni who are currently studying Human Rights. This is part of how Beth wants her experiences to inform the way that others practice in the future.

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Bethany's dad

@JeremyH09406697

6 years

Sadly Beth's had a massive meltdown today. Not back in the seclusion cell though. Today's events will be a learning point. A reminder that we haven't yet considered all the variables. A reminder that wobbles need to be spotted earlier. We mustn't run before we can walk.

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Bethany's dad

@JeremyH09406697

5 years

@HanGraceMusic I love fishing and quite often get visited by robins who know we have loads of edible goodies..

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Bethany's dad

@JeremyH09406697

2 years

Want to see what person-centred support looks like? What it really means to listen to what someone wants to be, then help them achieve it..then allow them to celebrate their achievement? Go on Beth..be that person you love being ♥️♥️♥️ #HarleyQuinn

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Bethany's dad

@JeremyH09406697

5 years

@PDAAction To give her the control that relaxes her PDA/anxiety we got her doing 30 mins of dog training.. 2 willing pesky pooches with a love of scooby snacks let Beth use her dog voice to boss them around. She even managed to get their tails to wag in sync...

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Bethany's dad

@JeremyH09406697

5 years

Its foolish that a deadline has been announced that Beth may become aware of. Her anxiety will go into meltdown Dont placate me @MattHancock You must put Bethany first not electioneering I will accept your apology in full when the last person moves from MH inpatient care

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Bethany's dad

@JeremyH09406697

4 years

Want to see what Inclusion really looks like....

BBC Midlands

@bbcmtd

7 years

Anu is seven and goes to school in Birmingham. Look what happened when she showed her friends her new sports blade. It's just gorgeous!🏃‍♀️

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Bethany's dad

@JeremyH09406697

5 years

The song that started this whole journey...

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Bethany's dad

@JeremyH09406697

5 years

Interview today with The New York Times.. Going global!

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293

Bethany's dad

@JeremyH09406697

5 years

Phew.. I'm interviewed out!! @BBCBreakfast @BBCr4today @VictoriaLIVE in Salford Still got @theJeremyVine to do and fingers crossed for @BBCNews And a meeting to discuss Beth in Wales at 12.30. Couldn't do this for a living!!

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Bethany's dad

@JeremyH09406697

5 years

Cracking few hours with Beth each day this week..4 naughty Elfs on the Shelf have been up to allsorts.. Been through loads of cards and gifts. Her favourite joke was.. ''There's a new restaurant opened nearby..its called 'Karma' There's no menu.. You get what you deserve!!"

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284

Bethany's dad

@JeremyH09406697

5 years

Off to London tomorrow.. For a VERY big and VERY important day.. I cant tell you what it is yet, but please keep your fingers crossed for us! #itwasneverjustaboutbeth

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287

Bethany's dad

@JeremyH09406697

4 years

Bugger..Lancashire lockdown means I cant see Beth.. But I know she's in a great place and staff have got her covered. I wish it was the same for everyone. #homesnothospitals

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