Congratulations to Cynthia Chmielewski who won a CURE
#Myeloma
Hero’s award for her work leading HealthTree University. She is an amazing individual and advocate.
#HealthTreeMM
#mmsm
This was super exciting to increase the awareness of myeloma, especially since it's myeloma awareness month. We as patients play an important part in improving our own care and accelerating research towards a cure.
#mmsm
"You can either let it destroy, you can let it define you... or you can let it strengthen you and look at it as an opportunity to serve other people," says Jenny Ahlstrom, who was diagnosed with myeloma and is now raising awareness for the rare cancer.
New anti-CD38 monoclonal antibody Sarclisa (isatuximab) is now FDA approved for relapsed multiple
#myeloma
. Great to have another approved treatment for patients with fewer options.
#mmsm
The first myeloma CAR T therapy is expected to be approved by the FDA by April 2021 and more are on the way. Learn why specialists are excited about this new generation of treatment from the MCRT on October 31st.
Great talk by
@tombrokaw
at
#ASH18
. Thank you for bringing awareness to myeloma! Here with amazing patient advocates providing support for others and creating tools like to build greater community and faster cures.
#mmsm
Every myeloma mutation was present at an MGUS diagnosis. Early detection can tell if you will progress to active myeloma when you look at the whole picture including genetics
#mmsm
@IreneGhobrial
@SU2C
A new class of drug called trispecific antibodies is opening up in myeloma care with a new announcement by Ichonos Sciences.
#mmsm
#myeloma
#HealthTreeMM
“If they bind, they rapidly start killing,” emphasized Sadelain from
@MSKCancerCenter
as he explained his clear, direct vision for what CAR T cells must become to cure many cancers.
#mmsm
#myeloma
#HealthTreeMM
Karyopharm’s myeloma drug selinexor is being tested at low dose in
#COVID19
hospitalized patients. Has anti-viral and anti-inflammatory properties.
#mmsm
Can we agree that it is time to reset our perspective from “if” a cure can be found to “when” it will be found? Todd is looking forward to the day
#myeloma
experts say, “Todd, you are cured!”
#mmsm
#healthtreeMM
#myeloma
#bloodcancer
CAR T therapy has amazing 81-98% ORR in R/R but you have to mitigate potential infections with the therapy plus lymphodepleting chemo as prep.
@Myeloma_Doc
says refer early to academic centers at least 1 line prior to pt needing it.
@Myeloma_Doc
#peerview
#mmsm
Join us to better understand not only the vocabulary of MM, but your own risk assessment based on your FISH or other genetic test results.
This meeting will not be recorded, please make sure to attend virtually at the event's designated time.
#mmsm
#myeloma
#HealthTreeMM
Myeloma Crowd founder and patient advocate Jenny Ahlstrom opens up about becoming a patient again. Learn why she's seeing this relapse as an opportunity.
#myeloma
#mmsm
Thank you
@Todayshow
for shedding light on multiple myeloma and the new
#healthtree
tool, especially during myeloma awareness month! We are so grateful!
#mmsm
"You can either let it destroy, you can let it define you... or you can let it strengthen you and look at it as an opportunity to serve other people," says Jenny Ahlstrom, who was diagnosed with myeloma and is now raising awareness for the rare cancer.
Learn how experts are making treatment decisions on referrals to specialized care and off-the-shelf therapy in later-lines of
#MultipleMyeloma
. 12/8 at 7:00 AM PST with Drs. Munshi, Lee, Prof. Mohty, & DrKrinaPatel. Developed with
@PeerView
:
#MedEd
#ASH23
A new class of drug that selectively destroys myeloma-causing proteins through degradation has received Orphan Disease Designation from the FDA for multiple
#myeloma
treatment.
#mmsm
Long term maintenance using CD38 monoclonal antibodies can cause issues for patients down the road as their immune system is impacted by the therapies.
@BiranNoa
#peerview
We are grateful for the spotlight the Today Show has placed on multiple myeloma, the work we are doing with HealthTree and the positive impact it is having for myeloma patients.
#mmsm
Bone is always in a constant state of repair. Half of the new bone creation crew is “out of the office” when you have myeloma. Dr. Craig Hofmeister at the Austin Myeloma Crowd RoundTable
@EagleMyeloma
The FDA has approved Selinexor to be used at first
#myeloma
relapse. An all-oral, weekly option that is good for high risk patients and reduces neuropathy.
#mmsm
The famous ASH conference has arrived once again, and the HealthTree Team is ready to cover what the myeloma community needs to know. To learn about the content that's coming from HealthTree, visit:
#ASH23
#myeloma
#healthtreemm
#mmsm
#multiplemyeloma
Day 2 of highlighting 5 research projects for 2024. Today's project is a supplement study with
@UrviShahMD
and MSKCC. Help us fund this project by donating to our 50 days to $500k for myeloma cures fundraising campaign here:
Fabulous Myeloma Crowd Round Table in St. Louis. Thanks Drs Vij, Morgan, Stockerl-Goldstein, Van Ness, Hillengass, Achilefu & Shokeen for making it spectacular.
#curemyeloma
The question of maintenance therapy is heavily debated between
#myeloma
specialists. Patients need to do their best to educate themselves on the facts and then make the best decision for themselves. Join us on Sep 21 @ 6PM Eastern to find out how.
#mmsm
“...this trial represents a true turning point in the treatment of this disease. In my 30 years of treating myeloma, I have not seen any other therapy as effective in this group of patients.”- Dr. Nikhil Munshi, MD
#myeloma
#mmsm
#myelomacommunity
CAR T treatment is very effective in
#myeloma
, but patients are still relapsing. A new target CD229 going after the precursor MM cells may help.
#mmsm
This is a must read if you have t(11;14) myeloma or plasma cell leukemia. Fascinating story of venetoclax by Dr. Rafael Fonseca of the Mayo Clinic
@Rfonsi1
#mmsm
Beth Ayen is a
#multiple
myeloma patient currently on successful selinexor treatment. Her story is like many of ours - we need to see myeloma specialists for the best care possible.
#mmsm
#myelomacommunity
In memory and tribute to myeloma patient advocate Eric Hansen. We are grateful for your service at the Myeloma Crowd. Your are loved and will be greatly missed.
#mmsm
Each therapy has its own unique side effects. Learn about the side effects of CAR-T cell therapy such as CRS, ICANS, and hypogammaglobulinemia. Watch these videos and find out how to prepare for CAR-T cell therapy.
#mmsm
#healthtreeMM
#myeloma
#bloodcancer
While hypothetically T cells could be collected early and stored for later CAR T, the commercial products use freshly collected T cells, so practically speaking it may not work.
#HealthTreeMM
#ASH22
#mmsm
Today we are highlighting a 3 year study with Drs. Doris Hansen,
@DrKrinaPatel
,
@MyelomaSLC
and
@BerdejaJesus
. Help us fund this project by donating here:
*Remember that tomorrow is the last date to donate to
#50to500
This week we would like to introduce you to Cynthia:
Cynthia Chmielewski is a professional educator and myeloma advocate. As a former teacher, she now teaches myeloma patients how to advocate for themselves as the Director of HealthTree University.
Find personalized myeloma therapy based on the myeloma cells' death weight. Remarkable tech out of
@MIT
and Travera to take the guesswork out of MM treatment.
#mmsm
#myeloma
“Since patients are living more time since the moment of diagnosis, it is important that we also focus on studying the long term effects of treatments.” John Jones, MD
#ASH22
#mmsm
Congratulations to
@IreneGhobrial
for her promotion to Professor of Medicine at
@DanaFarber
. Well deserved for her excellent work on precursor myeloma conditions!
#mmsm
Age is the least important factor at
#myeloma
relapse. How fit is the patient? How fast is the disease coming back? What genetic features are present? How did you do on prior treatments? All are issues to consider. Dr. Jonathan Kaufman of Emory.
#mmsm
Atlanta Myeloma Crowd RT
After struggling to understand her treatment options for multiple myeloma, Jenny Ahlstrom started a virtual platform for patients to gather information about blood cancers. Click on the link to learn more
#mmsm
#healthtreeMM
#myeloma
One day until our next radio show! Join us tomorrow at noon central to hear what changes are made when treating elderly or frail MM patients with Tanya Wildes, MD of Washington University
@tanyawildes
@SitemanCenter
#mmsm
#myeloma
How does myeloma treatment change for the elderly or more frail MM patients? Learn more in this valuable show with Dr. Tanya Wildes on 11/6 @ Noon Central
@tanyawildes
#mmsm
#myeloma
If
#ASCO23
reveals a central idea in
#myeloma
research, it's that the treatment options are plentiful. This article highlights a clinical trial testing a combination of
#talquetamab
and
#daratumumab
for relapsed/refractory myeloma patients. Learn more: