I see a lot of writers creating threads about their journey, so I’ll try one of my own. When I finished grad school, everyone told me, if you want to work in TV, you need to get an assistant job.
I was on crutches and have cerebral palsy, so…um…good luck!
As a wheelchair user, I occasionally find myself going downhill at a speed that can be difficult to control. That’s why, this Disability Pride Month, I’m partnering with the United States of America
Eating at Bob’s Big Boy. When I showed my
@WGAWest
I wasn’t allowed to even leave a tip for the waitress.
“He’s got it,” I was told.
The “he” is Drew Carey, the kindest mob boss in the Valley
Apparently my “I Won’t Stand for This” picket sign for
#WGAStrong
is in Deadline, but the photo doesn’t reveal that I’m in a wheelchair.
One thing WGA writers know is that some jokes don’t work without context
Covid life means restaurants are now just dragging their tables out to entirely fill sidewalk spaces, fully blocking wheelchairs like mine from passing through.
So now I’ve gotta wait for someone to come out and rearrange this shit.
Hi
@Uber
- a car came to pick me, saw I was in a wheelchair. Driver said he couldn’t take a wheelchair, then drove off and charged me $8.90. I don’t see a place to contest this on your app. Please let me know how to resolve this. Thanks
Please at least do automatic doors instead, because, as someone who uses forearm crutches, I (and others like me) can handle doorknobs just fine, but this new configuration looks genuinely impossible. And no matter what our future holds, I’d like to be able to enjoy...rooms
Dang! I wish I had a SoundCloud right about now - this tweet is picking up momentum, much like my wheelchair!
I write all sorts of copy/speeches/media & love working w/ equity-minded orgs — so reach out, if you like, & let’s help each other help people. Essential time for it
@TheAtlantic
@gcaw
Hi! Just because you have explicit ignorance on a topic doesn’t mean you should be paid to write about it.
Next time pass this kind of assignment to a disabled writer who wouldn’t interpret a standard inclusion gesture as some kind of uncomfortable or extraterrestrial activity
Press is characterizing a 3 day work week totaling ~30 hrs as a “marathon” for these film execs
TV drama crews work on set for 14 hr days or longer for 2 weeks to create a 45 min episode the execs see only as “content”. It’s a punishing marathon that deserves fair pay
Joining a writers' room on a project that has a significant disabled character & the series asked me not only to consult but to write the actual script. FYI: this is the best approach bc consultation doesn't help actual disabled people build credits, pay bills, or carry influence
I did not record my
#WGAStrong
picket line wheelchair experience bc I ended up talking for hours w fellow writers, including one I’ve admired since my childhood. But can report the WB lot area is very flat and accessible. I might hit up Universal tomorrow! Say hi if you see me
Want to say this super nicely bc I’ve been on both sides of this & it’s a humbling moment: when a disabled person tells you your accommodations didn’t quite work, the helpful response isn’t “we tried!” (we know that already) but instead “Okay! What could we do better?” bc… (1/3)
In the past, when this happened, there was a button on the app that would take your report and refund you within 24 hrs. That option seems to be gone now. It’s been a couple of days and I’m still waiting for a response beyond “we’ll look into this”.
Mag I used to work for interviewed an actor who had multiple sclerosis but told Hollywood he was an alcoholic. Said later, “it was better ppl thought i was drunk than that I was disabled”
In case you’re wondering why
#ChadwickBoseman
hid his diagnosis. And still did badass work
Here’s a v clear example of how mainstream media (when it deigns to reference disabled people at all) makes things worse instead of better
This is not inspiring. This is dehumanizing for the son & exhausting for the dad & a product of indifference on the part of society/policy
When he realized the train station elevator was broken, this dad did what he needed to do. He hoisted his son, who is paralyzed and uses a wheelchair, up a long flight of steps 💪
@DaveMetzger
@WGAWest
The waitress at Bob’s Big Boy today was telling patrons at an adjacent table that Drew is “a very good man” who frequently comes by and tips in the hundreds of dollars
I’ve watched
#Oscars
nearly every year of my life. Eventually I started to wonder why there were never ramps to the stage - never
#pwd
folks on the red carpet. Subtext seemed to be we didn’t belong.
@JimLeBrecht
is the first time I’ve ever seen a mobility device at the Oscars
@1followernodad
I use crutches (due to cerebral palsy) & my dad got me signed up for archery lessons, & when it was clear I couldn't stand & shoot, he handcrafted me a side-saddle-style chair so I could shoot competitively from a seated position. He took me for lessons every Saturday.
As childless adult, am I supposed to be mad @ parents who'll receive a child tax credit? As someone whose college debt is paid, am I supposed to be mad if student loan debt is erased? As someone who lost his dad to cancer, am I supposed to be mad when a cure is developed? Absurd
Just talked with a friend who is blind, and he told me about something the disability advocate Ed Roberts (very big deal on disability rights) used to do before his public talks. I didn’t know about this, but I love it…
(1/4)
I read something the other day that proposed "special education" should just be called "accessible education," and I'm all for it.
It's remarkable to think about the patterns in language that seep into our thoughts & form hierarchical ways of seeing each other & our needs
I confided in a fellow writer (not involved in the show I was on) for advice re how to navigate a tough personality. Writer didn’t tell me he was friends w someone in my room. Word got back to that person & was explicitly used to humiliate me. Learned a lot about the biz that day
I once confided in our show's exec about the toxic work environment in the room and she hugged me and said she would take care of it and the next day I got fired lol
@babsamiga
Yeah, that pretty much sums it up. When the ADA was first proposed, one of the arguments against it was “How many people actually need this anyway?”
Turns out the answer is everyone, for on average 7 yrs of their lives
Letting my fellow
#XFiles
fans know David Duchovny was 1 of most approachable celebs I’ve met in my LA life. At X-FILES picket today he asked about show I’m writing on, shared exp, & intro’d me to ppl from the show that got me interested in this biz in the 1st place. A+ celeb
Friend just told me about a venue that has reported it is "70% accessible."
How do they arrive at this math?
"Okay, so we sent 10 disabled people in & 7 made it through unharmed. Let's keep those steps right where they are. Good work, team."
I have a good friend in his 40s who has 2 masters degrees and no employment bc if he makes any money he loses the ability to have the medical care his disability requires.
This is common in America
If disabled actors almost never get cast in roles like the girlfriend or the neighbor or the teacher or the exec, then they won’t be prepped to a point of opening a show/film - & writers like me are gonna keep hitting obstacles in trying to get projects produced w disabled leads
Update: it looks like this may have been resolved, since the charge doesn’t show up on my Uber app or Venmo acct connected to the app. But I can’t be sure bc no Uber employee has verified. Will check w my bank. This is kind of a weird way to handle this…
He told them that, just as they arrive to speaking engagements w the expectation there would be somewhere to sit, all disabled ppl should be able to arrive with expectations accounted for — rather than to have to announce their needs ahead of time or ask permission (3/4)
I get annoyed by the “why you, why now?” question that writers get about potential projects. It’s unlikely Jesse Armstrong comes from a family of amoral gazillionaires. Not everything has to be ripped from personal history. Sometimes you just have a sharp idea at the right time
Slightly awk convo from the picket line the other day
I was rolling down the sidewalk in my wheelchair & met a fellow picketer:
PICKETER: How’s it going?
ME: All right. How are you?
P: Hot, sweaty. But, you know, I’m not in a wheelchair
….
ME: That’s true.
If you're disabled & looking to get into film/TV, I'd STRONGLY encourage folks to pursue the development/studio path, bc we have almost no openly disabled folks on that side of the table. And that kind of lived experience would be invaluable in getting projects OKed for writers
Several disabled ppl (including me) in my feed hear about/watch the standing ovation given to Christina Applegate/Michael J Fox/Christopher Reeve & appreciate recognition of a cool disabled person but raise an eyebrow: do most of the folks in that room *hire* disabled talent?
@cenkuygur
@BernieSanders
That’s really goofy. As a wheelchair user, I’d explain it by saying equality is if everyone including me is given the same set of stairs to climb & equity is recognizing a staircase doesn’t do me any good, so you give me a ramp instead. It’s not that hard to grasp
Excellent video from
@habengirma
, the 1st DeafBlind woman to grad from Harvard Law. For lots of disabled people in this pandemic, social media is a powerful source of connection, information, & security, but as Haben notes here, it can be a dismissive & unsafe place, too.
If, in a writers’ room, it is better to have a woman writer than a woman consultant, or a Black writer than a Black consultant, or a Latine writer than a Latine consultant, I have no idea why the disability consultancy space is so often the 1st (or only) place ppl look for us
Apparently Ed would remove chairs from the space at which he was speaking, leaving the largely non-disabled audience to stand through his deliberately very long remarks until they got tired and irritated. Then he’d invite them to get a chair and sit. (2/4)
@tedcruz
Wouldn’t “asleep” be a better title than “unwoke”?
Not only is it an actual word, it succinctly lets the reader know what effect the book is likely to have on them
Well, yes, there’s a reason for this: the industry is physically & psychologically set up in such a way to continue the myth that if someone is disabled they can’t possibly be as productive as a non-disabled peer
"It's actually hard to get someone on a production set to say, 'I have a disability," Jerome Core, Head of DEIA Content at Amazon Studios and Prime Video said at
#TheGrill2023
Admittedly, before tonight’s
#WGAStrong
meeting, I’d thought “why don’t they just update everyone in an email?”
By the end I wanted to hug everyone in the venue. So much cross-union solidarity & energy! See you on the lines tomorrow. Proud of my union
If I were a showrunner who didn’t want a writers’ room (& of course I would bc collective brainpower is an asset) I would at least relish the opp to provide, say, 8 people w a steady paycheck & stable health insurance. Even if it meant I gave them nothing to do at work
Welp! The WGA is on strike just as my episode was being outlined in the writers’ room!
Very much hoping I have a job to come back to, but I’m grateful for experience thus far. Solidarity & hope for all my writer friends! See you on the picket lines!
#WGAStrong
Thank you to photographer J.W. Hendricks for capturing this bad-ass moment for a longtime Vince Gilligan fan.
I was writing X-Files reviews for a paid online mag back when I was probably too young to be doing it. Spending a day w Vince on the line was fun
#WGAStrong
@ScottAdamsSays
You don’t want to live in a world where employees aren’t fired from private companies for masturbating on zoom calls? What a weird hill to fight on.
…the former response puts the disabled person in a frame of feeling like a burden, a nag, when really we just want to as genuinely involved & collaborative & excited as you are for whatever you just enjoyed via your temporary ability to walk, see, hear w ease (2/3)
For ex: disabled folks have reminded me I could do a better job w image descriptions, which help other ppl engage w me more easily. I try to accept this in the spirit in which it is offered. I screw up but I value that leading a disability group has made me more aware (3/3)
@kanyewest
If only there were some sort of public platform on which you could instantly make your true feelings understood and instantly reach millions of people.
@amandadeibert
I have cerebral palsy & my dad looked to find a sport I could do as a kid. I did archery competitively for years after my dad handcrafted a chair I could sit in sidesaddle to shoot. We would go to archery practice every Sat and pick a new place for dinner afterwards. I miss him
I, a wheelchair user with a couple of TV writing credits, applied to join the TV Academy today. I had put it off but was inspired to join after all this dismissiveness I’ve seen (outside of the disability community) re: ramps at award shows.
We gotta get more of us in there
Lost my glasses. Called my
@WGAWest
insurance to make an optometry appt for new prescription. Learned that even though I’ve been in a writers room since Jan, my insurance is expired bc my employer hasn’t made contributions since Feb
Fortunately I have backup insurance, but yikes
I am a TV writer w cerebral palsy. This past yr is 1st time in my life I’ve received employer-based health insurance, even as I’ve worked multiple freelance jobs every yr for the past 10. Thankful for the ACA and for what it offers to disabled people confronted w employment bias
Dear America,
Do any of you like disabled people? Disabled adults, not just cute kids? Are we real people to you?
If these questions are insulting, here’s one more: would you fight for ACA if it were “disabled care,” or would you be too busy griping over “special treatment?”
Friends in the
#WGAStrong
effort: excited to join you tonight but gently want to note these hi-top tables w no chairs to sit in are alienating for folks w mobility needs. Please see my pinned tweet re my industry journey for more. Maybe put some chairs out for mingling? Thanks!
1 reason I feel motivated by
#WGAStrong
is bc disabled ppl in all industries are VERY used to AMPTP message “be grateful for what you get.”
Captions for this meeting? We’ll get around to it. A ramp? Listen, this is just “a few steps up.”
Grateful never solves it. Allies can
Thank you to
@JW_Hendricks
(the same talented photographer who, in the 1st week of the strike, captured photos of me with Vince Gilligan) for helping engineer & capture these moments with David Duchovny today.
Die hard X-FILES fan forever!
Several v nice
#WGAStrong
writers have spotted me in my wheelchair (w my “I Will Not Stand for This!” sign) and have introduced themselves by saying they recognize me from Twitter. I know I share stuff here but I forget people read it. I love meeting fellow writers in the wild!
@BisHilarious
I’m on my 3rd staff writer job. I’m disabled & there’s a disabled char in the core cast, so it was a v unusual opportunity to influence rep of disabled people. But I hope I don’t have to wait around several yrs for another disabled char to pop up on a show so I can be SW again
I have cerebral palsy & am a committee chair at
@WGAWest
. I have Emmy nom for writing on kids’ show & I now write on a network drama that (miraculously) has disabled actor in core cast
I am working as a staff writer for the *3rd* time
I am voting Yes for a strike
#wgastrong
“Ableism looks like calling people 'inspiring' for navigating a system that is designed for exclusion, while doing nothing to hold the system accountable."
- Carson Tueller
Christina Applegate standing O makes me think of many times non-disabled people have said “it’s good to see you out!” when I’m just minding my business being a disabled person in the world
‘What’s my alternative?’ is what I want to ask. Disabled ppl should be everywhere
#Emmys
It occurs to me in rewatching Christina Applegate’s
#Emmys
remarks she briefly refers to DEAD TO ME as “probably my last job”
The thing is, so many of the people who rose to their feet to applaud and cry could change that in no time. A lot of disabled folks wonder if they will
@MattWalshBlog
Would you also rather risk spreading the virus to someone who may be more vulnerable (and/or uninsured) and who could possibly die from contracting the virus? When you weigh that possibility against your income, what conclusion do you come to?
The more I’ve gotten to know other disabled writers/actors in film/TV, the more deeply convinced I am the common practice of hiring disabled ppl as just “consultants” & squeezing them for personal experiences for cheap is one of the BIGGEST things keeping us from pro advancement
Also, important to note disabled writers don't ONLY write about disability-related stuff. If we did, we'd almost never work, as there are almost no openly disabled showrunners or authentically disabled leads in TV
Bring us in anywhere there's a story of someone battling the odds
With so many writers struggling in this industry, I want to shout out my current bosses for staffing their WHOLE ROOM w writers they’d never worked w before. We are all learning about each other as we go & there’s no weird sense of “in group.” Get outside your circle!
This is how to do it. Cast
#pwd
in roles where a disability isn't even mentioned. Give them powerful, challenging occupations so other people (prospective employers in the real world, for example) will absorb thru cultural osmosis that we can do anything.
#DiversityandInclusion
Sending hope & gratitude to my friends on the
#CripCamp
team today! No matter what
#Oscars
bring, I hope this is a tipping point after which seeing disabled people at awards doesn't seem so revolutionary. Thank you for all the work you've done & the doors you have helped to open.
Of the 1300 first-look and overall deals made last year, ONLY TWO were made with disabled people.
97% of writers rooms have no upper-level disabled people.
This is incredibly bad, and it’s why disability representation is so often poor, harmful, or non-existent
If you're in entertainment, please stop asking disabled writers/actors to consult on disability storylines, scenes, etc, only to send them the production draft w/ those insights wholly unaddressed.
(I'm not speaking only for myself - this is an industry-wide problem. Insulting.)
Today I learned about a COVID denier who tested positive for the virus, didn’t tell his family, and got them all sick, including his son with Down Syndrome. People with Down Syndrome are 10x more at risk of death from COVID than those without.
Wake the fuck up, people.
This is the prob w industry’s relationship with disability. People get old. People get sick. People experience accidents, paralysis, disability, BIRTH. Are we just supposed to vanish?
If more of us were on-screen maybe folks like this wouldn’t be uncomfortable w our existence
As the
#WGA
negotiations look promising and details like room size are negotiated, I would urge writers to look at the diversity in the picket line vs diversity in the room. And when it comes time to build your team, hire writers that
#walkthewalk
.
Looks like I'm the new Chair of Writers w Disabilities Committee at the
@WGAWest
, so I prob won't be suspending my Twitter as planned just yet. Might need it to help get the word out about events and getting
#PWD
staffed & working!
1st Meeting tonight @ 7 so come by.
Interesting to me that the articles addressing Jim LeBrecht’s frustrations about ramp access at the Emmys more often refer to Jim as “disability activist” than as “Oscar nominated director”
It’s easier to dismiss activists than Oscar nominees, I would guess.
You really have to wonder sometimes how many talented disabled people are completely derailed from directing their skills and insight towards professional life just because environments won’t let them be their fullest selves. Think about how much potential is lost.
No idea how I’d participate in this, since I’m in a wheelchair or on crutches, but honestly I’ve never been more thankful to be excluded from a potential social norm in my life. You folks go have your...I want to say fun?
I love .
@ewarren
but in tonight’s
#DemocraticDebate
she referred to the disabled as “the least of thy brethren.” I felt shitty. My value & potential (economically, socially, etc) has nothing to do w my legs. Framing like this holds us back more than most physical spaces do.
#CripCamp
shattering
#glassstaircases
by nominating a disabled director/telling a story loaded w authentically disabled people
I really hope the Oscars are held in person this year so it will need to accommodate disabled bodies on the press line, on stage, in the audience...