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Carolynne Hunter Profile
Carolynne Hunter

@CazMac38

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Blessed Mum of my 4 Amazing Bairns & 2 Pups. Nana to my Beautiful 2 GrandBairns Happiness held is the seed; Happiness shared is the flower. John Harrigan 🌸

Scotland, United Kingdom
Joined February 2021
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@CazMac38
Carolynne Hunter
1 year
This is one of my most Beautiful memories & videos I have of Freya 🌹 Freya is very rarely part of my life on trips with me or her older siblings. it’s kinda like a double life I live….it’s always been painful and still to this day & forever will cause us all sadness & trauma.
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@CazMac38
Carolynne Hunter
2 years
@MartinSLewis @BBCr4today I have no way of cutting back on the energy I use to keep my daughter alive & comfy so are Truss, Sunak, Johnson & Nicola going to help me pay for the energy I use to provide my Freya with an intensive care micro ward at home? This is real life for some families. #EnergyCrisis
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Carolynne Hunter
4 months
@carolvorders I heard Ed Davey very emotionally talking about his son and how he would be loved and cared for when him & his wife are no longer able. A very distressing thought that I have had….. We need more politicians with lived experience of real life!
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@CazMac38
Carolynne Hunter
11 months
I asked @NHSForthValley if all NHS staff could wear a mask whilst nursing Freya at home given #covid is affecting so many people. I was told NO! It isn't @scotgovhealth @ScotGovFM @P_H_S_Official Gov Guidelines! Stuff your guidelines! My Freya is health vulnerable! Freya is
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@CazMac38
Carolynne Hunter
1 year
My health vulnerable Daughter Freya let down again tonight by @NHSForthValley complex care Team. This time someone has deliberately cancelled her night nurse tonight who had been booked a few weeks by Staff bank to cover sick leave. This is now putting Freya at risk by having no
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Carolynne Hunter
2 years
NHS24 is a 3 hr wait time to connect to a call handler. @NicolaSturgeon @HumzaYousaf I’m sitting in A&E @NHSForthValley with my Grandson. 1 hour to be seen by the triage nurse. Apparently it’s a 6 hr wait from now. This is not safe for seriously ill people. #nhscrisis #Twitter
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Carolynne Hunter
10 months
@itvnews So, how does this work for people who are reliant upon medical equipment at home for life support. Candles & Oxygen administration??
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Carolynne Hunter
11 months
At 3am this morning, Freya was taken in an emergency by ambulance to @NHSForthValley hospital with severe respiratory problems. Although all the staff that look after Freya at home are wearing masks after I have had to create a storm about it publicly which has left me completely
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Carolynne Hunter
2 years
@MartinSLewis What has @trussliz done to help Freya…..do you think I can afford to pay £505 a month to Scottish power? It amounts to 35% of my income. My older Daughter & I live in fuel poverty to make sure Freya’s medical needs are met! #EnergyCrisis #CostOfLivingCrisis
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Carolynne Hunter
2 years
Happy 13th Birthday Freya🌹 Keep Twinkling ✨
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Carolynne Hunter
9 months
New Years Day Freya became really poorly, we got her to resuss where me & a team of medics & nurses stabilised her, however she deteriorated the next morning & needed ventilation then to Glasgow. Freya is fighting - please pray she comes through this ♥️ 🙏 #palliativecare
@CazMac38
Carolynne Hunter
9 months
.....the best Christmas gift ever to be Covid negatvie, being able to have cuddles with my Beautiful Freya. #freya #PalliativeCare #Covid Merry Christmas 🎅 🎄 ❤️
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Carolynne Hunter
11 months
Freya woke up today for a wee while. However, she needs lots of rest to get better. It's good to see that @NHSForthValley have listened to me and are keeping Freya safe with all staff involved in Freya's care wearing masks to help protect her as much as possible.
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Carolynne Hunter
24 days
I had to share this photo of my Beautiful happy girl enjoying sensory time at school today……♥️ This week has been desperately distressing for me, this photo has just lifted me to the happiest place! I love you so much Freya…..you are my twinkling ⭐️ #PalliativeCare
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Carolynne Hunter
3 years
When you get the email from @ScottishPower to tell you your monthly DD for elec/gas has increased from £300 to £855! Any suggestions welcome that will eliminate the negative impact this will have on Wee Freya’s life 😥 @NicolaSturgeon @NHSForthValley @stcello1 @LauraAlderman_
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Carolynne Hunter
2 years
@MartinSLewis So this is how it’s going to look I can’t afford the £500 a mnth now! So what is going to happen to my family? #EnergyCrisis @trussliz @NicolaSturgeon @Jeremy_Hunt @ofgem @ScottishPower How can you lot sleep at night - allowing this to happen to health vulnerable people
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Carolynne Hunter
11 months
.....so I have finally had Freya's test results whilst she's in hospital, my poor wee Lassie is fighting 3 respiratory virus's (rhino virus, haemophilus influenzae and Flu A & 1 chest infection. Freya was almost ventilated last Christmas fighting flu A. Freya was not able to have
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Carolynne Hunter
1 year
@RobbieRinder Meanwhile families like mine who are not average #energy users & need energy for life saving medical equipment to keep our loved ones alive, comfortable & safe are facing another winter of complete financial hardship…..are you not ashamed of the colossal profits you are making
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Carolynne Hunter
2 years
@MartinSLewis @trussliz I cannot afford this! @trussliz start providing realistic support for the most vulnerable in the UK & stop ✋giving to the wealthiest. It’s disgusting 🤮 the way in which you are dismissing those who need it most to survive!
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Carolynne Hunter
9 months
Day 12 PICU Freya is off the ventilator, been gracefully fighting her way through the past 2 weeks to breathe herself. My girl has been through so much & I have had to stand back, watch & trust the medics that they will help her smile again. #Freya #PalliativeCare #Love
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Carolynne Hunter
2 years
….Wee Yin is home, full of smiles and I am soooo happy ♥️ #palliativecare
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Carolynne Hunter
4 months
Distressing Post! I am sorry for the emotional video but this is how that phone call affected me this morning whilst I was trying to work and organise Freya’s trial for BIPAP ventilation for home. I don’t want anyone to see me having a vulnerable emotional episode but I have to
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Carolynne Hunter
2 years
….this is the only one fight I can’t do for you Wee Yin, but do you know what you are giving it your best Beautiful Girl 👧♥️ Keep Twinkling ✨
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Carolynne Hunter
8 months
Day 21 We brought our Beautiful strong girl home this afternoon. ❤️  Freya is still recovering & needs lots of non invasive intensive care which is why there's no place like home for her to get all the love and best care she needs for her to be able to beam her Precious Smile
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Carolynne Hunter
11 months
@Carer49 @NHSForthValley @scotgovhealth @ScotGovFM @P_H_S_Official @BBCScotland @Dodd68Fra @MareeToddMSP @STVNews @ChildHealthScot @jasonleitch I was told in a very cruel way that under no circumstamces do I tell the staff to wear masks or my care package will be pulled! I am distraught! My wee Freya is so vulnerable and @NHSForthValley simply do not care! Govt guidelines are not thinking about how dangerous it is for
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Carolynne Hunter
9 months
My Beautiful Wee Princess ♥️♥️♥️
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Carolynne Hunter
2 years
After almost 3 years of shielding…..Freya went out into the community where she lives and met Santa 🎅 #Christmas #SantaClaus #PalliativeCare
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Carolynne Hunter
11 months
…… @NHSForthValley not sure why you are still objecting to staff wearing a mask all shift with Freya, just like I do when I am looking after her…..to think you are completely aware of how health vulnerable Freya is and you are still ranting to me about following @ScotGovFM
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Carolynne Hunter
2 years
When you have had one of those days 😩……then Wee Yin hears your voice & gives you the biggest smile ♥️ #PalliativeCare #freya
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Carolynne Hunter
2 years
@MartinSLewis I simply can NOT afford to pay over £700/a month for my energy bill. I can NOT cut back on any of my usage for my Freya’s medical care that we provide 24/7 at home with a Team of NHS Nurses. I can NOT stop my Direct Debit for fear of dire lonterm consequences. #EnergyPriceCap
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Carolynne Hunter
9 months
Day 18 Thankyou to everyone for your messages of support since the 1st January when Freya became really poorly ♥️ We were transferred from Glasgow PICU to our local hospital last Sunday afternoon. Freya’s breathing is much better however she is still very poorly with a
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Carolynne Hunter
2 months
Positive Post! I just want to thank everyone here for all of your love and support over the past 5 weeks. It’s been a really tough journey for us as a family trying to ensure Freya has the best care provision from @NHSScotland in an out of area hospital. Freya was put forward
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Carolynne Hunter
2 months
August 15th 2020 My girl doesn’t need vocal chords to tell me she loves me ♥️ My heart is full when I see these photos #PalliativeCare #Freya #CaringForFreya
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Carolynne Hunter
6 months
After a tough few weeks of living on a building site within our home breathing in #mold - a hospital admission with Freya & feeling like happiness for my family is so unachievable 😢 my wee ⭐️ wakes up after days & gives me the best smile full of Love ❤️ #Freya #Palliativecare
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Carolynne Hunter
8 months
……so Wee Yin woke up when she heard my voice this afternoon, then she smiled from her Beautiful Heart ❤️ diminishing all the pain we have both felt since the beginning of this year. Happy New Year 🙏 #PalliativeCare #Health #Freya
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Carolynne Hunter
9 months
.....the best Christmas gift ever to be Covid negatvie, being able to have cuddles with my Beautiful Freya. #freya #PalliativeCare #Covid Merry Christmas 🎅 🎄 ❤️
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Carolynne Hunter
2 months
So proud of you Freya 🌹 First day of 3rd year at High School …..and you woke with the biggest smile Keep Twinkling 💖 #PalliativeCare #Freya #CaringForFreya
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Carolynne Hunter
5 months
My Beautiful Freya listening to the birdsong earlier ♥️ #Freya #PalliativeCare #Love #Birdsong #NatureNurtures
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Carolynne Hunter
6 months
I can’t help but feel so lucky that I am able to work from home and stay close to Freya. There isn’t anyone I would rather spend my tea break with than this Wee Beauty, we both enjoyed listening to the birdsong and feeling the fresh air on our faces earlier on today 🦅 💨 Our
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Carolynne Hunter
7 months
…..then she woke up & gave me the biggest smile ♥️
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Carolynne Hunter
2 years
@SkyNews So this is the time of day Freya has the most routine medical interventions…not to mention any emergency that may happen. @trussliz @NicolaSturgeon any suggestions of how to keep our vulnerable children safe at home during these outages? Or should we just call an ambulance?
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Carolynne Hunter
1 year
@carolvorders Meanwhile families like mine who are not average #energy users & need energy for life saving medical equipment to keep our loved ones alive, comfortable & safe are facing another winter of complete financial hardship…..are you not ashamed of the colossal profits you are making
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Carolynne Hunter
5 months
…..a mixed emotion day! Absolute happiness for my oldest daughter who passed her driving test today (first ever test with no minors) a complete ⭐️ Then I think of Freya and how she will never pass her driving test…..in fact she can’t even leave her garden in her
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Carolynne Hunter
1 year
The sweetest reaction from @LewisCapaldi to Wee Freya for loving his song ♥️🎶♥️ #lewiscapaldi #freya #PalliativeCare
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Carolynne Hunter
10 months
Will never forget when I asked Freya's Disabilities SW if I could have more respite to take my 20 yr old son to have chemo in Edin every week. It was a loud NO! "He's an adult & needs to get on with it himself!" No-one should have to hear such heartless words #Cancer #PTSD
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Carolynne Hunter
2 years
Freya keep fighting - home is just an empty space without you here 😥 💔
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Carolynne Hunter
9 months
Sadly it’s been a very traumatic eve for Freya with her airway. Enroute to @NHSForthValley A&E. The 2nd Jan 2023 I had to go to A&E it was shambolic. I can only hope that Freya will have the care she needs & be kept safe in the appropriate environment. #PalliativeCare
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Carolynne Hunter
3 years
@Lewis40Martin I'm a band 0 and my Daughter gets the best ever nursing care from me ❤ even in the garden listening to the birdsong and trees 🌳 whistling in the breeze. I can nurse without the mask 😷 too in our garden ❤
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Carolynne Hunter
1 year
A dream for so many years was to take Freya to a Festival ⛺️🎶🌸 it’s not Belladrum or The Wickerman where I used to take my older children when they were Wee… however it was safe and Beautiful….. My Grandchildren & Freya’s big Sister enjoyed a special hour with Freya having
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Carolynne Hunter
7 months
Here’s Wee Yins smile to celebrate #InternationalWomensDay #PalliativeCare #Freya #Love ♥️
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Carolynne Hunter
2 years
Lovely to be able to tell our story today about the love & support provided by Rachel House Children’s Hospice @supportCHAS for my family the past 12 years. “CHAS you have certainly supported keeping the Joy alive in all of my family’s life”. #PalliativeCare #hospice #Freya
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Carolynne Hunter
1 month
Emotional Post! A beautiful Saturday evening….. Freya had a few hours on her BIPAP machine earlier on today, she was completely settled with no need for oxygen. She began to wake up over an hour ago and had the biggest smiles whilst wearing the mask….this warms my heart ❤️
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Carolynne Hunter
10 months
Happy 14th Birthday Sweet Child 'O' mine 💗 An impromptu breakfast at Mummys favourite Cafe - for the first time ever with my Beautiful Girl. I love you trillions Freya....thankyou for choosing me to be your Mummy 14 years ago. ❤️ #PalliativeCare #Freya #HappyBirthday
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Carolynne Hunter
8 months
....just telling Freya how much I love the birthday card she made for me today ❤️🍄❤️ #Freya #PalliativeCare #Love #Toadstool
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Carolynne Hunter
1 year
Here’s my thought for the day with regards to #CarersWeek2023 I think when you are caring for your child with intense medical needs & work because you have to so you can protect your #mentalhealth , you are completely dismissed as being identified as a Carer by the organisations
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Carolynne Hunter
8 months
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Carolynne Hunter
4 months
….this wee Beauty woke earlier to the sound of me talking to her nurse about our wee plan of getting her to hear Taylor Swift during her Eras Tour #TaylorSwiftErasTour #TaylorSwift #PalliativeCare
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Carolynne Hunter
2 years
I was just telling Freya about the latest chat from the new PM & the support she is providing for her with the #EnergyCrisis She’s giving Freya £150 towards our £6,500 annual energy bill 😩 #CostOfLivingCrisis #PalliativeCare #energy @MartinSLewis @Danwhite1972 @trussliz @prime
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Carolynne Hunter
2 years
❤️
@BBCScotlandNews
BBC Scotland News
2 years
Kate Winslet covers Scots mum's £17,000 energy bill
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Carolynne Hunter
2 years
Wee Yin ♥️🌹♥️ #blessed
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Carolynne Hunter
2 years
Love Love Love ❤️ my new dragon 🐉 desk tidy - made by my Beautiful Freya 🌹
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Carolynne Hunter
1 year
Wee Yin melting my Heart ❤️ this evening - being a Typical 13 year old….. Freya, if only I could take you to see @LewisCapaldi 😢 #PalliativeCare #TeamFreya #LewisCapaldi #NoAccessibleCommunity
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Carolynne Hunter
1 year
I have to say I have so much appreciation for Freya's NHS staff who have ralied round since this awful event last night to support me with her at home today and tonight by doing extra long shifts they weren't originally scheduled in to do. I want to Thankyou all too for all of
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Carolynne Hunter
8 months
We were listening to @LewisCapaldi #LewisCapaldi earlier - as always this Wee Yin gives the most Magical smiles ❤️ #PalliativeCare #Freya #Love #HomeSweetHome
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Carolynne Hunter
5 months
We’ve had a tough day…..however it just got better ♥️ my strong beautiful Freya #PalliativeCare #PTSD #Love #Freya
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Carolynne Hunter
2 years
All you need is a Smile ♥️
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Carolynne Hunter
2 years
A few hundred pounds higher……it’s thousands for me and many more people with a high level of medical care at home. Do you actually understand what it is like to worry about how you are going to pay your bills to keep you Daughter alive! Naw! @RishiSunak @afneil #EnergyCrisis
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@RishiSunak
Rishi Sunak
2 years
Rishi Sunak tells @afneil why he thinks a VAT cut to energy bills is the best way to get support to households quickly this winter. #Ready4Rishi
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Carolynne Hunter
1 year
@LewisCapaldi ♥️🎶♥️
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Carolynne Hunter
2 years
A Wee impromptu few hours out today with Wee Yin…. Happy Freya 💕Happy Me
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Carolynne Hunter
2 years
♥️
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Carolynne Hunter
2 years
…..so Wee Yin wakes up with the biggest smile after 48+ hours of sleep 💤 #PalliativeCare #teamfreya #feelingblessed
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Carolynne Hunter
13 days
Nothing more amazing than seeing this Wee yin happy ♥️ It was the breeze 💨 #PalliativeCare #Freya #CaringforFreya
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Carolynne Hunter
2 years
@BorisJohnson @trussliz @RishiSunak @NicolaSturgeon @ClacksCouncil you are going to have to do something pretty soon to help families like mine or you are going to have an even bigger H&SC crisis on your hands. Where do you think Carers can afford these ridiculous energy hikes!
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@CazMac38
Carolynne Hunter
2 years
@MartinSLewis @BBCr4today I have no way of cutting back on the energy I use to keep my daughter alive & comfy so are Truss, Sunak, Johnson & Nicola going to help me pay for the energy I use to provide my Freya with an intensive care micro ward at home? This is real life for some families. #EnergyCrisis
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Carolynne Hunter
3 years
…….it’s just that smile. I ❤️ you so much Freya. You are the meaning of Resilience & Happiness. Never stop smiling Beautiful Wee Yin 🌹 #PalliativeCare #love #beautiful
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Carolynne Hunter
11 months
.....that smile ❤️ #Freya #PalliativeCare
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Carolynne Hunter
3 months
…….I’m still waiting for @NHSForthValley to support my Beautiful Freya to have a trial of BIPAP that her Forth Valley & @NHSGGC respiratory consultants both put her forward for to provide her with a better chance of survival and ultimately a better quality of life. The
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Carolynne Hunter
3 years
Thankyou @LauraAlderman_ for giving me the space to tell such an important story for all unpaid carers, social care & our forgotten families not just during the pandemic for as long as! time to start prioritising the workforce that are being taken for granted. @NicolaSturgeon
@STVNews
STV News
3 years
A mother is calling on the Scottish Government to offer more support to unpaid carers who are 'holding the NHS up'.
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Carolynne Hunter
10 months
My Wee Family ♥️♥️♥️
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Carolynne Hunter
8 months
A year has passed since Freya and I had this rare beautiful day out together 💕 #PalliativeCare #Love #Freya
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Carolynne Hunter
1 year
Happy Friday 💕
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Carolynne Hunter
11 months
@sissell_black @NHSForthValley Past few weeks have been horrific. My family and close friends are completely worried for me - I have no choice but to keep standing for Freya 😢.
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Carolynne Hunter
5 months
Who needs the sun to shine when this Wee Beauty is belting out the smiles ♥️ #PalliativeCare #Freya #Love
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Carolynne Hunter
11 months
@Mikeo56977865 @Carer49 @NHSForthValley @scotgovhealth @ScotGovFM @P_H_S_Official @BBCScotland @Dodd68Fra @MareeToddMSP @STVNews @ChildHealthScot @jasonleitch Absolutely Mike, it wasn't that long ago I was told to sign a document that states if I tell Freya's stories and mention @NHSForthValley on Twitter they would have the right to pull my care package....I didn't sign it. I always thought it was my human right to tell Freya's
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Carolynne Hunter
10 days
Yet another challenge in our lives! Please Re-Tweet to make sure Freya and her friends are kept safe whilst being picked up from school. I had to share ♥️ All you need is love!……along with the car parking space you were promised at School to ensure Freya can safely access
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Carolynne Hunter
1 year
....happiness is welcoming this wee Beauty into our hearts 💕 #puppylove #labrador
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Carolynne Hunter
4 months
Just had to share…..she’s made my day! Those Wee giggles behind that mask just melt my heart ❤️ #Freya #PalliativeCare #erastour #TaylorSwiftErasTour
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Carolynne Hunter
2 years
Thankyou #KateWinslet & Family ♥️ and everyone else who has donated to Freya to support her Life. I am hoping @10DowningStreet @Jeremy_Hunt can organise appropriate emergency financial support for Families with similar circumstances to mine during this #EnergyCrisis @RishiSunak
@BBCNews
BBC News (UK)
2 years
“If it isn’t working, change it, fix it, do it better” Actress Kate Winslet says more should be done to help families with the cost of living after she donated to a woman struggling with energy bills
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Carolynne Hunter
2 years
You canny get much better than Freya’s Beautiful Smile - Wee Yin enjoying her music session this evening with Helen ⁦ @fsharpmusic01 ⁩. #palliativecare #musictherapy
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Carolynne Hunter
2 years
…..and Relax @supportCHAS is looking after both me & Wee Yin. Sometimes you just need to be around people that completely get it & make you feel included supported & Cared for ❤️ #PalliativeCare #UnpaidCarers #energy #EnergyCrisis #Election22 #MentalHealthMatters
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Carolynne Hunter
10 months
I had the opportunity to be a voice at Consumer Scotland's #energycrisis event today, campaigning on behalf of families caring for their children at home with a high level of medical need. I eventually got home in time to see Freya with her music therapist enjoying 🎶 ❤️ 🎶
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Carolynne Hunter
4 months
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Carolynne Hunter
2 years
…..a Wee Annual Leave day from work….spent here ⁦ @ScotParl ⁩ talking to MSP’s about how they can support families looking after children with a high level of medical need at home appropriately through the #energycrisis #costoflivingcrisis @Miles4Lothian ⁩ Thankyou 🌹
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Carolynne Hunter
1 year
I was singing 🎶 “You are my sunshine ☀️ to Wee Freya this morning” ♥️
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Carolynne Hunter
3 years
so it’s up to over £1000 a month now @ScottishPower . This is actually causing me severe distress. How is this actually allowed @NicolaSturgeon ? Does anyone in Scot Gov Leadership actually give a !! about the people of Scotland? What’s your solution @AnasSarwar . @LauraAlderman_
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Carolynne Hunter
3 months
…..so whilst Freya was fast asleep when we got home from school with her today, I was telling my friend about the dreadful week we have had regarding @NHSForthValley & their lack of support with Freya’s BIPAP trial. I also mentioned how supportive all of you have been on this
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Carolynne Hunter
11 months
I was looking through my camera roll & found this. You light up our lives Freya Keep smiling Wee Yin ♥️ @LewisCapaldi #Freya
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Carolynne Hunter
2 years
Wee Yin enjoying a wee snooze this afternoon at her favourite holiday destination ♥️ @supportCHAS #PalliativeCare #Christmas #SantaClaus
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Carolynne Hunter
2 years
Wee Yin enjoying music therapy this evening ♥️ #palliativecare #musictherapy
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Carolynne Hunter
1 month
My Wee family enjoyed meeting Ewan & Mary last week whilst we were at the hospice for Freya’s BIPAP trial ♥️ #PalliativeCare #Freya #CaringForFreya #ComplexHealthCare #TeamFreya
@supportCHAS
Children's Hospices Across Scotland
1 month
✨ A heartfelt thank you to Scottish actor and longtime friend of CHAS, Ewan McGregor, for his wonderful visit to Rachel House! 🎉 Ewan has been supporting CHAS since Rachel House first opened in the 90s, and spent quality time with the children staying at the hospice. (1/2)
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Carolynne Hunter
2 years
……I am Truly Blessed ♥️ Freya-Rose 🌹
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