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Anorexia Myths

@AnorexiaMyths

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Debunking myths about anorexia nervosa. Recovery is possible. For everyone.

Joined November 2021
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@AnorexiaMyths
Anorexia Myths
1 month
Again, here’s my graph showing why aiming for low target weights in treatment is not going to get someone recovered. See the line between 90% on the way down and 90% on the way up. If you aim for 90%, you’re just taking someone back to where the illness started.
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@AnorexiaMyths
Anorexia Myths
1 month
Could someone please tell me why people use the phrase ‘mental health’ when they mean ‘mental illness’. It’s really very odd.
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@AnorexiaMyths
Anorexia Myths
2 years
Six years ago my daughter decided to start eating ‘healthier’. Six years on she’s stuck in anorexia, living a half life, always on the edge of disaster. There’s no such thing as good and bad food. No food group is better than another. Vegetables are good for you. So is fat.
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@AnorexiaMyths
Anorexia Myths
2 years
If you want to recover from anorexia you have to: 1. Eat. A lot. 2. Gain weight. There really is no way of avoiding those things. While AN is a mental illness, no one has ever thought themselves out of it. You have to eat.
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@AnorexiaMyths
Anorexia Myths
1 year
The greatest horror writer couldn’t invent anorexia. An illness so powerful that it convinced you that starvation is good and food is bad An illness that causes great suffering but that won’t allow you to ask for help An illness that isolates you from those who love you
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@AnorexiaMyths
Anorexia Myths
1 year
Oh my goodness I just had a video call with my daughter for the first time since she moved. She looks so well and so happy. I haven’t seen her like this for years. She had a sparkle in her eyes that I haven’t seen since AN arrived. Such joy and hope in my heart. ❤️
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@AnorexiaMyths
Anorexia Myths
1 year
Of all the people I’ve known with EDs over the years, I can’t think of a single one who didn’t come from a family that was absolutely lovely. Please don’t assume there’s something wrong in the family. We don’t do this with cancer or other illnesses, after all.
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@AnorexiaMyths
Anorexia Myths
1 year
I’ve said it before and I’ll say it again: If you work with people with eating disorders and you’ve come to the conclusion that the only option is to make the patient comfortable while they die… You might want to think about whether you’re in the right job.
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@AnorexiaMyths
Anorexia Myths
1 year
The trap of anorexia is that anything you try to do to recover will make you distressed (ie upset AN), so you’ll do anything to avoid distress (upsetting AN) which only serves to feed the AN. Distress is part of recovery. You have to walk through the storm. There’s no other way
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@AnorexiaMyths
Anorexia Myths
2 years
I have both my children home for Christmas and it is wonderful. And my daughter’s looking physically okay and is in the best mood I’ve seen her in in years. Life is good. Merry Christmas everyone. Love to you all. ❤️
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@AnorexiaMyths
Anorexia Myths
4 months
My daughter: ‘My body’s changed a lot. I’ve put on weight. And I’m absolutely fine with that.’ Amen and hallelujah!
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@AnorexiaMyths
Anorexia Myths
2 months
I don’t think I know a single person outside the ED world who understands that weight loss can trigger anorexia (rather than the other way round). No wonder it takes families by surprise.
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@AnorexiaMyths
Anorexia Myths
1 month
For anyone thinking you can never have a normal relationship with food again: I had a lovely, relaxed impromptu supper with my daughter last night and I could not see the cogs turning. No thinking, no deciding. She just ate. Full recovery is possible.
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@AnorexiaMyths
Anorexia Myths
2 years
If you’re a psychologist or a psychiatrist working with patients with EDs and you think that allowing a 19 year old with anorexia to starve to death was the best solution, then I’d probably consider whether you’re in the right job.
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@AnorexiaMyths
Anorexia Myths
1 year
Saw my d for the first time in months and she is doing amazingly. Healthy and happy. We had an open, relaxed chat about her ED for the first time ever. It feels like there’s been a seismic shift. This time a year ago I thought she might not make it. I feel incredibly lucky. ❤️
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@AnorexiaMyths
Anorexia Myths
1 year
This is a really excellent piece of journalism. Well done to all involved. The anorexia patients abandoned by the NHS because 'they are too sick to treat' | Daily Mail Online
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@AnorexiaMyths
Anorexia Myths
2 years
Eating disorders are a bit like toddlers. You cannot negotiate with them. And if you negotiate about food with a person who has an eating disorder, you’re negotiating with the eating disorder itself. I learnt this the hard way. #eatingdisorders
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@AnorexiaMyths
Anorexia Myths
7 months
One of the best things about having my daughter back from the brink of anorexia is the return of her sense of humour. I mean, she never completely lost it. But she is just so funny. Love her.
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@AnorexiaMyths
Anorexia Myths
2 years
It’s so sad to see people who want to recover but who somehow think they can recover without changing their behaviour or gaining weight. If you want to recover from anorexia, you have to give up anorexia. You can’t hold on to it a little bit.
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@AnorexiaMyths
Anorexia Myths
2 years
If you’re feeling stuck in anorexia, remember it’s your body, it’s your brain, they’re your actions, no one else’s. It’s not your fault that you’re ill, but you can take action to get better. Your eating disorder can’t be more powerful than you because it is a part of you.
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@AnorexiaMyths
Anorexia Myths
1 year
You know I said I had a video call with my daughter and she had a light in her eyes that I hadn’t seen for years? I’ve just been speaking to someone who saw my d a few weeks ago. Guess what they said? ‘Her eyes look different. She has a light in her eyes.’ Amazing.
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@AnorexiaMyths
Anorexia Myths
1 year
I will never, as long as I live, understand how humans became interested in how much their bodies weigh. It’s such a peculiar measure to care about. It has no value. I’m far more interested in how big someone’s heart is, or how poetic their soul.
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@AnorexiaMyths
Anorexia Myths
1 year
My daughter has anorexia, yet she hasn’t seen any professionals about it for over five years, apart from a couple of sessions with a therapist. How many are living with this illness and services have no idea? There must be thousands.
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@AnorexiaMyths
Anorexia Myths
2 years
You can have all the talks in schools you want but the only thing that might have saved my daughter from developing AN would have been this message: 1. Some people who go into energy deficit will develop anorexia nervosa. 2. That might be you, so don’t ever go on a diet.
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@AnorexiaMyths
Anorexia Myths
3 months
When you’re a mum of kids with anorexia, people assume: - They were picky eaters - I was always dieting - I had body image issues - I talked negatively about my children’s bodies Guess what? None of the above is true. You can do everything ‘right’. It won’t protect you.
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@AnorexiaMyths
Anorexia Myths
2 years
The thing is, you’re terrified of gaining weight. But once you’ve gained the amount of weight that your body needs for your brain to function properly you won’t be scared at all. You have to take a leap of faith. It will be worth it. It really will.
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@AnorexiaMyths
Anorexia Myths
2 years
If you’re in recovery from AN and someone tells you you look well, this is perfectly normal. They are relieved and happy to see that you are not dying. Your ED will not like it. Your ED is an idiot. Ignore it. This will happen and you can’t allow it to scupper your recovery.
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@AnorexiaMyths
Anorexia Myths
2 months
Every time I say my daughters have/had anorexia, I get *the look*. If you think parent blame isn’t alive and kicking, and absolutely ingrained in the collective consciousness, try walking a day in my shoes. It’s really f***ing exhausting tbh.
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@AnorexiaMyths
Anorexia Myths
2 years
For some reason I’m feeling really quite emotionally drained right now. I miss my daughter. It’s been too long since she was her true self and not defined by an illness. So sad for all the opportunities missed and the suffering. It’s overwhelming today.
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@AnorexiaMyths
Anorexia Myths
3 months
I wish I could bottle my daughter’s recovery experience and make that part of standard AN treatment. Whatever it was, it has worked. In case you’re interested, it has included - living in a v hot place - lots of sun - dairy, meat, fish - immersion in another language
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@AnorexiaMyths
Anorexia Myths
6 months
So much nonsense about fasting in the media. It should at the very least come with this simple health warning: ‘Fasting can lead to eating disorders. Don’t try this if you or anyone in your family has a history of eating disorders.’
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@AnorexiaMyths
Anorexia Myths
1 month
And to anyone still arguing that weight gain isn’t absolutely fundamental to recovery, please show me all the examples of people who’ve managed to change the anorexic mindset while underweight…
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@AnorexiaMyths
Anorexia Myths
2 years
People very rarely talk about the trauma of watching your child starve and being unable to help. Yet we parents pick ourselves up and carry on. Every single day. And if we try to speak about it, we are shut down with ignorant comments or a look of blame. It’s exhausting.
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@AnorexiaMyths
Anorexia Myths
2 months
Now that my daughter is back to full power, she is just a delightful, funny, loyal, creative badass. Anorexia is a bastard. You are a billion times better without it.
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@AnorexiaMyths
Anorexia Myths
9 months
In 1873 Dr William Gull, who named anorexia nervosa, wrote: ‘As regards prognosis, none of these cases, however exhausted, are really hopeless whilst life exists; and for the most part, the prognosis may be considered favourable.’ What has gone wrong in the last 150 years?
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@AnorexiaMyths
Anorexia Myths
2 years
I often wonder if, in the first weeks of illness, parents were simply told, ‘Your child’s brain is having an unusual response to energy deficit. They need to restore their weight and more until this stops’, how many lives would be saved and how much misery avoided.
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@AnorexiaMyths
Anorexia Myths
5 months
Message to any parents of a child with AN, or indeed any ED: It’s perfectly okay, indeed normal, for you to feel very anxious. Your child has a condition which could kill them. Nobody would bat an eyelid if a parent with a child with leukaemia was very anxious, would they?
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@AnorexiaMyths
Anorexia Myths
9 months
When a spokesperson from the UK’s biggest ED charity confidently tells the nation that EDs are ‘coping mechanisms’ you realise the size of the mountain we have to climb…
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@AnorexiaMyths
Anorexia Myths
2 years
Why can people with anorexia have so much empathy and concern for others with the condition but aren’t able to extend this to themselves? I have seen this in my daughter. It is mind blowing. #anorexia #eatingdisorders #mentalhealth
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@AnorexiaMyths
Anorexia Myths
1 year
The greatest mystery of anorexia is not what makes people starve themselves or have a distorted body image but why this illness is so hard to disobey. What gives it such extraordinary power?
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@AnorexiaMyths
Anorexia Myths
10 months
‘Why is someone doing this to themselves?’ is the wrong question. It should be: ‘Why is this person’s brain doing this to them?’ #anorexia
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@AnorexiaMyths
Anorexia Myths
1 year
We know that recovery from the effects of starvation takes many months thanks to the results of the Minnesota Starvation Experiment. Are you still discharging anorexia patients when they’re ‘weight restored’ and wondering why they keep relapsing?
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@AnorexiaMyths
Anorexia Myths
6 months
No one who is malnourished should be diagnosed with a personality disorder. And by malnourished I don’t mean emaciated. I mean, with a body weight below its set point and/or restricting food.
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@AnorexiaMyths
Anorexia Myths
1 year
If you’re on here and you have anorexia, please remember that most of the people talking about anorexia on here are still unwell. Those who are recovered probably have far better things to do, like living their lives. People do recover. This place is not representative.
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@AnorexiaMyths
Anorexia Myths
1 year
How different things are from a year ago, when I despaired at my daughter’s physical state and her refusal to talk about it. She’s now a healthy weight and happy, and I have reason to believe that her thinking around food has changed. Things can get better.
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@AnorexiaMyths
Anorexia Myths
2 years
All the talking in the world won’t change your thoughts about eating. Your brain is having those thoughts because you’re restricting. You have to stop restricting first to change your thinking. It’s a leap of faith but you have to change your behaviour first. #eat
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@AnorexiaMyths
Anorexia Myths
8 months
When you are starved it’s impossible to have the headspace for anything else because food is a basic need. If you’re not starved, you are free discover all the millions of wonderful things that exist in this world. Anorexia nervosa is not your friend. It brings nothing good.
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@AnorexiaMyths
Anorexia Myths
5 months
I know I’m biased, but of all the people I’ve met in the ED world, the parents (mums, let’s be honest) are usually the most knowledgeable. I know we can be a thorn in the side of the system. But after decades of being silenced, not to mention blamed, it’s time we were heard.
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@AnorexiaMyths
Anorexia Myths
6 months
This is an honest article about one mum’s experience of having a child with AN. We can argue over language (‘an anorexic’) but it’s good that people talk about this openly. I'm a doctor, so why can't I help my anorexic daughter? | Daily Mail Online
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@AnorexiaMyths
Anorexia Myths
1 month
‘Living with mental health’. What on earth does that mean?
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@AnorexiaMyths
Anorexia Myths
10 months
I see so many people with AN hovering at the edge of a healthy weight. I know it’s a massive leap of faith, but honestly if you just go that bit further, wonderful things can happen. I am seeing this magic in my daughter, who for years was stuck at the target weight she was given
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@AnorexiaMyths
Anorexia Myths
5 months
I’m not someone who dwells on the past, but occasionally it hits me. My child not eating. Being unable to eat. Begging for help. When it came, the pain and torture of it all. No one understands. Only those who love someone with this awful illness. Solidarity with you all ❤️
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@AnorexiaMyths
Anorexia Myths
1 month
Is it because people are afraid to use the phrase ‘mental illness’ because they think it’s stigmatising? Because you know a great way to stigmatise something is by not speaking about it…
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@AnorexiaMyths
Anorexia Myths
1 year
Every day I think about all the mums in the past who saw their children die of anorexia and were told it was their fault. Cruelty comes in many forms. But there is none more cruel than that.
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@AnorexiaMyths
Anorexia Myths
8 months
Tired of being told that, as a family, we probably had an unhealthy relationship with food or our bodies and that probably contributed to our daughters’ anorexia. This. Is. Simply. Not. True. Anyone who knows us, know this. We don’t do this with any other illness. Please stop.
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@AnorexiaMyths
Anorexia Myths
2 months
I wish there were some legal route where you could collectively take this woman to court for libel. It’s absolutely disgusting, ignorant and harmful. (She’s not a real doctor, is she?)
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@AnorexiaMyths
Anorexia Myths
6 months
Sometimes I wonder whether ED therapists understand movement compulsions when treating AN. Compulsive exercise needs to be overcome for full recovery. Otherwise the brain’s not relearning that it’s okay to eat and be still. This should always be part of treatment.
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@AnorexiaMyths
Anorexia Myths
8 days
I’m sure when my daughter was ill she felt that her ED was a huge part of her identity and she didn’t know who she’d be without it. This is so common. But I can tell you: the fact that she had an ED is probably the least interesting thing about her.
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@AnorexiaMyths
Anorexia Myths
10 months
The joy of hugging your child and not feeling like she’s going to break. ❤️
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@AnorexiaMyths
Anorexia Myths
1 year
My god is it any wonder that people don’t recover from anorexia when there are esteemed professors who don’t believe in full recovery and just expect people to reduce their anxiety! Anorexia doesn’t have to be a life sentence. It’s only poor care that makes it so.
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@AnorexiaMyths
Anorexia Myths
1 year
People often say: eating disorders are mental illnesses and can’t be compared to physical illnesses. I find this so odd. I don’t get what people think the brain is if it’s not physical. Really honestly cannot compute.
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@AnorexiaMyths
Anorexia Myths
2 years
If you want to recover from anorexia you really are going to have to eat and gain weight. There’s absolutely no getting away from that. So you need to overrule your brain for a while and change your behaviour first. Your brain will catch up eventually.
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@AnorexiaMyths
Anorexia Myths
1 year
People working in the field of EDs say a lot of things about eating disorders: what they are, how they should be treated, why they develop. But the only thing that actually matters is: are your patients getting better? And if not, why?
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@AnorexiaMyths
Anorexia Myths
1 year
Being dissatisfied with your body is not the same as having an uncontrollable desire to lose weight to the point of emaciation, even death.
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@AnorexiaMyths
Anorexia Myths
11 months
The fundamental problem we have in EDs is not lack of funding, treatment or research. It’s a lack of understanding. People think EDs are a choice. They think they’re self-inflicted. They think AN specifically is something silly little girls do out of vanity.
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@AnorexiaMyths
Anorexia Myths
1 year
Sometimes it’s hard to explain what it’s like being a mum of a child with anorexia, so I’ve written a short story to explain what it’s like for me. Hoping to post this tomorrow. #anorexia #eatingdisorders #fiction
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@AnorexiaMyths
Anorexia Myths
1 year
A short story about what it’s like to be a parent of a child with anorexia. Slightly scared to share this, but then life’s too short to care, so here goes… #anorexia #eatingdisorders #fiction
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@AnorexiaMyths
Anorexia Myths
2 years
I believe that recovery is possible for anyone with anorexia nervosa. I also think this message is important because if anyone with anorexia hears that recovery is possible only for some people, I can guarantee you that they’ll believe that they’re in the other group.
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@AnorexiaMyths
Anorexia Myths
2 years
Had a DM from a parent today and have been given permission to share. His daughter had been in and out of ED units for 5 years and at one point was close to death. Then they discovered Tabitha Farrar’s work, with its emphasis on biology, and the daughter was motivated to try it
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@AnorexiaMyths
Anorexia Myths
2 years
To anyone with a child under 18 who has anorexia: use the time you have wisely. You have to get them well before they turn 18 if at all possible. Do not accept a low target weight. They need to go beyond and stay there for some time their brains to repair. ❤️
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@AnorexiaMyths
Anorexia Myths
2 years
Food is medicine for people in recovery from AN. And it’s been shown time and again that people in recovery from malnutrition need to eat a lot. I believe there’s a case for financial support, especially at the moment with the cost of living crisis. #anorexia #eatingdisorders
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@AnorexiaMyths
Anorexia Myths
3 months
Can we talk about memory? We know that starvation affects memory. How does this work in AN? Because it seems to me that the person who had the illness often recalls very little about how devastating it was while the family is left to carry the awful memories. Thoughts?
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@AnorexiaMyths
Anorexia Myths
9 months
Hearing about ED treatment providers who are stuck in the thinking that after 3 years AN is chronic and you can only manage it. May I suggest you try some neural rewiring exercises to get out of these negative thought patterns?
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@AnorexiaMyths
Anorexia Myths
2 years
Anorexia may tell you you’re winning if you are able to eat less than others. But guess what? No one else is playing. So you might be coming first, but you’re also coming last. Anorexia lies #eat
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@AnorexiaMyths
Anorexia Myths
4 months
What do I want people in the ED world to do? Aim higher. Aim for recovered. Just as you would for any other treatable illness. It shouldn’t have to be said.
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@AnorexiaMyths
Anorexia Myths
4 months
FBT is traumatic for everyone. Gaining weight when your brain is screaming at you that it is wrong is traumatic. Watching your child suffer is traumatic. That doesn’t mean you shouldn’t do it though. Sometimes you have to walk through the fire.
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@AnorexiaMyths
Anorexia Myths
1 year
I sometimes say ‘I’m just a mum’. But really there’s no such thing, is there? No one’s just a mum. And the mums I’ve met in the ED world are some of the most knowledgeable, dynamic, committed, extraordinary people I’ve met. They are powering change.
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@AnorexiaMyths
Anorexia Myths
2 years
‘You look well’ seems to be the number one thing not to say to someone with anorexia. This is, of course, a well intentioned comment in almost every case. People are often relieved to see their loved ones looking healthy. Why does this innocuous comment cause such upset?
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@AnorexiaMyths
Anorexia Myths
1 year
The only intervention that is proven to work in the treatment of anorexia is food. There are therapies that seem helpful. But unless eating a lot of food goes alongside them, they’re ineffective. You know what you need to do. #eat
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@AnorexiaMyths
Anorexia Myths
1 year
ED Twitter’s been a bit traumatic today, hasn’t it? I hope everyone struggling can feel all the love. We want you all to be in the world. ❤️
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@AnorexiaMyths
Anorexia Myths
2 years
I know it’s only Twitter, and we’ve never met IRL, but there are so many people on here I care about and am rooting for. If you’re battling anorexia, know that recovery is for you. There is another way of living. And you will get there x
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@AnorexiaMyths
Anorexia Myths
1 year
I can’t explain how helpful it’s been for me to write about anorexia. It’s been incredibly frustrating, indeed heartbreaking, not to be able to talk to my daughter directly about her illness. She just shuts it down. So instead I write to/for her. Maybe one day she’ll read it.
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@AnorexiaMyths
Anorexia Myths
1 year
This bit in @HadleyFreeman ’s book shows why someone with anorexia should never be considered by a court to have capacity to make a decision about whether they live or not. @AgnesAyton @HopeVirgo
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@AnorexiaMyths
Anorexia Myths
9 months
For years my daughter has been living through an apocalypse, at least that’s what her brain understood. Now that her brain is out of apocalypse mode she is completely fearless; she is not scared of anything. I guess if you’ve survived an apocalypse there’s nothing left to fear.
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@AnorexiaMyths
Anorexia Myths
11 months
People. Do. Not. Understand. Anorexia. Even. Those. Supposed. To. Be. Helping. Them. ‘You’re leaving me to die’: Plea of anorexia patient told she was ‘too thin’ for help | The Independent
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@AnorexiaMyths
Anorexia Myths
2 years
In treatment at a well known UK ED clinic, my daughter was given a target weight that was simply too low. I knew this even then, when I didn’t really know anything. My concerns were dismissed. Parents, if you know something is wrong, shout as loud as you can! You won’t regret it
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@AnorexiaMyths
Anorexia Myths
1 year
Not sure what’s happened to Twitter’s algorithm but I am getting bombarded with weight loss ads at the mo. I mean, my Twitter handle literally contains the word ‘anorexia’. Irresponsible beyond belief @TwitterSupport
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@AnorexiaMyths
Anorexia Myths
18 days
The fact that some people recover spontaneously without therapy indicates to me that environmental or biological changes are very important. We need to figure out why this happens and translate this into treatment.
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@AnorexiaMyths
Anorexia Myths
2 years
Beware of taking recovery advice from anyone who isn’t fully recovered. It may well be the anorexia talking.
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@AnorexiaMyths
Anorexia Myths
25 days
There’s a real absence of thinking in people who can’t see that the brain can go wrong just like any other organ in the body. Yes, it can go wrong because of trauma. But why should that be the sole reason in a biological organism? It makes no sense.
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@AnorexiaMyths
Anorexia Myths
6 months
There’s a girl I’ve seen over on Instagram who was so very unwell that I just wanted to jump in to my phone and feed her. Sadly it appears that she has died. Not going to name her but just a reminder of how serious this is. AN doesn’t have to end this way. It breaks my heart.
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@AnorexiaMyths
Anorexia Myths
11 months
To the daft people writing the East of England NHS guidelines: you can’t recover from AN when you’re underweight because the malnutrition is fuelling the thoughts/behaviour. This means treatment has to involve helping people put on weight. There’s no other way. So do that.
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@AnorexiaMyths
Anorexia Myths
2 years
Maybe I’m deluded, it has been 7 years after all, but I see my daughter’s anorexia as a blip in her life and absolutely believe that she will overcome it completely. I have never thought any differently. I do not accept that this is just how things are and always will be.
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@AnorexiaMyths
Anorexia Myths
2 years
Quick tip: recommended portion sizes are not for people recovering from malnutrition. They are an absolute minimum. You can have much, much more than that x
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@AnorexiaMyths
Anorexia Myths
1 year
Quasi recovery should never be the goal of treatment for anorexia. If you give the ED the chance to hang on, it will. And if you’re working with people with AN and don’t get this, you don’t understand EDs at all.
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@AnorexiaMyths
Anorexia Myths
2 months
For decades we’ve been asking the wrong question: ‘Why are you doing this to yourself?’ When we should have been asking: ‘Why is your brain doing this to you?’
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@AnorexiaMyths
Anorexia Myths
6 months
Always fascinated by doctors who treat people with anorexia nervosa yet don’t seem to have kept up with any research in the last 20 years. Fascinated but also very sad for their patients…
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@AnorexiaMyths
Anorexia Myths
1 year
I’m saddened when I see what positions of power the therapist who failed my daughter is in. It’s depressing to think someone with such a major lack of understanding of anorexia is influencing treatment.
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@AnorexiaMyths
Anorexia Myths
8 months
If you’re still suppressing your natural body weight and you’re still restricting food, your brain is still being given the message that food is to be feared. And anorexia will not let go. You need to show your brain that food isn’t scary. That means changing your behaviour.
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@AnorexiaMyths
Anorexia Myths
6 months
Having a child with AN is like having a child kidnapped yet somehow they’re still there. The kidnapper won’t let them eat, sometimes drink. Sometimes they hurt them in other ways. And you are forced to watch. Is there a crueller illness?
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@AnorexiaMyths
Anorexia Myths
26 days
I suffered for years from a mental illness that was, in fact, solely caused by a chemical imbalance, so I find these hot takes quite annoying. Also, what about the truth? Is that irrelevant? Saying all MI is caused by trauma is false and belongs in the Dark Ages.
@PsychToday
Psychology Today
26 days
Seeing mental illness as having a biological cause tends to make stigma worse, not better, @justin_garson writes. It may be time to start seeing “people with problems” rather than “patients with illnesses.”
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