Some great news in these difficult times. Together with
@vancole9
, we are launching the
#AndyColeFund
. Read more about how we'll transform kidney transplants and help patients with their mental health and wellbeing:
#TeamAndy
⚽
We’re very disappointed the Government will not be making
#Evusheld
available to people who are immunocompromised. Many kidney patients will be angered and frustrated by this decision. We urge the Government to urgently reconsider.
Read our statement 👇
We are very concerned that NICE has recommended that the range of treatments for Covid-19 patients who do not need supplementary oxygen, is reduced to just one drug, unsuitable for many kidney patients.
More here 👇
Dave Hudson Harvey was the first person to have a kidney transplant at Bart’s Hospital in 1971. He's believed to be in the top 3 people in the UK with the longest surviving kidney transplant!
Read his story
@NHSBartsHealth
#ThrowbackThursday
@NHSOrganDonor
It's
#WorldKidneyDay
!
This year we want to shine a light on the realities of living with kidney disease, and try and share some tips for those who suffer from it that could help to make their life just a little bit easier.
Reply with your best
#KidneyTopTips
below 💜
The team at Freeman Hospital in Newcastle made a kidney out of the caps from the tops of the dialysis solution containers 💜
@NewcastleHosps
#WorldKidneyDay
"Unconditional love." ❤
We couldn't have put it better ourselves.
This is the amazing moment the Goggleboxers were reacting to, minutes after Antonia had successfully donated her kidney to her daughter, Heleen.
#Hospital
#Gogglebox
Today is two years since the launch of The Andy Cole Fund 🎉
The fund was set up by
@vancole9
to help other kidney patients like him, and so far it's raised over £70,000, which is helping in our campaign for better mental health support for patients.
👉
And our photo competition winner is...
Dr Laura Wilson's stunning image of macrophages (purple), kidney tubules (green) and lymphatic vessels (white) in a developing kidney🏆
📸‘More than just tubules – the importance of the immune system in growing a kidney’.
#KidneySnapshots
"What's important to understand is just how common kidney disease is."
Kidney disease is a really big deal, but it’s not taken seriously enough. We need your help to transform treatments for those living with kidney disease.
👉 Watch the full video:
We are delighted to announce that
@vancole9
has joined us as charity ambassador. Andrew knows what it means to live with kidney disease & shares with us the urgency to make swifter progress in the fight against kidney failure.
@_JMallen
#TEAMKIDNEY
👩⚕️We'd like to say a huge thank you to all the renal nurses on
#InternationalNursesDay
for their dedication and support to kidney patients in what has been one of the hardest years for those working in the profession. 👨⚕️
Kidney Research UK has today published a major new report that finds kidney disease is a UK public health emergency that threatens to overwhelm the NHS if urgent action is not taken.
Read more 👉
What if haemodialysis was portable, contained inside something no bigger than a backpack?
Researchers
@EdinburghUni
are making big steps towards a wearable kidney.
"We need better support for the mental health and wellbeing of kidney patients. I know only too well because I have struggled."
Thanks to our ambassador
@vancole9
for sharing with us this
#MentalHealthAwarenessWeek
💜
Today at 12.30pm on BBC1
@alanshearer
tells the stories of world transplant athletes whose lives have been transformed by transplant surgery. The World Transplant Games took place in Newcastle last month with Team GB putting in an incredible performance!
Kidneys never stop working. They use about 25% of the body’s energy to do their magnificent job of cleaning all our blood 40 times a day. How amazing are our kidneys?
Football legend
@vancole9
knows how your mental health can suffer as a
#KidneyPatient
, and wants to change that.
The Andy Cole Fund aims to fund research into improving kidney transplants and patient wellbeing.
More info 👉 .
#MentalHealthAwarenessWeek
We're relieved to hear patients with serious kidney disease are set to be invited for the
#Covid19
vaccine within the next four weeks. If you are at stage 5 kidney disease, are on dialysis or have had a transplant you should be contacted by your healthcare team soon.
It's great to see Professor Stephen Marks
@kidskidneymarks
, and his team at
@GreatOrmondSt
making headline news for their special type of transplant. 👇
This year marks 80 years since the first dialysis machine was invented, and as you can see it hasn't changed much in that time!
#LetsTransformTreatments
so that dialysis is more tolerable for the 30,000 people each year who rely on it to stay alive 👉
Changing the game ⚽
We are delighted that football legend Andy Cole has announced £250,000 worth of funding, launching the Andy Cole Fund Grant Awards to help accelerate research into kidney disease.
Read the full story 👉 …research-funding/
Our ambassador
@vancole9
recently appeared on
@StretfordPaddck
to discuss his football career, retirement and his battle with kidney disease.
Andy talks about why he decided to set up the Andy Cole Fund and why he's so determined to help others going through the same struggles.
We are delighted to today launch the Kidney Research data portal (KRDP), a new online, searchable listing of datasets relating to kidney disease.
Full story 👉
Research we're funding, really could be a 'game-changer' in transforming treatments for kidney disease, especially for people from minority ethnic communities.
New grant success! 🎉 Ms. Emma Aitken from
@NHSGGC
has received a £5,300 Andy Cole Fund start-up grant to study the mental health impacts of kidney transplant complications on patients, families, and surgeons.
Read more:
We've done it!! Our aHUS awareness video has won the People's Choice Award in our category at tonight's virtual
#CharityFilmAwards
🥳
Thanks to all who voted and helped us scoop this amazing achievement. Head over to our Instagram page to watch our winning video.
#TEAMKIDNEY
Many thanks to
@libdemdaisy
MP for giving such an impassioned plea for
#Evusheld
in this morning’s parliamentary debate on
#Evusheld
. It was great to see so many MPs speak in support of the drug.
We hope the Government takes note and makes
#Evusheld
available urgently.
Dr Samira Bell has been named associate director of the new Kidney Data Science Catalyst – where she will lead on urgently needed data-led research to improve kidney and heart health.
Read how the data science catalyst aims to transform patients lives.👇
Exciting research that we're funding, is making front page news! Thank you
@thetimes
for sharing this with your readers, many of who will be waiting for a kidney transplant.
Our exciting research with
@emilythompson88
from Newcastle Uni is revealing new ways to make more kidneys suitable for transplant. It could shorten the waiting list and reduce the need for dialysis in the future.
Read more:
#organdonation
#kidneydisease
The world’s first blood potassium level home testing kit by
@kaliumhealth
is in development. 100 UK-based kidney patients will test a hand-held device that allows them to measure their potassium levels quickly and simply.
Read the full story below 👇
“Celebrating 50 years with my transplanted kidney”
In 1970, at just 10 years old, Mike started to experience signs of kidney disease and was shortly diagnosed after ending up in hospital.
“In my last year of junior school, I started to have symptoms like discoloured urine,
Kidney disease can affect anyone. Your neighbour. Your friend. Your work colleague. Your child. We may be stuck at home this
#WorldKidneyDay
but it doesn't mean we can't shout it from the rooftops. Show your support and share
@kidneydayUK
posts. It can't be ignored
#KidneysMatter
On
#WorldHealthDay
, let's give a big thanks to all the incredible:
🩺Doctors
👩⚕️Nurses
🏥Health workers
👨🔬Scientists
👨👨👧Carers
👨Volunteers
who are working hard to save and protect lives
#coronavirus
both now and in the future!
Research in focus 🔍
Professor Stephen Marks has been awarded a Laurence Isaacson Award to employ a research student to look for new ways of identifying kidney rejection before it happens.
Read more 👉
A great turn-out for today's
#Evusheld
vigil in Parliament Square, with representation from
#TeamKidney
in George, Miranda and Alison.
We will keep fighting for those who remain unprotected.
"Your kidneys aren't important, you can live without them"
"You can just get a transplant and you're cured"
There are A LOT of misconceptions about kidneys and kidney disease, and we hear them every day.
Your kidneys are essential. Watch below to find out why
#KidneysMatter
👇
Cycling while on dialysis improves heart health. Here’s Dr Daniel March
@Marchy1985
and a patient in behind-the-scenes filming for the CYCLE-HD trial.
Read about the study design ahead of the results release:
#UKRenalResearch
We're pleased to be in parliament today where we're calling on the Government to prioritise early diagnosis and the prevention of kidney disease.
#KidneysMatter
“Charlie is the one who has consoled us through all this. I just don’t know from where he draws his strength."
If you stop and read one thing today, please let it be Charlie's amazingly brave story.
👉
We are passionate about ensuring the most vulnerable members of society are protected, which is why we are one of the 18 charities calling for
#EvusheldNow
.
After a difficult year we're delighted to have been able to make new research grants to to help transform treatments for kidney patients. Click below to see who has been awarded a Kidney Research UK fellowship or project grant 👇
#KidneyResearch
16 charities and patient organisations representing immunocompromised people throughout the UK collaboratively wrote to Prime Minister
@RishiSunak
, calling for further support for those facing continued isolation and risk on the 4th anniversary of the first UK Covid-19 lockdown.
Research news 🚨
A new study has shown that just one dose of gene therapy targeting cells in the kidney called podocytes has the potential to cure steroid-resistant nephrotic syndrome.
Read more 👉
#TEAMKIDNEY
! Every drop of sweat at the
#LondonMarathon
has been worth it. You have raised an amazing £135,000 to fight kidney disease. We can’t thank you enough.
We were saddened to hear that Professor Donal O’Donoghue OBE, passed away from
#COVID19
yesterday. Our thoughts are with his family, friends, colleagues and patients. Take a look at our tribute to Donal below:
A big step forward: we’re partnering with
@Diabetesuk
to tackle
#kidney
disease and
#diabetes
head on. We’re working together to make greater impact sooner.
Wow what an amazing inspirational day! Big thanks to all our
#TeamKidney
@LondonMarathon
runnners! You smashed it and we couldn’t be prouder or thank you enough for running to raise money for vital research into kidney disease! Kidney disease ends here! 🙌🙌🙌💜💜💜
Children's author and our ambassador, Dame Jacqueline Wilson, has this message of support to help fellow kidney patients who are
#selfisolating
at home. We hope you enjoy her words of wisdom. 💜 📚
@FansofJWilson
#coronavirus
Watch the full video here:
For many, Christmas dinner is a highlight of the festive season and they look forward to piling their plate full of delicious food.
If you are a kidney patient on dialysis, your reality is very different. This is just a tiny example of the sacrifices they must make to survive.
Today is
#WorldKidneyDay
!
To mark the day, we recently conducted a survey to find out just how much the general public know about kidney disease.
We will be tweeting the results throughout today, so keep your eyes peeled! 👀
About last night✨
Thank you to everyone who joined us for, or supported, the
@vancole9
gala dinner last night. We're delighted to say over £100,000 was raised on what was a magical evening!
Renal nurses up & down the country do an amazing job for kidney patients. One such heroine is a nurse from Scotland who made the amazing sacrifice of donating her healthy kidney to a patient she will never meet.
#mykidneyheroine
Edinburgh doctor Gavin Chapman is running every day in December to celebrate his successful kidney transplant three months ago. Brother-in-law Stuart, who donated his kidney, is joining his
#StepintoChristmas
challenge. They've raised over £5k! 👏 👏 👏
We're taking kidney disease to government!
We're holding a parliamentary reception on Monday to warn politicians that kidney disease has become a public health emergency.
Read how we're trying to get government support to prioritise kidney disease 👉
And that’s a wrap!
#TeamKidney
have been at
@glastonbury
litter-picking and spreading awareness, and today they finished their last shift. Amazing work guys! 💜🎪
The
@nhsbartshealth
team currently performing a live kidney transplant operation on Channel 5’s
#OperationLive
explain how our kidneys do vital jobs and about the realities of kidney failure
"We always say that the kidney is more important than the heart."
Witness a live father-to-son kidney transplant tonight at 10pm when the unmissable
#OperationLive
returns.
Would you consider donating a kidney?
#OrganDonationWeek
has really highlighted that you can give the gift of life.
Did you know that six people die each week waiting for a kidney?
@donateakidneyuk
was created to encourage living kidney donation and help people interested in
The final researcher we're featuring for International Women and Girls in Science Day is Dr Michelle Willicombe, who is leading the
@MELODYStudyUK
.
Read more about its aims and Michelle's role here 👉
We’re looking forward to This Time Next Year with Davina McCall on
@ITV
tomorrow featuring Karen who has polycystic kidney disease and her husband Terry. What will their 12 month transformation entail? Find out tomorrow at 8pm.
@ThisisDavina
@TTNY_UK
Kidney disease can take a toll on patients mentally, as well as physically, and we want to help.
We have created a short survey to understand more about kidney patients’ mental health and the support available to you.
#KidneysMatter
We are delighted to be joining forces with
@Giveakidney
to launch a new programme to raise awareness of living kidney donation and encourage more people to consider saving lives by becoming a living donor.
Read more 👇
We're saddened to learn of the passing of music icon Tina Turner, who revealed in 2018 that she had suffered kidney failure and received a transplant, which she detailed in her book.
We send our deepest condolences to her family and friends.
We are delighted to be supporting a new national study, MELODY, to investigate how well third doses of Covid-19 vaccine protect immunocompromised patients and identify those who may still be at risk.
Can we make transplanted kidneys last for longer? New funding has been awarded to Professor David Ferenbach to explore this.
We know that kidneys from older donors, transplanted ones that are slow to start, and kidneys that have been attacked by the immune system are at higher
When Eric needed a kidney transplant eight years ago his wife, Mandi, stepped in without hesitation. On this Valentine's Day read Eric's open letter to his kidney heroine, Mandi, about the gift of life she gave him.
#mykidneyheroine
Our incredible trustee
@kidneydoc101
has raised a whopping £9,500 so far by walking 12,000 steps over 12 days in December for our
#StepintoChristmas
campaign - despite recent knee surgery! A true
#TeamKidney
hero! Check out her story and get involved too:
We recently delivered the My New Kidney interactive books to
@GreatOrmondSt
, where they will be given to children to help them understand their kidney treatment journey.
We are delighted to support our researcher Dr Rukshana Shroff and her team - we hope the children like them!
What an incredible evening! 🤩
Thank you so much to everyone who attended and supported our gala dinner last night. We raised an incredible amount that will help us continue to fund vital, life-saving research for kidney patients.
See you again next year!
#KidneyGala22
💜
A HUGE good luck to all of our amazing
@LondonMarathon
runners today! 🏃
Don't forget we will be at mile 13 and 25 cheering you all on - you got this!
#TeamKidney
💜
Dame Jacqueline Wilson writes brill children’s books. But did you know she is also a kidney patient? She typed her 100th book with her left hand only, as her right was hooked up to a haemodialysis machine!
@WorldBookDayUK
@FansofJWilson
#WorldBookDay2018
In 2007-8, the waiting list for a kidney transplant was 6,980. By 2016-17 this had fallen to 5,233 (NHSBT). Great work has been done, but there's so much more to do. Come and join
#TEAMKIDNEY
this year and let's work together towards lives free from kidney disease.
As Covid-19 restrictions are lifted in England today, we wanted to share a letter from
@mirandajscanlon
, lead of our lay advisory group.
Life will not return to 'normal' for immunosuppressed people and we urge the government to ensure they are not forgotten.
Please RT 👇
We know that dialysis is an invasive, gruelling, treatment.
A total of 30,000 adults and children currently rely on dialysis to stay alive, taking existing NHS capacity to its limits.
Using predictive modelling approaches, that number could be drastically higher...