Let’s talk clinical trials, shall we? (Spoiler alert: One guest has been enrolled in one for 33 years!)
On The Mighty Podcast, we are joined by Jackie Scott and Peter J. Franz, Ph.D., to explore the world of mental health clinical trials.
#Sponsored
This week has been tough. If you need support following the news of Anthony Bourdain and Kate Spade, you can reach out to the National Suicide Prevention Lifeline at 1-800-273-8255 or the Crisis Text Line by texting “START” to 741741.
Within 5 years of starting levodopa/carbidopa, half of people living with
#ParkinsonsDisease
are likely to have "off" time.
Watch the video to learn more.
#PD
PI:
PII:
Sponsored by Kyowa Kirin
Gene therapy could offer new opportunities to participants with
#RareDisease
to participate in clinical research studies. Click to read what gene therapy is, and learn about clinical research studies of gene therapies for adults with HAE.
#Sponsored
by BioMarin
Navigating a tardive dyskinesia (TD) diagnosis can be challenging, but you don’t have to go through it alone. Check out our 5 tips on how to build your TD support team, and spoiler alert: it includes more than just health care professionals.
Finding it hard to get peer support for alpha-1 antitrypsin deficiency (A1AT), a rare, inherited disorder affecting the lungs and liver? Join our Mighty group to connect with others affected by A1AT — from patients to educators to caregivers — and discover resources.
“People love to gatekeep what can and can’t be ‘PTSD.’ You can’t tell me what didn’t traumatize me. You weren’t there and you’re not here now as I’m reliving it.”
#PTSD
#mentalhealth
#anxiety
#depression
Alagille syndrome (ALGS) is a complex condition with symptoms that can vary greatly from one person to the next. If you’re feeling overwhelmed with what comes next after a diagnosis, here are the first four steps we recommend.
Spinal muscular atrophy (SMA) is a rare neuromuscular condition that can come with many challenges. Learn more about the condition and how to manage it from patients and caregivers who get it.
What is gene therapy research and how does it relate to hereditary angioedema (HAE)?
Learn more from Dr. Wedner, an expert in immunology and medicine, including how gene therapy is being researched in HAE participants.
#Sponsored
by BioMarin
While there is currently no cure for tardive dyskinesia (TD), there are steps you can take to lessen symptom severity and improve your quality of life.
Eczema, also known as atopic dermatitis, is a chronic inflammatory condition that primarily affects the skin, causing severe itching, dryness, and sensitivity. Learn more about eczema in our medically-reviewed, community-informed condition guide.
“Only I truly understand the depth and breadth of TD in my life.”
Diana shares why it’s so important to talk about tardive dyskinesia (TD), and how she learned to take an active role in her care.
Acute myeloid leukemia (AML) can be difficult to navigate. Equip yourself with the knowledge to better understand AML and “Be AML Ready”. Click the link to learn more.
#Sponsored
by Astellas
“My story is not everyone’s story, but there are also parts of it that are not unique to me.”
Brian shares three main things he wants people to know about his tardive dyskinesia (TD) diagnosis.
People living with chronic pain deserve to be heard. We asked our Mighty community to give advice to others who are new to life with chronic pain. Here's what they said.
#ChronicPain
#ChronicIllness
#MyPainPointOfView
Sponsored by Pain Points of View
“75 percent of teenagers who experience a depressive episode during adolescence later struggle with depression, other mood disorders, and/or substance use disorder as adults.” To learn more, read the story below.
Sponsored by Newport Academy
#mentalhealth
#depression
#parenting
"You don’t have to have a mental illness diagnosis to go to therapy — allowing yourself to be vulnerable in a safe space and having someone to talk to can be an important tool for everyone."
When Jane was diagnosed with a rare blood cancer, it put things into perspective for the grandmother who always prioritized others over herself.
Today, Jane shares her story and advice for anyone newly diagnosed with multiple myeloma.
#Sponsored
by Janssen
Navigating bipolar disorder and schizophrenia can be stressful, especially when trying to communicate how you are feeling and what you need. Read what people wish their loved ones understood about their condition.
"...in those moments where I’m stuck in ADHD paralysis and I’m in a standoff with a wide tooth comb, some deep conditioner and a tub of Blue Magic, I can’t help but think that maybe it’s the better option."
Medical school teaches you a lot of information, but you can’t learn about everything. What should have been taught in medical school about bipolar disorder, tardive dyskinesia, and schizophrenia? Read our story!
Ask Jenny Lawson -- mental health advocate and bestselling author of "Furiously Happy" -- how to find joy in the midst of anxiety and depression. Join
@TheBloggess
for an
#AskMe
Q&A here:
"There will be a mom coming home from a hospital with a baby with Down syndrome, wondering if there are babies like hers — and baby Lucas will be there."
May is Mental Health Awareness Month. The pandemic has been pretty exhausting for a lot of us, so this May, we wanted to host a fun, mental health-related activity you can participate in from the comfort of your couch!
“I want you to know that I see you. I see you, and I see your pain, and I see your struggle. I am so sorry that you went through a traumatic experience.”