Brain Ablaze @BrainAblaze Twitter profile

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Brain Ablaze

2 years

No one person or organization speaks for the whole #epilepsy community. Your story matters, as it might help others. Thank you for being here, supporting us, and sharing who you are. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

@elizajourney We're glad you're safe. 💜

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Brain Ablaze

@BrainAblaze

4 years

Whether you are a person with Epilepsy or just a supporter of the wider Epilepsy community, we truly appreciate all your help raising #EpilepsyAwareness !

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Brain Ablaze

@BrainAblaze

3 years

@clairlemon @pph2002 Her autopsy showed that she had a congenital defect in her brain. She had two documented seizures well before starting to train with her future husband.

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Brain Ablaze

@BrainAblaze

2 years

Today is the International #EpilepsyDay ! Please help us break the silence and stigma that surrounds #epilepsy and #seizures ! #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

7 months

@WalterJordyLV Sorry you (and them) went through that. Glad you're safe. 💜

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Brain Ablaze

@BrainAblaze

2 years

Seizures are not funny. The fact that plenty of people in the #epilepsy community joke about our #seizures as a defense mechanism doesn't make it OK for people outside the community to make their own jokes about our condition. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

1 year

The death of Cameron Boyce on this day in 2019 was a true loss of a talented up-and-coming star. Thank you to his family for continuing to raise awareness for #epilepsy , #SUDEP , and his legacy through their: -- Do you miss Cameron? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Happy #PurpleDay2023 ! DYKT an estimated 65 million people around the world live with #epilepsy ? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

5 months

Woo hoo! Please join us in congratulating @kaileyh175 on such a huge milestone! #EpilepsyAwareness

that girl with epilepsy

@kaileyh175

5 months

after April 26, i am officially 2 years seizure free!! 💜💜💜

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Brain Ablaze

@BrainAblaze

2 years

Last month our account surpassed 5000 followers! Thank you for being here with us and sharing your experiences with #Epilepsy and #seizures to raise #EpilepsyAwareness !

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Brain Ablaze

@BrainAblaze

2 years

A reminder: there are many types of #seizures and none of them look like what is depicted in movies and films. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

4 years

@javier_pamor @zljxb Please don't put anything in our mouths if you witness a seizure in real life. We need that airway clear. 💜👍 For even more info:

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Brain Ablaze

@BrainAblaze

2 years

Some people might think that using a pillbox might be a bit extreme, but for many people with #epilepsy , a pill box is a great tool to ensure that the right meds are taken at the right time, every time. -- Do you use a pill box? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 years

Do you believe that Seizure First Aid should be taught in schools? #InternationalDayOfEducation #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

We wish you weren't part of the #Epilepsy community. Now that you are, we are glad you're here sharing your stories to help others. Thank you for your support and advice. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

8 months

Today is International Epilepsy Day! -- How will you help support the #epilepsy community and break the #stigma surrounding epilepsy and #seizures ? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Have you ever been taken to the hospital because of a #seizure ? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

6 months

How do your anti-seizure medications affect you, your relationship with others, or your life in general? #PurpleDay2024 #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

A life with #epilepsy or #seizures is not easy. #EpilepsyMonth

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Brain Ablaze

@BrainAblaze

3 years

Happy New Year, but also Happy Birthday to us! Brain Ablaze was created on January 1st 2020 (great timing!). We've been raising awareness for #epilepsy and #seizures for two full years!

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Brain Ablaze

@BrainAblaze

7 months

Hey @Google how about an #epilepsy -themed doodle for #PurpleDay (March 26) this year? An estimated 65 million people with epilepsy worldwide would certainly appreciate it! #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

We are nearing #EpilepsyMonth which starts on November 1st. If you are a person with #epilepsy , care for one, or just advocate to raise #EpilepsyAwareness , introduce yourself so we can all follow each other.

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Brain Ablaze

@BrainAblaze

1 year

Temporal Lobe Epilepsy ( #TLE ) is the most common type of focal #epilepsy . The temporal lobes are located on either side of the head, just above the ears, and are responsible for processing emotions, memory, and language. #WorldBrainDay #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Please don't forget to include people with invisible disabilities (like #epilepsy ) in campaigns about diversity. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Please don't blindly suggest weed as a silver-bullet cure to a person struggling with #epilepsy . We are working with our doctors to determine the best-personalized treatment to manage our #seizures . While it might help you, it isn't a cure. #NationalHempDay #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

11 months

Here are some basic MYTHS about #epilepsy . 1) Everyone with epilepsy shakes and jerks when they have seizures 2) You should restrain someone having a seizure 3) You can’t die from epilepsy What are some other myths? #NEAM #NationalEpilepsyAwarenessMonth

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Brain Ablaze

@BrainAblaze

6 months

Tomorrow is April Fools. Can we all agree not to include #epilepsy (or #seizures ) in our pranks tomorrow? The estimated 65 million people with Epilepsy don't think seizures are funny. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Please don't upload videos of a person with #epilepsy having a #seizure without their explicit consent. We're vulnerable and it's not funny. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Seizures suck. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

9 months

Do you struggle with finding words where you can see the meaning in your mind, but can't get the word out of your mouth? This can be a symptom of #epilepsy . Epilepsy is more than seizures. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 years

Not all disabilities are visible. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

11 months

Happy Birthday to @adrock . Did you know that Adam Horovitz from the Beastie Boys (who have sold 20M records in the United States and had seven platinum-selling albums from 1986 to 2004) has #epilepsy ? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

11 months

Every seizure-free moment should be celebrated. #EpilepsyAwarenessMonth #NEAM

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Brain Ablaze

@BrainAblaze

3 years

#seizures suck. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 years

Two years ago today the world lost Cameron Boyce to Sudden Death from Epilepsy (or SUDEP). Do you miss him as much as we do? #EpilepsyAwareness #SUDEP #CameronBoyce

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Brain Ablaze

@BrainAblaze

11 months

#Epilepsy is a neurological disease where errant electricity in the brain results in unprovoked #seizures . The @WHO estimates there are 50 MILLION people with epilepsy worldwide while other estimates suggest it is much higher. #EpilepsyAwarenessMonth #NEAM #YouAreNotAlone

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Brain Ablaze

@BrainAblaze

3 years

If you have ever had an EEG you know what we are talking about. 👇 #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

There's no chance that someone will swallow their tongue. It's impossible. If you witness a person with #epilepsy having a #seizure , leave their mouth alone. #EpilepsyDay

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Brain Ablaze

@BrainAblaze

2 years

Please don't challenge a person with an invisible disability (like #epilepsy ) with statements about our appearance. Our disability might be invisible, but we are not. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 years

Please don't provide a person with #Epilepsy or #seizures unsolicited medical advice. Our condition is not like mending a broken leg. It is far more complicated and nuanced for each individual. RT if you agree! #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

5 months

Do you find yourself apologizing for your #epilepsy (or #seizures )? #EpilepsyAwarness

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Brain Ablaze

@BrainAblaze

1 year

Why don't more people include #epilepsy when describing chronic diseases? After all, there is no cure, it requires ongoing medical attention, and it can limit activities of daily living. #ChronicDiseaseDay #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Please don't joke about faking a seizure to get out of things. We've had reports of good people not helping when they witness a bonafide seizure because they are worried it is a prank. There are 65 million of us with #epilepsy that need your help. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

11 months

Many people with #epilepsy report that they have difficulty with attention and concentration. Do you? #EpilepsyAwarenessMonth #NEAM

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Brain Ablaze

@BrainAblaze

11 months

This 👇 is so important. Don't let your brain trick you into thinking that meds are not needed after a long seizure-free streak. Meds are helping continue the streak. Thank you @MsSConnolly32 ! #epilepsy #EpilepsyAwarenessMonth

Sarra Connolly

@MsSConnolly32

11 months

me after an epileptic seizure on the street please be aware medication is so important to tame this disorder #epilepsy

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Brain Ablaze

@BrainAblaze

11 months

NOCTURNAL #seizures occur during sleep. The human brain accounts for about 2% of our body weight, but it uses about 20% of our body's energy. This is because the brain is constantly working, even during #sleep . -- Do you have nocturnal seizures? #EpilepsyAwarenessMonth

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Brain Ablaze

@BrainAblaze

4 years

Most people just don't realize how common Epilepsy truly is. Let's show them. Like this tweet if you (or someone you love) has #Epilepsy . #EpilepsyAwarenessMonth #ChronicIllness #seizures #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

8 months

People with #epilepsy don't "relax" after a #seizure , but recover. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

1 year

Every #seizure -free day is a win. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

1 year

A very happy birthday to our founder, @DCClifford . Here is his #epilepsy story!

004: Our Host - The Brain Ablaze Epilepsy Podcast

In this episode, the host of our podcast, David Clifford, reluctantly opens up about his twenty-seven-year-long struggle with uncontrolled seizures and describes the great lengths to which he went to...

brainablaze.com

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Brain Ablaze

@BrainAblaze

1 year

Is #epilepsy Trending for anyone else? If so, let's keep the momentum going? 💜 #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

6 months

Seizure-free doesn't mean #epilepsy free. For many people, the effects of epilepsy are an around the clock struggle. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 years

A solid THANK YOU to the neurologists, epileptologists, neuroscientists, researchers, and anyone else who is working to find a cure for #Epilepsy or #seizures . #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

#Epilepsy is considered an "invisible disability" because most people won't recognize it unless they see a person actually have a seizure. -- Do you sometimes feel invisible while dealing with your invisible disability? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 years

Did you know that in some types of seizures people don't actually lose consciousness? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

People with #epilepsy need your empathy and not your unsolicited medical advice. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Some people scream before a Tonic Clonic seizure. The "scream" is actually air being forced out over our voice box when all of the muscles tighten in our body at the same time during the tonic phase. -- Do you (or someone you love) have TCs? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

You are not a burden. We know your friends and family appreciate you being around given the alternative. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

1 year

Déjà vu is the feeling that you have experienced something before when you haven't. Usually harmless, many researchers believe it can be caused by a small #seizure and a warning for a more intense seizure to come. -- Do you experience Déjà vu? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

1 year

A pillbox is a great tool for people with #epilepsy because missing our meds is by far the most commonly reported seizure trigger. If you have a pillbox, does it work for you? If you don't, how do you organize your meds? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

1 year

@LATS121416 Why are you bringing seizures into this? 💜

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Brain Ablaze

@BrainAblaze

2 years

On this #NationalHuggingDay , we give a virtual hug to all people with #epilepsy and their caregivers. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 years

Did you know that a feeling of deja-vu might actually be a small seizure? -- Do you ever get deja-vu? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

1 year

Many of us know that there are different types of seizures, but DYKT a single person with #epilepsy can experience different types of seizures? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Epilepsy might be a burden, but you are not a burden. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

1 year

Please don't confront a person with #epilepsy that they don't look like you'd expect. There isn't one "look". It can affect anyone of any age, race, nationality, ethnicity, gender, sexual identity, or political leaning. Anyone with a brain is susceptible. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

1 year

Regardless of what you may have heard, there is absolutely NO reason to stick something in someone's mouth if you witness a #seizure . We absolutely need that airway clear and biting on a spoon, wallet, or stick might actually injure us. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

10 months

Some people with #epilepsy struggle with feelings of guilt, loneliness, or unworthiness. It's hard but trying to ignore these feelings and not talking to others about them can actually make things worse. -- How do you feel about yourself and #seizures ? #EpilepsyAwarenessMonth

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Brain Ablaze

@BrainAblaze

2 years

Have you ever had a #seizure in public? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 years

We are not going to lie, Epilepsy sucks. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

#Epilepsy is a surprisingly expensive condition. The repeated appointments, scans, and emergency visits all add up. Help us prove our point. How expensive are your anti-seizure medications? #EpilepsyAwareness #EpilepsyMonth

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Brain Ablaze

@BrainAblaze

2 years

Do you think people outside the #epilepsy community realize how long it takes to recover from a #seizure ? -- About how long does it take for you? #EpilepsyMonth

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Brain Ablaze

@BrainAblaze

2 years

A nocturnal seizure has little to do with what time it is. It just means a seizure during sleep no matter what time of the day. -- Have you ever had a nocturnal seizure? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

5 months

Epilepsy is more common than most people think. There are an estimated 65 MILLION people with #epilepsy worldwide. -- If you have epilepsy, help us out by proving that we exist everywhere. Where do you live? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

4 years

We need a cure. That's it. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

SUDEP or SUdden Death from EPilepsy affects about 1:1000 people with #epilepsy , yet people new to the epilepsy community rarely know about it. How many appointments did it take for your neurologist to tell you about #SUDEP ? #EpilepsyMonth

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Brain Ablaze

@BrainAblaze

5 months

One of the reasons why it is so important for first responders to learn #seizure recognition and first aid is that many types of seizures can be mistaken for intoxication. -- Do you lose awareness during your seizures? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Some people might be surprised to hear just how long it takes to recover from a #seizure . Has anyone suggested you are lazy when in fact you're recovering? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

9 months

#Epilepsy isn't just a "kids disease". A new onset can hit anyone of any age. -- At what age were you diagnosed? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

6 months

@CoreyBrickley Definitely reach out to a doctor. Don't panic just yet though. Approximately 1 : 10 people will have a seizure sometime in their life. 1 : 26 will develop epilepsy. 💜

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Brain Ablaze

@BrainAblaze

10 months

Every seizure-free day is a win. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

9 months

Dear Santa, All we want is a cure. Thank you! An estimated 65 million people with #epilepsy worldwide. #EpilepsyAwareness #HappyHolidays

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Brain Ablaze

@BrainAblaze

2 years

People are often surprised to see such a passionate #epilepsy community here on Twitter. If you are a person with #epilepsy , care for one, or just advocate to raise #EpilepsyAwareness , introduce yourself so we can all follow each other.

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Brain Ablaze

@BrainAblaze

3 years

Faking a seizure is still not cool. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 years

Is our account useful to you?

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Brain Ablaze

@BrainAblaze

1 year

A seizure can still be dangerous if it doesn't involve convulsions. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Nocturnal seizures have nothing to do with night. Instead, it is just when one has a seizure while they are sleeping. They are quite common. -- Have you ever had a nocturnal seizure? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 months

Do you sometimes answer "I'm fine." when you aren't because you know that there is nothing that anyone around you can do to help with your #ChronicIllness ? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

1 year

People with migraine are more likely to develop epilepsy, and people with #epilepsy are more likely to develop #migraine causing a variety of symptoms, including headache, nausea, vomiting, and sensitivity to light and sound. -- Do you experience both? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 years

There's no shame in admitting one has a chronic illness like Epilepsy. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

Whether you work or not, we hope your work week is seizure-free. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

No driver's license and the fear of the next seizure compounds self-isolation to be a true problem with many people who have #epilepsy . -- How do you force yourself to get out and interact? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

4 years

@seanlavin9 @zltwxo @mvds__ Sorry to just jump in here. Please don't put in our mouth if you witness a seizure in real life. We need that airway clear. Thank you so much for watching and raising #EpilepsyAwareness !

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Brain Ablaze

@BrainAblaze

1 year

So glad to see the @WWE taking #seizures more seriously by banning "seizure sells" (aka faking a seizure after a "hit"). There are an estimated 65M people with #epilepsy worldwide. Seizures should never be used as a gimmick. #EpilepsyAwareness

AEW Moves To Ban 'Seizure Sells' And Several Other Actions - The Overtimer

AEW has some news rules and restrictions in place for talent, with a list of banned action, and certain moves now needing approval.

theovertimer.com

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Brain Ablaze

@BrainAblaze

1 year

Many disabilities are invisible and revealing a person's hidden disability without permission is appalling. We want everyone to be open about their #epilepsy , but people who have it don't owe an explanation to anyone. #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

7 months

Today, we celebrate the amazing women who are defying the odds living with #epilepsy ! We see you, we admire you, and we stand with you! #InternationalWomenDay #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

2 years

A DROP ATTACK is a slang term for a special type of #seizure (called an atonic clonic) that hits without warning causing the person to limply fall to the ground. The fall may cause more damage than the actual seizure. Have you fallen during a seizure? #EpilepsyAwareness

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Brain Ablaze

@BrainAblaze

3 years

Have you ever witnessed someone else having a seizure in real life? #EpilepsyAwareness

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