Alina MSN, RN, CCRC @Alina_MSN_RN Twitter profile

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Alina MSN, RN, CCRC

@Alina_MSN_RN

11 months

#LongCovid in case it's relevant/helpful to anyone here are things that have helped me. I'll start a thread.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

My friend's 5 year old niece just had a stroke. 5 YEARS OLD. What are we DOING allowing SARS to spread with no mitigation? Like seriously WHAT IS THE PLAN?

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

Me: statcan shows 38 percent of people get long COVID after 3 infections Friend: is that infections spread out or all at once Me: I'm not sure Friend: well if that's true it's basically the end of the world economy Me: yes. That's what I've been trying to tell everyone.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

#LongCovid one in ten infections. One in ten causes disability. We're fucked. We are utterly and truly fucked. I have 2 ivy league degrees. I was making 6 figures. Now, if I get denied disability the only thing keeping me from homelessness would be my friends. One in ten.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

#LongCovid is trending. Just your friendly reminder that until December I was a healthy working nurse and now I'm potentially disabled for life.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

2 years

I'm a nurse. I worked at the height of the pandemic and now that I have #longcovid I might as well not exist

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

I miss when I had a personality other than being COVID cautious

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Alina MSN, RN, CCRC

@Alina_MSN_RN

7 months

I know people who take zero COVID precautions and have never gotten COVID and it makes me so angry at the world.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

I complain all the time about how annoying it is that I ask people to test before seeing me. But now 4 times someone has tested positive and I have avoided seeing them. So the system works.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

11 months

Someone who is a DOCTOR is refusing to take a COVID test in order to hangout with me inside and it's like we live in hell

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

#MedTwitter if you're wondering where all the nurses have gone, we have long COVID

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

I am utterly freaking out. I worked for DECADES to build a career and some semblance of safety and it's all fucking GONE

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Alina MSN, RN, CCRC

@Alina_MSN_RN

2 years

My neurologist who had been treating me for #LongCovid just kicked me back to the long COVID clinic that had told me to see my neurologist. I can't work and I can't find someone to help me. Do you know a #neurologist #Neurology in #nyc to help? I also can't stop crying.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

It's finally hit me. There is no magic cure, I'm probably not going to get better and this is my life now. I'm so depressed. #LongCOVID

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

Does anyone know why folks minimize COVID? Is it all the coverage in the media? Capitalism? Like I need theories so I can try and understand.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

Welp, it's official. Work didn't accept my medical leave. I just got let go. I can't believe this.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

11 months

#LongCovid I can't stop crying today. I miss my health. I miss going to big crowded spaces full of people and not constantly worrying about reinfection. It's the combo of loss of health + fear that it could get worse at any point that's terrifying.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

One in ten. My first two infections I was fine. It's my third infection. That's the one that fucked me up. I'm just the canary in the coal mine.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

I think people know something is wrong. They're blaming it on vaccines but also I feel like they're going to blame it on us, those of us who refuse to participate in the mass infection campaign

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Alina MSN, RN, CCRC

@Alina_MSN_RN

2 years

Felt like the #longcovid clinic actually had no help to offer me and all I feel is despair

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

I can't even IMAGINE what kind of health problems the kids are going to have. It's bad enough as an adult with long COVID. WHAT ABOUT THE KIDS?!

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

I know they're going to reject my long term disability and then the only thing keeping me from being homeless will be my friends and my boyfriend and omg this is hell

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

How it started... How it's going #LongCovid #HELPLongCovid #LongCovidMoonshot @LCMoonshot

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Alina MSN, RN, CCRC

@Alina_MSN_RN

11 months

I have to say this and maybe it will get me cancelled or whatever. The #mecfs folks welcomed us #LongCovid folks with open arms. Taught us about energy envelopes and pacing. We can't forget them.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

7 months

I want to scream at my friend's for how unfair it is that they're not cautious and are fine and I'm cautious and am not fine

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

Anyone asking me if the kid is vaccinated is blocked. Go kick rocks.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

2 years

When you become suddenly disabled that shows you really fast who your real friends are.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

I am terrified of this.

Meet a woman suffering from long COVID who quit her job, spent $11,000 on treatments, but still...

Jenna Dreier is the breadwinner of her family, but had to stop working after long COVID symptoms kept her bed-bound for 20 hours a day.

www.businessinsider.com

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Alina MSN, RN, CCRC

@Alina_MSN_RN

7 months

I can't fucking believe I'm reinfected. I'm so angry.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

7 months

@CovidintheChart Don't listen. I'm a nurse disabled by long COVID.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

HELL. I can't talk about it on Facebook because it's depressing

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

It's only been 4 months. Just a reminder that your job doesn't care about you.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

@drsajumathew I am not trying to shame you. I really truly am not. I relaxed my precautions a bit. I wanted to 'live my life' I got COVID. Now I'm disabled. My career as a nurse is gone. I have LOST my life. #longcovid

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

Pretending that your immune system isn't damaged by COVID is minimizing bullshit. I'm sorry we all want it not to be the case, me most of all.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

I promise you this, no one would ever say this to a man. Give me your scholar id so I can judge you?

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Alina MSN, RN, CCRC

@Alina_MSN_RN

2 years

@julia_doubleday It's deliberate. If people found out how badly they've been lied to they're going to get ANGRY.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

@JessicaValenti I definitely stopped getting cat called as much once I turned 18. Which is disgusting when you think about it.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

The CDC director mentioned Long COVID. I feel like I'm going to fall over in shock.

Mandy K. Cohen, MD, MPH

@CDCDirector

9 months

Anyone can develop Long Covid — even our kiddos. The updated Covid vaccine remains the best protection against severe illness and reduces your child’s risk of developing #LongCOVID ! See the latest 👇

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Alina MSN, RN, CCRC

@Alina_MSN_RN

8 months

PEM really is the cruelest part of this disease #LongCovid

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Alina MSN, RN, CCRC

@Alina_MSN_RN

2 years

Is the media waking up?

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

@DiaBraveSid Someone already did and I blocked them

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

Welp my T cells are fucked up and I might need IV infusions for the rest of my life so that's fun news #LongCovid

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

@amyfaithho 6. Take a rapid test for COVID 19 before you gather and use an air filter so your event doesn't become a super spreader

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

And I STILL HAVEN'T HEARD FROM DISABILITY

Help Alina fight Long COVID, organized by Alina N.

I'm Alina and I'm a nurse. During the height of the pandemic I worked as a research nurse working… Alina N. needs your support for Help Alina fight Long COVID

www.gofundme.com

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Alina MSN, RN, CCRC

@Alina_MSN_RN

7 months

I don't know how to handle the grief of being so careful. Missing so much and still getting reinfected.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

8 months

I'm so proud of us. So proud to be a co-founder. #LongCovid #longcovidmoonshot @LCMoonshot

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

@DrSamiSchalk Good N95s and air filters!

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Alina MSN, RN, CCRC

@Alina_MSN_RN

11 months

If long COVID folks scream at researchers on Twitter every time they research something in not exactly the way you want them to, there aren't going to be more long COVID researchers

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Alina MSN, RN, CCRC

@Alina_MSN_RN

2 years

I could use some hope today. If you've had #longcovid and got better can you tell me about it?

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Alina MSN, RN, CCRC

@Alina_MSN_RN

7 months

Alright it's time to figure out far UV. Are you using it? What have you figured out about it? Tell me everything.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

7 months

If I didn't need medical care I would just go live in the jungle and never talk to anyone again

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Alina MSN, RN, CCRC

@Alina_MSN_RN

6 months

#LongCovid welp. It's official. I've got hashimotos. Fun?

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

@K9Jadie_AZ I grew up on welfare. I made the American dream happen and now it's gone.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

I'm probably going to end up homeless all because I got sick and it's so fucking unfair

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

The people telling me that I should magically have enough savings to last 2 years, or should magically have family that can help me (I don't) can truly F right off.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

#LongCovid crying as I fill out my total and permanent disability forms for my student loans. I know I need to do it but this is emotionally a nightmare.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

I'm looking for a COVID cautious roommate. Please RT. #NYC

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Alina MSN, RN, CCRC

@Alina_MSN_RN

8 months

I have done more organizing than ever in my life. I went to DC. I talked to the senators. And instead of focusing on the success of that, and building on it, a subset of the community is calling me a murderer. It's vile and I want no part of it.

Angela M. Vázquez needs you to google MECFS

@AngelaMSWinCA

8 months

One of the main reasons @itsbodypolitic closed was bc we couldn't sustain the quality & intensity of moderation on volunteer sick/disabled labor (including mgmt/leadership) w/o serious funding.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

#HELPLongCovid so glad to be here

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

Help Alina fight Long COVID, organized by Alina N.

I'm Alina and I'm a nurse. During the height of the pandemic I worked as a research nurse working… Alina N. needs your support for Help Alina fight Long COVID

www.gofundme.com

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

@Marc_Veld @fitterhappierAJ I just shared a number of studies and things from NIH, MSK discussing post COVID immune system dysregulation. I have also *personally* had to go on IVIG due to post COVID immune deficiency issues. I'm sorry but I'm not scaremongering, I'm providing you with accurate science.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

11 months

#LongCovid can we talk about the hair loss? It should be at the bottom of my symptoms below my eyes and the fatigue but man it SUCKS

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

#LongCovid #TeamClots #nyc microclots confirmed with testing. Now what?

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

The trolls alternate between telling me that long COVID doesn't exist vs saying that it's the jabs. Well? Which is it?

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Alina MSN, RN, CCRC

@Alina_MSN_RN

5 months

Hello I've recently realized that I have skills advocating for medical care. If you need help talking to a doctor at your appointment I can try and help *my own health allowing* please dm me

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Alina MSN, RN, CCRC

@Alina_MSN_RN

2 years

I feel like there's so much information and resources on #longcovid floating around. Is there a centralized website/resource? Is anyone working on one?

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Alina MSN, RN, CCRC

@Alina_MSN_RN

8 months

CW.... Having long COVID is watching people you care about catch the virus that disabled you over and over again, friends not want to see you or take the protections to see you (I get it, I'm depressing)while you read about other folks with long COVID/ME/CFS choosing euthanasia

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

Feeling depressed. I can't decide if my divorce or long COVID is the worst thing that's ever happened to me.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

For those that think I'm wrong

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Alina MSN, RN, CCRC

@Alina_MSN_RN

7 months

I think those of us with long COVID would beg to differ

Imani Gandy Corn 🎃

@AngryBlackLady

7 months

Literally everyone is better off right now than they were four years ago. The pandemic started four years ago this month. That line is not going to work this election. Don't be absurd

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Alina MSN, RN, CCRC

@Alina_MSN_RN

8 months

#LongCovid are you an influential person like @ChrisCuomo who has #LongCovid but you haven't been talking about it? We need you to talk about. Please. Talk about it to everyone.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

@open_erv Do YOU have enough savings to live off of for TWO years while you apply for disability and get rejected? Standard savings is 6 months. Thanks for the compassion

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

No one talks about how stressful it is watching people catch the virus that disabled you willy nilly

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Alina MSN, RN, CCRC

@Alina_MSN_RN

7 months

THE FUCKING GYNECOLOGIST IS CHARGING ME A $50 NO SHOW FEE FOR NOT EMAILING THE CORRECT EMAIL ADDRESS TO CANCEL FOR HAVING COVID. WTAF.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

I feel like I don't get invited anywhere anymore because of how COVID cautious I am and it really really sucks

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

If I'm reinfected I hope it kills me. I can't go through this again.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

2 years

Welp I had my first why are you wearing a mask COVID is over comment

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

My aunt just told me maybe I should just find a job? And I'm like a job where I don't have to look at screens and can lay in bed and not move? And like does anyone have a good SHORT accurate article that I could send her about ME/CFS? #pwME #MECFS

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

@blockchainer103 Get sick 19 more times then talk to me about how great it is thanks

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

I'm so angry today. So angry at our absolute failure of a government at our failure of a safety net. So so angry.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

The trolls are *big mad* about this

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Alina MSN, RN, CCRC

@Alina_MSN_RN

9 months

@Marc_Veld @fitterhappierAJ Why would I exclude long COVID patients? That doesn't make any sense.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

I'm going to go backcrupt if I don't get long term disability. I don't know what to do anymore.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

2 years

@Alexander_Tin @Novavax @US_FDA Wait like actually why are they doing this?

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Alina MSN, RN, CCRC

@Alina_MSN_RN

8 months

#helplongcovid so, it wasn't perfect but what do you think went right in the hearing? I'll start acknowledging long COVID is real and that they haven't done enough+ talking about clean air

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Alina MSN, RN, CCRC

@Alina_MSN_RN

8 months

I see an ME/CFs specialist, pretty much everything I've learned about PEM is from ME/CFs folks. As a (former) researcher I think it's logical to test treatments on both.

Michael A Osborne

@maosbot

8 months

In 2020, the only people who were there for Long Covid sufferers were those with myalgic encephalomyelitis—I believe most strongly that we should stand together in unity, especially now that real change for the better may be within our grasp

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

@brownecfm I already have neurological sequelae :(

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Alina MSN, RN, CCRC

@Alina_MSN_RN

11 months

@MirandaWhiting @1goodtern @MarcusFitzsimon It's me! I was fired from my job as a nurse after 4 months of being sick.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

They told me I'd have an answer and I don't

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Alina MSN, RN, CCRC

@Alina_MSN_RN

8 months

@julia_doubleday We did a terrible job at public health to surprised Pikachu face when consequences happen

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

#longcovid I want to get better. I dream about getting better and then going back to school, getting my NP and opening a clinic that accepts all insurance and takes care of patients with #longcovid #lyme #MECFS #ehlersdanlos

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Alina MSN, RN, CCRC

@Alina_MSN_RN

8 months

#LongCovid hairloss I don't know what to do anymore. Does anyone have any recommendations?

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

This #MothersDay2023 I'm thinking about how #longcovid has robbed me of the chance to be a mom

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Alina MSN, RN, CCRC

@Alina_MSN_RN

11 months

@MamaSitaa__ Mental status is usually where we put stuff about how you present appearance wise. It was explained to me in school like it would be relevant if someone was wearing 7 coats in the middle of summer.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

@WangCandice She's being released home after 3 days. I've never met her and I'm so angry on her behalf.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

@waltz_tales It's already affected my immune system in just two years. Make of that what you will.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

1 year

@ShiraDoronMD @wbranchelliman @ElissaPerkins How dare you. I've lost my entire career to Long COVID and you want to stop people from isolating because it's "disruptive"?!

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Alina MSN, RN, CCRC

@Alina_MSN_RN

11 months

@1goodtern Oh I've had a great time, at the hospital I worked on the research for the COVID vaccine seeing COVID+ patients in 2020 risking my life. Moved to admin, got long COVID and summarily fired 4 months later. Now I can't get long term disability to call me back.

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Alina MSN, RN, CCRC

@Alina_MSN_RN

10 months

WE COULD HAVE CLEANED THE AIR

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Alina MSN, RN, CCRC

@Alina_MSN_RN

8 months

This is ESSENTIAL. This is the NIH and FDA asking us. Please RT.

Judy Stone

@DrJudyStone

8 months

Calling all #LongCOVID long-haulers! Share your treatment experience by taking part in our research survey. Together, we can raise awareness and drive progress in research and care. Visit CURE-ID () or download the “CURE ID” app!

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Alina MSN, RN, CCRC

@Alina_MSN_RN

8 months

I'm having a everyone is going to get long COVID and no one is going to listen to me and I can't seem to get through to anyone day.

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